Updated my blog
- Loobie
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Updated my blog
Well I can't find the original "I updated my blog' thread, so here's another one. Updated.
- ozarkcanoer
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updated blog
yes, i read it yesterday. you are awesome. aliyah
- Ruthless67
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- cheerleader
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Lew..
Jeff and I had a good talk about your "normal" day while walking the dog yesterday. He sends you his heartfelt congratulations.
I think this is the most wonderful revelation....that regaining some sense of normalcy (whether taking your daughter to soccer or putting on your socks standing up) --this is the gift of returned venous function. It may not cure all the damage, but there is healing going on.
Jeff experiences this every day. His motor functions were never as compromised as yours...but he was unable to do anything without taking a nap every 3 hours. He's now cleaning the garage, humming along (badly) to some music on the headset. We're having a beautiful Palm Sunday, and the naps are long gone. We stayed up past midnight last night, watching movies, laughing. He spends time with our son, is able to work, see friends, participate in life. Yes, that's what "normal" people do everyday. But maybe they don't appreciate it as much.
Jeff's legs still hurt sometimes, and he can still get worn down....but it's nothing like before. Annie Lamott has a great quote- "Normal is just a setting on the washing machine." She's right. None of us are really normal...but being grateful for the simple blessings is the best. And it made us so happy to read about you enjoying these simple gifts.
love,
J and J
Jeff and I had a good talk about your "normal" day while walking the dog yesterday. He sends you his heartfelt congratulations.
I think this is the most wonderful revelation....that regaining some sense of normalcy (whether taking your daughter to soccer or putting on your socks standing up) --this is the gift of returned venous function. It may not cure all the damage, but there is healing going on.
Jeff experiences this every day. His motor functions were never as compromised as yours...but he was unable to do anything without taking a nap every 3 hours. He's now cleaning the garage, humming along (badly) to some music on the headset. We're having a beautiful Palm Sunday, and the naps are long gone. We stayed up past midnight last night, watching movies, laughing. He spends time with our son, is able to work, see friends, participate in life. Yes, that's what "normal" people do everyday. But maybe they don't appreciate it as much.
Jeff's legs still hurt sometimes, and he can still get worn down....but it's nothing like before. Annie Lamott has a great quote- "Normal is just a setting on the washing machine." She's right. None of us are really normal...but being grateful for the simple blessings is the best. And it made us so happy to read about you enjoying these simple gifts.
love,
J and J
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Lou,
I love hearing these stories from you. We all need to stop and enjoy the simple things that make us feel "normal" and hope that others do not take their health for granted.
Joan,
I love that quote.
Cat
I love hearing these stories from you. We all need to stop and enjoy the simple things that make us feel "normal" and hope that others do not take their health for granted.
Joan,
I love that quote.
Cat
Holly - Shine On You Crazy Diamond - Pink Floyd
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
- prairiegirl
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Lew - Wonderful blog entry. Thanks for sharing that with us. I hope that spring continues to bring you wonderful things! I think it will...
Joan - Bless your heart... I love the "Normal is just a setting on the washing machine." quote!
All of you guys brighten my days.
Beth
Joan - Bless your heart... I love the "Normal is just a setting on the washing machine." quote!
All of you guys brighten my days.
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back. Placebo schmebo.
- Salvatore24
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