Does anyone know who I can contact for assistance in this state????
Thanks for your tips!!
keep fighting for help on this. don't take "no" once, make them tell you several times. squeaky wheel...
the MSsociety has a tremendous amount of money, but they don't seem to focus enough in the right areas. i don't get it.
copaxone costs my insurance 14k for a 3 months supply...supposedly.
Hi Shaight,shaight wrote:i received a letter from shared solutions yesterday. i'm invited to the local marriott to hear a neuro speak and receive complimentary dinner. really!? so, they can't help those in need to receive meds, but they can pay some neuro, pay for a conference room, and pay for a bunch of meals. i feel like going just to sound off at how ridiculous the whole thing is. we are such a backwards society sometimes.
Here are some books which discuss the pharmaceutical industry which you may be interested in reading.
Books on the pharmaceutical industry:
While many good things have come out of the pharmaceutical industry, I feel that it's important to view it through the eye of a skeptic. These books will help to illustrate why.
Selling Sickness by Ray Moynihan and Alan Cassels.
link to review
Overdosed America: The Broken Promise of American Medicine by Dr. John Abramson.
link to author's website
The truth about the drug companies by Marcia Angell.
Dr. Marcia Angell is a senior lecturer at the Harvard Medical School and former editor of The New England Journal of Medicine. In this book she gives an inside look into the pharmaceutical business. link to review
One is due for release 2013. http://www.globes.co.il/serveen/globes/ ... 0&fid=1725
it's good to see that their patent is expiring, hopefully this will be available to those who want it.
we always have whole foods, supplements, exercise, and a positive attitude...it can do wonders.
Its unlikely your insurance will cover any of the cost of the drug, if obtained that way. But its also likely that the cost you'd pay is less than the portion of the US cost that you pay now.
Be aware of the fact that there exists a so-called "generic copaxone" which AFAIK is sold primarily in India. I'd tend to stick with the genuine Teva product.
I also recall that this is somewhat of a legal grey area, so make sure to check into that aspect too.
The OP says she's in MA. The bronze level plans shown on the MA Connector health insurance site seem to have 50% co-insurance for the highest listed Tier - Tier III drugs. I assume copaxone is one of those. So, $2500 / month seems plausible. But the annual out of pocket maximum for this insurance policy is $5000 for these plans and it says on the policy summary that this includes RX co-insurance. Which seems to mean that if you're paying $2500 a month for copaxone you would quickly qualify for a higher reimbursement rate when the out of pocket maximum is reached.
Looking further on the MA Connector web site, it appears that by obtaining the cheapest silver health plan the copay on a Tier III drug goes to $50 / month. You'd have to do the math, but I strongly suspect that it would be worth it to pay higher premiums to get this cost reduction in copaxone.
I hope I'm not mistaken and copaxone is really a Tier IV drug (some insurance policies have a 4 tiered RX drug system), so I specifically drilled into the Harvard Pilgrim Health Care website and looked at a list of drugs and tiers. On that site, copaxone is shown as Tier III.
I notice that the MA Connector site discusses that open enrollment is coming soon, so this may be a good time to re-evaluate your present coverage.
I also scanned the web for Canadian pharmacy prices on copaxone. The going rate for boxes of 28 syringes seems to be perhaps $1100 to $1200 per month. Not clear if that means Canadian or US dollars. Again, one would want to consider if this is "generic copaxone" and that you aren't going to get in legal trouble getting it this way.
Of course, if you can't pay it none of this matters.
I'm not trying to be critical, I'm a fellow copaxone user and trying to be helpful.
I think Shared Solutions limits their copay assistance to $500 a month. Has it changed?zipfed wrote:Shared Solutions offers a program that has a $35 per month copay. I sign up 2 months ago as my copay was up to $900 per month.
Also, on the sharedsolutions website, the terms and conditions say "This offer is void in Massachusetts or where otherwise prohibited by law, taxed, or restricted." which would be a showstopper for the OP.
Working on getting this figured out!
Thanks all on all the imput!!
@its2much - the lack of a copay assistance program in MA is more than likely due to some legalistic nuance of the Romney-Care health insurance system in place there, but I can't say that for sure. BTW, Shared Solutions does sponsor periodic talks by MS docs, nurses, etc. and if you live in the area where these events take place you should receive invites. I've been to several of these over the last 5 years and they have been quite informative. I don't see this on their website, so give them a call and ask for what's in your area.
- Similar Topics
- Last post
- 0 Replies
- 3258 Views
Last post by frodo
Thu May 16, 2019 8:09 am
Response to Copaxone can be predicted
Last post by frodo « Thu Nov 07, 2019 7:11 am
Posted in Chronic Cerebrospinal Venous Insufficiency (CCSVI)by frodo » Thu Nov 07, 2019 7:11 am » in Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- 0 Replies
- 1917 Views
Last post by frodo
Thu Nov 07, 2019 7:11 am