Do you have MS (I hope you don't, I wish no one had it!!!) or does your spouse have it? The treatment is not that bad!!!! It sucks when you get the chemo, but its not that bad. They have you on so much anti-biotics, viral, fungal medication that you'll be protected from infection. Its not like they wipe out your immune system and then tell you to go home. No, they have you under a microscope!!!!! Also, where are you getting your facts from??? This treatment stops the constant attack on your nervous system... For how long, no one knows, I hope forever. If you or your spouse want to try other treatments, God bless you and I hope it cures you! But please stop your BS, this forum is for please who want facts and not the BS your posting. Alot of people who went through the treatment don't post because they're enjoying life, which they should. I got the treatment about a year and half ago, and thank God I feel great! For how long, I don't know?? But I'll tell you this, I'm going to enjoy every second. Good luck and God bless you .....happytown wrote:Are there any new updates from cytoxan and how you are doing if you have had this treatment? I find it hard to believe it is a good thing to wipe out your immune system. It is not necessary. With MS you have some protection, but wipe out what is left and you are wide open. I know it sounds like a wonderful fast miracle. But I just do not believe it for a second. I wish it was not approved in the states. Stem cells are not approved. CCVSI is not approved. But people that get both of these treatments have phenomenal results. I understand people get desperate, I get that. But this is so violent and drastic. Wiping your immune system out, and I dont mean to offend anyone, but it does not make sense. I am glad it has worked for some people. But, there are actually more patients it has not helped than those that it has. It is sad to have MS but a person can make it a triumph or a tragedy. And I know people are saying,"You don't understand.." I expect that but I don't think people with MS understand how scared a person gets when they love someone more than life, and they don't take that into account. Why not try other treatments first like stem cells of CCVSI, or both? Don't get me wrong, you can be against something but still be supportive of your significant other. It is hard but can be done. The anxiety you get from worrying about this kind of thing is indescribable. It causes me insomnia. I can go 3 days without sleep. Very stressful. It has aged me. I have no desire to eat. All I can think about is how I would give anything if they would not go through with this.
I am going to have children first (as some of these treatments can affect fertility) then I will try revimmune or stem cell therapy (whatever is more available to me)
I have had the CCSVI op and whilst I believe it solves one part of the puzzle that may be affecting some MSers I believe the immune system issues need to be addressed as well.