Living without a life,

A forum to talk about the general challenges of daily life with MS.
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Re: Living without a life,

Post by robbie » Thu Jun 06, 2019 3:03 pm

It becomes so big in your head, body, mind and soul trys to take everything

Suicide remains highly stigmatized,” Dr. Patten says. “What often happens is people have those thoughts, and there’s a sense of shame or failure that goes along with that. So they don’t reach out for help from others.”

The study found that the following factors predicted suicidal thoughts in people with MS:

Older age. In the study, people aged 65 and older with MS were four times as likely to engage in suicidal thoughts (sometimes called suicidal ideation) as younger people with MS.

Bowel and bladder problems. The study found that participants who reported bowel and bladder symptoms as a complication of their MS were more than twice as likely to have suicidal thoughts.

Low self-efficacy. Participants in the study were given a quiz and asked to rate their ability to perform difficult tasks or to deal with unexpected events. Those who gave themselves lower ratings were more than three times as likely to have suicidal thoughts.

Speaking and swallowing problems. People whose MS symptoms involved trouble with swallowing or talking were almost three times as likely to experience suicidal ideation.

Emotional coping style. The MS patients in the study were given a queostionnaire to determine how they dealt with adversity. Patients who said they coped with difficulty in an emotional way were more likely to have suicidal thoughts than those who dealt with problems in a task-oriented manner.
Had ms for 27 gets harder and harder.

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Re: Living without a life,

Post by NHE » Thu Jun 06, 2019 10:30 pm

Hi Robbie,
NHE wrote:
Wed Jun 05, 2019 12:49 am
robbie wrote:
Tue Jun 04, 2019 11:01 am
Hi Moose I made a ceiling hoist from stuff a lot cheaper,couldnt afford the real thing. That was partly why the PSW didn't work out, no faith in my engineering skills. Makes it possible for my wife to move me around though. Disability is a rich person's game.

It looks well made! viewtopic.php?p=248292#p248292

Have you considered selling kits for lifts like this and perhaps other devices you've designed? It could be a profitable venture as I'm sure there are many people like yourself looking for lower cost options.

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Re: Living without a life,

Post by Anonymoose » Fri Jun 07, 2019 5:59 am

Hey Robbie,

I hope you’re in touch w people in a similar situation behind the scenes. There is clearly a need for some sort of easily found online interface designed specifically for the purpose of peer support at every stage of disease. I know what you’re talking about. I have my exit plan arranged. But I am nowhere near where you are in proximity to having to make the call. I can just say naive crap like “you’ve still got so much to give!” and “you’ve got family that loves you...look at that beautiful view!” Prolly not helpful in any way.

Have you tried the MSWorld chat? Maybe they’ve got a group going? If not, why not organize a group/platform yourself? There’s even a VR chat thingy out there these days...unfortunately that might be cost prohibitive for some.

Maybe creating/maintaining this peer support environment is your calling now???

Be well,

PS I agree w NHE re: selling your lifts/designs or even sharing ideas for free. Maybe you’ll meet more people who can relate that way...

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Re: Living without a life,

Post by robbie » Mon Jul 15, 2019 11:27 am

My brother put up another hoist upstairs for me this weekend, nice to have a different view. The best thing is my wife isn't up and down the stairs all the time :)
Had ms for 27 gets harder and harder.

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