I started on Copax 20 days ago today. It's going well.
Last week, I got a call from Shared Solutions and they offer to sign me up for a discount program that pays my copay. "Great, send me the sign up form" I said.
Yesterday I received the form plus another form. In order to get the discount, I must enroll in Shared Solutions. By signing the enrollment paper, I agree to let them access and use my Personal Health Information (PHI) from my doctor and pharmacy for "insurance benefit investigation, produscts, supplies, programs and to conduct market analysis. I must also agree to "once this PHI is disclosed to TEVA, it is no longer protected under federal privacy laws and may be re-disclosed."
So for the amount of my monthly copay, I am being asked to give away my health privacy. What say you?
Enrollment in Shared Solutions and Discount Program
I guess it depends on two things:
1. what is you privacy like now? are you keeping you illness hidden - do you need or want to?
2. how much is your copay
If it were me, with a $30 copay and a largely hidden illness, I would not feel compelled.
And something about it gives me the creeps, just a little. Kind of like Robert Johnson selling his soul to the devil so he could learn to play guitar...
1. what is you privacy like now? are you keeping you illness hidden - do you need or want to?
2. how much is your copay
If it were me, with a $30 copay and a largely hidden illness, I would not feel compelled.
And something about it gives me the creeps, just a little. Kind of like Robert Johnson selling his soul to the devil so he could learn to play guitar...
Thank you Absentee! I thought it was creepy, too. I have a $25 copay (which I can afford), my disease is not obvious, and I want to keep my dx private for as long as I can. Until now, I thought SS was doing very well with their responsiveness but I am very turned off by this subtle attempt at manipulation.
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