27yrs

A forum to talk about the general challenges of daily life with MS.
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Jaxson
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Posts: 7
Joined: Thu Jan 17, 2019 4:24 pm

27yrs

Post by Jaxson » Tue Feb 05, 2019 11:19 am

Feels like a life time bed bound , bed pan , pee bottle the whole nine yards. 53 yrs old what now?

ElliotB
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Re: 27yrs

Post by ElliotB » Tue Feb 05, 2019 1:55 pm

Welcome to TIMS. I understand what you are going through. What type of thing have you done for yourself? It may be time to try something new... things have changed/new unique discoveries have been made in the last 27 years - there may be new things to try that could still help you even at this point.

Jaxson
Newbie
Posts: 7
Joined: Thu Jan 17, 2019 4:24 pm

Re: 27yrs

Post by Jaxson » Wed Feb 06, 2019 9:09 am

I haven't seen my neurologist in 3yrs, 7 yrs ago I was trying antibiotics that I got from my family doctor and they really helped . When i told her she said nope antibiotics do nothing even going as far as it being a placebo effect. Then when minocycline got approved for the treatment of ms I was pissed, she gave me no support when I took them on my own like I was trying to tell her job. I've probably got the yrs wrong it was longer ago .wish i had got her support and stayed on them.

Jaxson
Newbie
Posts: 7
Joined: Thu Jan 17, 2019 4:24 pm

Re: 27yrs

Post by Jaxson » Fri Feb 08, 2019 1:52 pm

So many drugs and treatments now it's looking good for newbies 😊

ElliotB
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Re: 27yrs

Post by ElliotB » Fri Feb 08, 2019 2:52 pm

"it's looking good for newbies"

True but there is ample evidence now that those who have had MS for a while can also be helped, contrary to common beliefs that were the norm just a few years ago...

Jaxson
Newbie
Posts: 7
Joined: Thu Jan 17, 2019 4:24 pm

Re: 27yrs

Post by Jaxson » Sun Feb 24, 2019 7:34 am

Just watched a movie this morning called 50/50 about a guy having those odds of living with a cancer diagnosis. I'd take those odds anyday over a MS diagnosis where the best is a drug might help slow it down but maybe not. Diseases that are chronic and progressive from the time you get it till you die is not fair to anyone , everyone deserves a chance to get better.

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