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- Location: San Francisco Bay area
Shouldn't they, if daily works just as well and (eventually) costs less? Personally, I'm looking forward to that.milesap wrote:Wont be surprised that insurance companies in the US will force you to use the generic version.
RRMS dx 3/3/11; Copaxone since 12/1/11
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I've used 20mg copaxone for about 17 years now. I was switched for one month to the 40mg dose. I didn't like the added complication of remembering to take it only 3 times per week, I also noticed a larger lump formation at injection sites which lasted longer but eventually went away. I'm now back on the 20mg dose, the 40mg dose isn't on my drug provider's formulary so I was only initially approved for a 1-month supply.Loriyas wrote:For those who have already switched to the new dosing would you mind sharing any thoughts on it? I am specifically interested in hearing about side effects. I know this is a very new dosing change but would like to hear from anyone who has done it. Thank you.
Jeff tried the switch to 40mg. (after 7 uneventful years on 20mg) but ended up with nausea and sleep problems, which abated when he stopped injecting for several days, and came back when he gave it one more try. The dosage was the only thing that had changed in his routine. He's going to go back to 20mg. after seeing his neuro.
dx dual jugular vein stenosis (CCSVI) 4/09
When I saw the neuro at Vanderbilt on my yearly check up he offered Copaxone 40 ml. I declined and told him I wanted to stay on 20 ml.
I also see a local neuro with whom I just made an appointment for my yearly check up with her. Her nurse told me that she was switching all Copaxone patients to 40 ml. I again declined. The nurse seemed surprised. I will discuss with doctor when I see her.
Here are my thoughts: I do not want to change anything as I am currently doing quite well and don't want to "upset the apple cart" so to speak
I also wondered about this: 20 ml x 7 days = 140 ml per week
However 40 ml x 3 days = 120 ml per week
Going with that calculation a patient would be getting 20 ml less per week with the new dosing schedule.
I have always been told "don't skip a day". However, I think that may not be as big an issue as Teva has always made it out to be.
I have often skipped a day, perhaps one out of 10 days.
Jborkowskidesigns wrote:I switched to the 40 mg about 5 months ago and am switching back to 20mg which I had been on for almost 2 years without any issues. The biggest issue was surely the injection pain and site reaction. I didn't have these issues with the 20mg, once I got used to taking them. I was to the point where my injections barely hurt or bubbled up at all. I also notice that I feel worse the past few months. My MS doesn't really affect me, but the few issues I have, have definitely been worse.
Thank you! Very good to know!