What a disease
What a disease
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease

When doctors give you the ms diagnosis their only thinking short term, not the fact of the person being sick for a lifetime. I don't think theres any urgency with ms after all at least it won't kill you ,what happens later is you get left in the background of life. So many dreams in my head but I took it all for granted. The first 3rd of life had some good times

5 yrs before diagnosis:)
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease

You never think long term, ms you f____er !!
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease

So much talk about doing everything you can, I am.
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease
Just venting...
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease
Amyotrophic lateral sclerosis (ALS): Also called Lou Gehrig's disease, ALS includes several types that damage the motor nerve cells that control the muscles.
MS: This chronic condition occurs when the body's immune system attacks the central nervous system, causing harmful inflammation in the nerve fibers.
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease
This is one of my favorite songs and albums the title Running to Stand Still is literally what I've been doing since diagnosis in 92 , 5 yrs before I was on a sail boat for three months mostly listening to U2 only thinking of what's next , what will I do with my life. When i hear it now it brings back incredible memories and good times. Where I am now with the ms there's some lyrics in this song that to me describe what it's like in my head.
You've got to cry without weeping
Talk without speeking
Scream without raising your voice
You know I took the poison from the poison stream and floated out of here
So much of it is a battle inside yourself that no one sees, ms takes you from one spectrum of life to in some cases the seventh tower and only one way out. When you think about it, life is memories and I'm so grateful for the ones I made when I was younger.
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Re: What a disease


8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
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