What tests prior?

A board to discuss Revimmune as a potential therapy for multiple sclerosis
Post Reply
User avatar
msmything
Family Elder
Posts: 293
Joined: Sat May 17, 2008 2:00 pm
Location: Chicagoland
Contact:

What tests prior?

Post by msmything »

Hi everyone!
It looks as if I am accepted by Rush, for a mid january start.

I have 2 questions actually.

First is what insurance covers without a fight? We are in open enrollment right now.

And, what tests are done prior to starting? I want to know what may potentially kick me out. I'm jsu about to turn 54 (next week!) and I have some minor health issues that I hope aren't too big for their purposes.

I'm assuming a whole battery of blood work.

Can anyone give me the lowdown from a 'been there' POV?
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
User avatar
dlb
Family Elder
Posts: 202
Joined: Sun Nov 22, 2009 3:00 pm
Location: Didsbury, Alberta Canada
Contact:

Post by dlb »

So exciting - will be watching for your follow-up report. Best Wishes!
User avatar
msmything
Family Elder
Posts: 293
Joined: Sat May 17, 2008 2:00 pm
Location: Chicagoland
Contact:

Post by msmything »

I am excited!! I wish I was more computer literate and I could embed a scype report, so everyone can be there with me.

I was reading the data the doc had posted on the wall, and all of the study participants were young...maybe I'm rounding out his demographics...

I wanna know what happens 1st though.........!!!!
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Post by Lyon »

oo
Last edited by Lyon on Sun May 08, 2011 5:08 pm, edited 1 time in total.
User avatar
Axiom
Family Member
Posts: 42
Joined: Tue Nov 02, 2004 3:00 pm

Post by Axiom »

Chris and Mel both had the treatment at Johns Hopkins.

Check out this link:

http://rebootingkathy.blogspot.com/

(or do a search for Reebooting Kathy if it doesn't link properly)

It's a blog written by a patient who had the treatment at Rush. She shares lots of very detailed info, and she even has a fairly recent update.

This section of the site has been very quiet, but I hope you'll keep posting about your experiences. Good luck to you!
User avatar
msmything
Family Elder
Posts: 293
Joined: Sat May 17, 2008 2:00 pm
Location: Chicagoland
Contact:

Post by msmything »

Thank you axiom...and Bob!

I just had a round of IVSM, and the pain level I had been at had been completely out of control, now is bearly bearable!!
Howeevr, I thought I was superwoman, and worked 3 days in a row..

I'M NOT SUPERWOMAN..
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
User avatar
criptastic
Getting to Know You...
Posts: 14
Joined: Sun Sep 05, 2010 2:00 pm

Post by criptastic »

I had HiCy earlier this month, tho not at Rush. Prior I had a list of about 20 different blood tests (lots of viral studies) and a Muga scan for my heart.

Feel free to ask any questions.

Criptastic
User avatar
msmything
Family Elder
Posts: 293
Joined: Sat May 17, 2008 2:00 pm
Location: Chicagoland
Contact:

Post by msmything »

OK, I found out i will be having an MRI, chest x-ray, EKG and echocardiogram, lots 0 labs, lots of baselines with a hemotologist, neuropsych studies, and establishment of EDSS score..

I keep in touch with all of my Docs by fax. I have found that messages left with office staff tend to get garbled. (anyone else?)

I faxed Dr. Balabanov's office and HE called me back later that day. It was a question e could easily have had one of his minions call me back with an answer. I was delighted that he took the time to touch base with me. I also got a call from the program coordinator just to let me know that I am still on target for inclusion, but that I would hear nothing until after the holiday season. I thought that was a nice touch too...
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
User avatar
Looking88
Family Member
Posts: 44
Joined: Fri Dec 24, 2010 3:00 pm

Post by Looking88 »

Hello criptastic, can I ask where you got your HiCy treatment? So far I know of JH and Rush. Are there other options?

Thank you.
User avatar
criptastic
Getting to Know You...
Posts: 14
Joined: Sun Sep 05, 2010 2:00 pm

Post by criptastic »

UTSW in Dallas.
Last edited by criptastic on Tue Aug 30, 2011 11:49 am, edited 1 time in total.
User avatar
Looking88
Family Member
Posts: 44
Joined: Fri Dec 24, 2010 3:00 pm

Post by Looking88 »

Thank you. I hope your treatment is a great success.
User avatar
msmything
Family Elder
Posts: 293
Joined: Sat May 17, 2008 2:00 pm
Location: Chicagoland
Contact:

Post by msmything »

Hello Criptastic, I echo the sentiment that you are the exception, and that the HiC works really well for you.
Do you mind if I ask what auto immune you have? I have MS, but 2 others as well, and I hope that here will be magic for all 3.
I've got pemphigus, and am being tested for lupus right now, I've got the lovely face rash, kinda racoon like....my blood is off somewhere special.

Please let us know your outcome...I know that JH did aplastic anemia some years back with HiC,
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
User avatar
criptastic
Getting to Know You...
Posts: 14
Joined: Sun Sep 05, 2010 2:00 pm

Post by criptastic »

I have myasthenia gravis.
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Revimmune (Cyclophosphamide, Cytoxan)”