I've been on the eod plan for ten months now with no relapses. I went this route due to swollen lymph nodes.
The past few months I've increased to both weekend days and eod mid-week.
Sometimes this disease just makes me wonder that when the time is right it will just rear its ugly head just as it hides in the darkness no matter what we do to prevent it.
every other day
Re: every other day
Hi Shaight, I also took Copaxone EOD. I debated it for a long time and it might sound not so serious, but decided that every day was just too much of an disturbance into my life. Of course, if you believe Copax will make a huge difference then it's a different story. But for 30% reduction in relapses... I figured I would take my chances!
But I am now in a not so comfortable place, as just from last year, 2 new lesions. Adding up to 2 lesions the year before and the 2 initial ones, the doc is recommending I try some other med. Not enough Copaxone or just not effective... we'll never know.
And what he is proposing is hard to swallow... if I might say. He is proposing Tysabri, Gilenya of Tecfidera
! And I tought I wasn't really sick!! I kind of decided on Gilenya, but might just change my mind. So hard to feel like I am making the right decision.
Anyway, I wish you the best with that course of treatment. AS you probably know, there is a bit a serious reserarch showing that EOD is just as effective as ED.
But I am now in a not so comfortable place, as just from last year, 2 new lesions. Adding up to 2 lesions the year before and the 2 initial ones, the doc is recommending I try some other med. Not enough Copaxone or just not effective... we'll never know.
And what he is proposing is hard to swallow... if I might say. He is proposing Tysabri, Gilenya of Tecfidera
! And I tought I wasn't really sick!! I kind of decided on Gilenya, but might just change my mind. So hard to feel like I am making the right decision.Anyway, I wish you the best with that course of treatment. AS you probably know, there is a bit a serious reserarch showing that EOD is just as effective as ED.
Re: every other day
Sophie -
how do you feel clinically? I stopped getting mri's as my last one was depressing yet I did not feel any worse clinically. I think lesions will come an go and as long as you feel ok then that's all that matters.
At the point I begin to slide clinically is when I will pursue HSCT. There has been way too much sucess going that route to ignore. Via the FB page it is one sucess after another.
Best of luck to you moving forward also!
how do you feel clinically? I stopped getting mri's as my last one was depressing yet I did not feel any worse clinically. I think lesions will come an go and as long as you feel ok then that's all that matters.
At the point I begin to slide clinically is when I will pursue HSCT. There has been way too much sucess going that route to ignore. Via the FB page it is one sucess after another.
Best of luck to you moving forward also!
Re: every other day
Your plan sounds very wise and probably a lot better than mine I guess.
Clinically, I feel just fine except for residual numbness on the sole of my feet and neuropathic pain to match. Other than that, I sure don't feel like my brain is getting any sharper, but that probably has more to do with being an overworked mother, professional and volumteer worker
.
Than you for your response and best of luck to you too.
Clinically, I feel just fine except for residual numbness on the sole of my feet and neuropathic pain to match. Other than that, I sure don't feel like my brain is getting any sharper, but that probably has more to do with being an overworked mother, professional and volumteer worker
.Than you for your response and best of luck to you too.
Re: every other day
For what it's worth:my neurologist mentioned at my last appointment that it is his opinion that Copaxone is under dosed at its current 20ml. (daily)
Re: every other day
Ummm. Go figure!
Re: every other day
Instead of skipping every other day, I usually only skip 12 hours at a time. I usually do the shot in the evenings, but will skip a day and then do the shot the next morning. Then, after a day or so I go back to evenings, 36 hours later. This way there are no more than 36 hours between shots, but I still get a little bit of a break.
The other advantage to this is that some places are better to do in the morning. I am a side sleeper, so I always do hips in the morning so I don't have to sleep on a new Copaxone bump right away. Legs I prefer in the evening, so my keys aren't hitting the shot site all day.
Good luck!
Sam
The other advantage to this is that some places are better to do in the morning. I am a side sleeper, so I always do hips in the morning so I don't have to sleep on a new Copaxone bump right away. Legs I prefer in the evening, so my keys aren't hitting the shot site all day.
Good luck!
Sam
Re: every other day
I was very, very sick before starting Copaxone. After a year of a shot every day, I started skipping one shot a month, to have a little reprieve. I am hoping soon to start skipping one shot a week, but I am too afraid to skip every other day. My initial MS symptons were terrible, immensely painful, and I don't want to take any chances on having them come back. Maybe after I have been on Copaxone for several years, I will feel confident enough to try it.