Treatment starts in Kuwait

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Ruthless67
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Post by Ruthless67 » Fri Apr 09, 2010 8:41 pm

So where's the coverage in the US of Kuwait's momentus decision? Has anyone in the US seen anything on television like on W5 in Canada? How about the newspaper? Radio?.............

Lora

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mshusband
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Post by mshusband » Sat Apr 10, 2010 5:13 am

I don't know why you guys EXPECT news to get out on things like this ... MS affects (about) 1 in 1000 people in the US. That's not exactly a big draw of the population - even if you include their immediate family ... it's still only like 1 in 250 - not exactly a big number.

The only way this is going to get out is for you guys to push it ... send links to local news papers, write op-eds, etc.

Before my wife was diagnosed, I knew 1 person with MS, and hadn't seen her since college. I couldn't have told you anything about it either ... my guess is for about 200 of those 250 people I mention not directly impacted by MS ... that's the case. So why would they read about CCSVI?

Come on ... STAND UP FOR YOUR OWN CAUSE ... PUSH IT FORWARD. NOTHING WORTH WHILE EVER HAPPENED WITHOUT A REVOLUTION.

"Never underestimate the power of a small group of committed people to change the world. In fact, it is the only thing that ever has." (Margaret Mead)

This is your chance ... if you don't take it, who is going to? If you sit back and do nothing, are you expecting someone else to? What if they don't?

Write doctors, write newspapers, spread the word ... come on ...

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GiCi
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Post by GiCi » Sat Apr 10, 2010 7:35 am

mshusband,
I dare suggest that you document yourself a bit more before expressing out of place comments.
GiCi

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mshusband
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Post by mshusband » Sat Apr 10, 2010 9:23 am

How is advising to stand up and write to people if they don't like the lack of coverage of CCSVI an out of place comment?

How is wanting to push this cause forward an out of place comment?

How is stating that I knew nothing of MS before a loved ones diagnosis an out of place comment? - and saying that the general population would fall in the same boat an out of place comment?

But yeah ... you're right. I'm out of place.

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Fatma
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Post by Fatma » Sat Apr 10, 2010 11:09 pm

Hi,

this is Fatma Al Shammiri from Kuwait (MS patient)

till now we got no thing!! everything will be clear this week,

i will update you.

thanks,
Fatma.

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whyRwehere
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Post by whyRwehere » Sun Apr 11, 2010 12:40 am

Thanks Fatma,
I am looking for news from the source, because numbers and intentions change with whoever is reporting. You are very lucky to be where you are now. Please keep us updated on the news from Kuwait.
WhyRwehere

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Post by Rokkit » Sun Apr 11, 2010 6:05 pm

Yes Fatma, welcome!

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ozarkcanoer
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Post by ozarkcanoer » Sun Apr 11, 2010 6:15 pm

Fatma,

I'm so glad you came here to TIMS. It is nice to have someone from Kuwait with MS to let us know what is happening in your country with CCSVI. I am looking forward to hearing more !!

ozarkcanoer

Rokkit
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Post by Rokkit » Mon Apr 12, 2010 8:43 am

Fatma, do you have any information on how many MS patients are in Kuwait? There's been some confusion here.

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