After a few delays we arrived here in the early hours, off for the diagnostic procedure (and hopefully to bump into a couple of TIMS people) this evening. Fingers crossed I have something to report back with later
In Katowice, Poland now :D
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lilaclomax
- Family Member
- Posts: 26
- Joined: Tue Dec 29, 2009 3:00 pm
In Katowice, Poland now :D
Good morning,
After a few delays we arrived here in the early hours, off for the diagnostic procedure (and hopefully to bump into a couple of TIMS people) this evening. Fingers crossed I have something to report back with later
After a few delays we arrived here in the early hours, off for the diagnostic procedure (and hopefully to bump into a couple of TIMS people) this evening. Fingers crossed I have something to report back with later
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sunlounger
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ozarkcanoer
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- Location: St. Louis, Missouri
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mags4short
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- Location: UK
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Mags xx
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lilaclomax
- Family Member
- Posts: 26
- Joined: Tue Dec 29, 2009 3:00 pm
Thank you for all your messages of support, I have a few people who visit TIMS over the last couple of days and the atmosphere is so positive and people very supportive.
The scans, eye test are all organised well and the actual procedure over surprising quickly and without any major worries.
I will update more on my return home but for now all is good
Here is my history...
CCSVI TRACKING 03/03/2010
MS HISTORY
Name: Lilaclomax
Male/Female: F
Age: 32
Date & type of neurological diagnosis: RRMS - since 2006
Lesion locations (most affected side, if known), number: Multiple lesions in cerebral hemispheres, lesion in right temporal fossa (potentially unrelated). Changes in L. 1/2 and 3/4 discs.
MS treatments: Avonex
MS symptoms before stenosis intervention: Optic Neuritis (loss of sight in left eye), L'hermittes (electric shocks down my back), Paresthesias (loss of sensation in multiple locations), Myelopathic exacerbation (weakness and inability to walk at times), fatigue, Trigeminal Neuralgia (labour pain in my right hand side of my jaw!), Diplopia (seeing double)... typing these out makes me sounds like a walking medical directory.
Number of relapses before intervention: 8
EDSS before CCSVI intervention (physician-assessed): 3.0
FSS before CCSVI intervention: 5.5
MSIS before CCSVI intervention: 71
Are you using Inclined Bed Therapy I.B.T? Y
Have you had testing (and possibly procedure) for blockage yet: Yes, both testing and Liberation Treatment
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure: 17th March, Katwice, Poland
Type of venographic study: MRV, Doppler
Diagnosis: Stenosis right and left jugular vein
Type of procedure: Percutaneous nalloon angioplasty right and left jugular vein (Cordis 14 x 40mm)
Procedure/drug related symptoms: Procedure took around 45 mins and was painless, Fraxiparine prescribed for 7 days. No pain after procedure, some aching in neck where ballooning took place.
Will update next week on my return to the UK - to date definate warmth in feet and legs.
Number of relapses since first CCSVI intervention:
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates):
EDSS as of this update (self-assessed or physician-assessed?)
FSS as of this update:
MSIS as of this update:
The scans, eye test are all organised well and the actual procedure over surprising quickly and without any major worries.
I will update more on my return home but for now all is good
Here is my history...
CCSVI TRACKING 03/03/2010
MS HISTORY
Name: Lilaclomax
Male/Female: F
Age: 32
Date & type of neurological diagnosis: RRMS - since 2006
Lesion locations (most affected side, if known), number: Multiple lesions in cerebral hemispheres, lesion in right temporal fossa (potentially unrelated). Changes in L. 1/2 and 3/4 discs.
MS treatments: Avonex
MS symptoms before stenosis intervention: Optic Neuritis (loss of sight in left eye), L'hermittes (electric shocks down my back), Paresthesias (loss of sensation in multiple locations), Myelopathic exacerbation (weakness and inability to walk at times), fatigue, Trigeminal Neuralgia (labour pain in my right hand side of my jaw!), Diplopia (seeing double)... typing these out makes me sounds like a walking medical directory.
Number of relapses before intervention: 8
EDSS before CCSVI intervention (physician-assessed): 3.0
FSS before CCSVI intervention: 5.5
MSIS before CCSVI intervention: 71
Are you using Inclined Bed Therapy I.B.T? Y
Have you had testing (and possibly procedure) for blockage yet: Yes, both testing and Liberation Treatment
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure: 17th March, Katwice, Poland
Type of venographic study: MRV, Doppler
Diagnosis: Stenosis right and left jugular vein
Type of procedure: Percutaneous nalloon angioplasty right and left jugular vein (Cordis 14 x 40mm)
Procedure/drug related symptoms: Procedure took around 45 mins and was painless, Fraxiparine prescribed for 7 days. No pain after procedure, some aching in neck where ballooning took place.
Will update next week on my return to the UK - to date definate warmth in feet and legs.
Number of relapses since first CCSVI intervention:
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates):
EDSS as of this update (self-assessed or physician-assessed?)
FSS as of this update:
MSIS as of this update:
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tipsyturtle
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- Location: Canada
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ComfortablyNumb
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ClaireParry
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- Location: Worcestershire, U.K
