Ella's adventures in Katowice

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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ClaireParry
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Post by ClaireParry » Sun Feb 14, 2010 4:56 am

Good luck Michelle and Ella!

Look forward to hearing your updates.

Claire

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wiggy
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Post by wiggy » Sun Feb 14, 2010 5:57 pm

Best of luck Michele and Ella,
I hope everything goes great - very excited for Ella!
She will be in my thoughts and prayers.
I hope this is it - the answer for her!

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Dovechick
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off

Post by Dovechick » Sun Feb 14, 2010 9:40 pm

Thanks, Claire and Wiggy... Off tomorrow early, early... Hoping for a snowless journey to the airport. Will try to keep in touch with you all through Olive until I get home on the 23rd.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

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colapesce
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Post by colapesce » Mon Feb 15, 2010 8:53 am

good luck! xxx

mormiles
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Post by mormiles » Mon Feb 15, 2010 8:59 am

Dear Friend,
Thinking of Ella, you, and your guys. I'll keep watching and praying, even harder now. Peace be with you and yours.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."

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Ruthless67
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Post by Ruthless67 » Mon Feb 15, 2010 10:35 am

Dovechick,

Hope the trip is only full of wonderful adventures for all and positive changes for Ella. All my best to the three of you.

Lora

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Mutley
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Post by Mutley » Mon Feb 15, 2010 11:24 am

Hi Michelle and Ella,

Wishing you lots of luck, health and happiness with your trip and it's outcomes. Take care!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

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crocky
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Post by crocky » Tue Feb 16, 2010 6:40 am

Hi Michelle and Ella
Just joining all the well wishers for your trip - really looking forward to hearing about how you get on - everything crossed for you both!

LR1234
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Post by LR1234 » Tue Feb 16, 2010 6:43 am

Hey Ella and Michelle, thinking of you both x

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pgm1
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Post by pgm1 » Tue Feb 16, 2010 11:20 am

Hi Michelle and Ella

Wishing you all the best

Pam :)

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Post by Cece » Tue Feb 16, 2010 12:37 pm

Michelle & Ella - wishing you all the best - can't wait for updates!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

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Dovechick
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We are here

Post by Dovechick » Wed Feb 17, 2010 12:47 am

Hi friends and fellow adverturers
We have arrived, all in one piece, did not get lost and in spite of snow in Poland arrived at our hotel in good time... Hotel Zaleze v nice but in a really seedy area of Katowice, and not really suitable for wheelchair, lots of different levels. The staff are excellent, the food in the restaurant is cheap and tasty, each room has en suite, newly refurbished and clean. Gives me the impression it is a commercial travellers hotel.

We are off to get the MRV this morning. We have hired a car as we did not have the latest information out of Dr Simka's establishment which said they provided transport between sites. Pleased we have it though, as there are three of us and the wheelchair... and we might go to Krakow after the procedure. We might as well make the most of our stay.

Will keep you updated as the 'hoiday' progresses...
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

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Bubbles
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Post by Bubbles » Wed Feb 17, 2010 11:17 am

Thoughts are with you all. It is so exciting!

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ClaireParry
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Post by ClaireParry » Wed Feb 17, 2010 1:26 pm

Can't wait to hear your news!!!!

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costumenastional
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Post by costumenastional » Thu Feb 18, 2010 3:37 am

I wish you my best from the depths of my heart.

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