icky lab results

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jimmylegs
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icky lab results

Post by jimmylegs » Mon Oct 28, 2019 3:37 pm

welp i've been feeling a bit on the crap side and some of the answers are coming in now. the main news so far is low normal serum magnesium. looks like some regimen juggling is in order!

update: high normal ferritin and copper with low normal zinc. see this is why you need data not guesswork. i was imagining i was tired from low ferritin. not even close. bring on the zinc!!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

81Charger
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Re: icky lab results

Post by 81Charger » Wed Oct 30, 2019 7:39 am

Hi, I'm curious where I could get a blood test done and get the results to look at. If I go to my DR he just says everything looks and won't give you a copy of the results.

Thanks Glenn

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Wed Oct 30, 2019 10:19 am

hi i'm in ontario and among other factors, i guess i don't do well taking no for an answer lol. i just use standard testing facilities and a req from the doc.
you probably need to do the legwork re local solutions. in your case formal written requests could be part of the answer.

things are moving slowly in canada but soon we'll all have access online. here in ontario i could get my results online right now if i thought it was worth the 20/yr, but instead i called my doc and asked if i could pick up a print out. long story short, done and done.
  • How do I access my medical record? (2019)
    https://www.nbms.nb.ca/patient-informat ... al-record/

    Accessing your own medical record
    Physicians in New Brunswick are subject to the Personal Health Information Protection and Access Act (PHIPAA). The Act specifies the way in which you can get access to your record.

    Within 30 days of a request from you to your doctor, they must make any record accessible for your inspection. This should be done without a charge, though if you want help in understanding your record, the physician may bill you for such assistance. The patient may request the assistance of the physician in interpreting the record.

    If you want a copy of your record, you also can receive that within 30 days of a request. Your doctor may, and usually will, charge you for the costs they incur in photocopying the record and mailing it to you (or the equivalents). There are some exceptional circumstances where you might be charged for retrieving the record.
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

Zyklon
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Re: icky lab results

Post by Zyklon » Thu Oct 31, 2019 12:32 pm

Any new lesions between tests? Maybe related to ferritin increase?
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Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Fri Nov 01, 2019 6:13 am

hi no at last scans things were stable/improving except for the actual condition of my spine/discs.
i really imagined that i was overdoing zinc in several ways, but i clearly wasn't.
my plan is to load zinc and mag for a month then ask for a retest on zinc copper ferritin and mag.
i have a few other figurative irons in the fire but i don't expect those to have any specific effect on the metals testing. hoping for good outcomes!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Fri Nov 01, 2019 10:34 am

this couldn't be much more bang on
  • Dietary habits; concentration of copper, zinc, and Cu-to-Zn ratio in serum and ability status of patients with relapsing-remitting multiple sclerosis (2017)
    https://www.sciencedirect.com/science/a ... 071730059X

    ...The concentration of Zn was significantly lower in the serum of individuals with MS (0.776 ± 0.195 mg/L) than in the control group (0.992 ± 0.315 mg/L). The ratio of Cu to Zn was higher in the examined patients (1.347 ± 0.806) than in the healthy volunteers (1.012 ± 0.458)...
came in lower than both the rms and pms group means here, jus sayin...:
  • Lower Serum Zinc Levels in Patients with Multiple Sclerosis Compared to Healthy Controls (2018)
    https://www.mdpi.com/2072-6643/10/8/967

    ...Results: MS patients showed significantly lower zinc concentrations (mean (SD)) than HCs (12.5 (2.1) µmol/L vs. 14.6 (2.3) µmol/L, p < 0.001). In contrast, we did not find any difference between RMS (12.4 (2.0) µmol/L) and PMS (13.0 (3.0) µmol/L) cases (p=0.8 )...
i note also that i purposely had my zinc taken pm non-fasting for once, to get a more realistic sense of the daily worst case scenario. my morning fasting habit has been with the idea of making results comparable but it has likely been giving me rose tinted results in the zinc dept.
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Fri Nov 01, 2019 4:17 pm

think things are already starting to turn around but wow that was an annoying couple days
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Sun Nov 03, 2019 12:26 pm

whoa now that i've seen this it reminds me - the few times i experienced my ears ringing in the last while, it had been just ages with no occurrences and i actually remember thinking 'huh, so it can happen when your zinc status is fine' ... i thought there was no way it could actually be a zinc issue in my case. WRONG.

A clinical correlation between hypozincemia and tinnitus (1987)
https://link.springer.com/article/10.1007/BF00464266
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

81Charger
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Re: icky lab results

Post by 81Charger » Mon Nov 04, 2019 8:18 am

Thank you for the information Jimmylegs, I gave in and went to the hospital Saturday night, I've been feeling bad and it just kept getting worse so I assumed I was having a relapse. They took some blood and was going to check it. They did start me on IV steroids for 3 days. I'm going to ask tonight if they will give me any results from the blood test or if I have to see my regular DR

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Mon Nov 04, 2019 9:22 am

no problem and keep pushing for a copy of your info. my question from here is which tests they bothered to ask for.

what frustrates me personally, as usual, is that even though the results from the atypical tests i've specifically asked for represent an issue per the research, everything came back 'normal' so no action advised by my mainstream health care team.

reminds me of that time i had an episode of internuclear ophthalmoplegia early last year. no solutions from the mainstream. so lucky to have academic access to the relevant research publication - the one, single, relevant (and for that matter, non-ms-based) article out there.

the really good takeaway from that xp has been that if something happens you might need some weird and very specific physio to bring things back into line. i can't imagine the nutrient corrections alone (that time vit d3 status was awful) would have been anything like as effective.
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Mon Nov 04, 2019 4:09 pm

this looks interesting...

A short 18 items food frequency questionnaire biochemically validated to estimate zinc status in humans (2018)
https://www.sciencedirect.com/science/a ... 2X1830004X
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Tue Nov 05, 2019 11:57 am

so the ongoing fatigue i'd blamed on low iron (wrong) is on the mend since i started corrective/therapeutic mag and zinc. nice :)
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Thu Nov 07, 2019 10:08 am

ok so about 10 days into replenishment results so far are corrected fatigue with spasticity reduced from maddening to noticeable. not driving for now. physio monday pm.
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Mon Nov 11, 2019 4:00 pm

physio today. took along a copy of the INO article from last year, plus got some neat exercises to try out over the next few weeks. might end up with a referral to someone with more specific cns physio expertise. we shall see!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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jimmylegs
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Re: icky lab results

Post by jimmylegs » Sun Nov 17, 2019 9:07 am

lost another friend to cancer this am. :'(
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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