Had a CCSVI scan done yesterday in Ontario...
- savouryourlife
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- Joined: Sun Jan 17, 2010 3:00 pm
- Location: Vaughan, ON
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I had a dream that I met with a Vascular Surgeon and he said of course we will do that... like it was a regular routine thing...
Do dreams come true?
Do dreams come true?
Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>
Hi annad,annad wrote:@youbetcha
I read things like that and I get so upset/angry. . . if there is something wrong with whatever part of your body, to me, it's unethical to be turned down.
I don't understand how our doctors are thinking. It's so frustrating!
don't give up
a
It's very frustrating....that's why I'm so excited for both you and me and the chance to go to Bulgaria for treatment!
I will still keep pushing my GP to find a vascular doctor who WILL help, but as you know, time is of the essence for us so Bulgaria is a nice option to have. Thanks for your words of encouragement.
- savouryourlife
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- Joined: Sun Jan 17, 2010 3:00 pm
- Location: Vaughan, ON
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- broomdancer
- Family Member
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- Joined: Fri Dec 18, 2009 3:00 pm
i asked me GP to make an appointment with a vascular surgeon a few weeks ago. his secretary called me today to advise me that he spoke to a couple of neuros and they said there is no proff and she then compared it to a cure for cancer that came to the surface a few years back in mexico and it turned out to be nothing. i responded that it actually has been proven in 4 countries. anyways i am pissed. i know more about CCSVI than most of the neuros.
STAY REAL MY FRIENDS
dx 1989, spms
dx 1989, spms
An update...went back to Dixie xray in Woodbridge, they redid the scan. I had Mara this time. She was very nice and pleasant. She said they had to redo it because the first scan wasn't done to protocol, only Mara is trained. she said if the radiaologist sees anything they will refer me to a mrv. she didn't say anything else and wouldn't show me anything she said she has tested 10 people so far and went to the symposism with Zamboni...she said i will know in 5 days...
They found a problem with my right IJV but it seems I can go no further with this for now. Hopefully you'll have better luck than I.mapame wrote:An update...went back to Dixie xray in Woodbridge, they redid the scan. I had Mara this time. She was very nice and pleasant. She said they had to redo it because the first scan wasn't done to protocol, only Mara is trained. she said if the radiaologist sees anything they will refer me to a mrv. she didn't say anything else and wouldn't show me anything she said she has tested 10 people so far and went to the symposism with Zamboni...she said i will know in 5 days...
Take care.
- savouryourlife
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- Location: Vaughan, ON
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I am scheduled to do the procedure in Frankfurt on Monday. Well the mrv on Monday and the procedure on Tuesday.
Anyone have any idea where to stzy in frankfurt?
Anyone have any idea where to stzy in frankfurt?
Feb 18, 2010 Eco-Doppler Vaughan, MRV Frankfurt, left INT Jugular valve problem x2, RRMS since 1996, Angioplasty in Frankfurt March 10/10<div>Inclined bed therapy - 09/09/10</div>
I'm so happy for you! Please keep us posted and if you get a chance maybe you can add yourself to the "sticky - tracking thread" so we can follow your updates. Good luck and all the best to you!savouryourlife wrote:I am scheduled to do the procedure in Frankfurt on Monday. Well the mrv on Monday and the procedure on Tuesday.
Anyone have any idea where to stzy in frankfurt?
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