Plodding to Poland with Johnson...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
Family Elder
Posts: 173
Joined: Thu Dec 31, 2009 3:00 pm
Location: Putnam, NY

Post by elyse_peace » Sat Jun 12, 2010 9:36 pm

:) :) :) Congratulations! I am very happy for you, along with all of your other sisters and brothers here. I've read some riveting stories, but these forums are a compulsion, and cannot be put aside. Thank you for posting updates. It is such a hope builder for those of us waiting for our turns.
Viva Liberation! :lol:

User avatar
Family Elder
Posts: 269
Joined: Sat Nov 28, 2009 3:00 pm
Location: Victoria, BC Canada

Post by happy_canuck » Sat Jun 12, 2010 10:10 pm

Tickled pink with your good news! Don't leave us waiting too long for an update!!


National CCSVI Society: <strong><br /><a href="">http://tiny ... 44znbct</a> ~Website<br /><a href="">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />

User avatar
Family Member
Posts: 39
Joined: Mon Nov 23, 2009 3:00 pm
Location: Brantford, Ontario

Post by Shueywho » Sun Jun 13, 2010 7:30 am

Johnson, not Johnson. Thank you for the update, we have all been anxious. So now we know, you are busy and experiencing new things! I will be patient till you get back home to Canada. Thank you for the update and have fun, but also take care of yourself.

All good thoughts being sent your way!

User avatar
Family Elder
Posts: 865
Joined: Tue Nov 24, 2009 3:00 pm
Location: India

Post by sbr487 » Mon Jun 14, 2010 12:36 am

Johnson wrote:Howdy folks.

No news is good news. I've been too busy running around (100 metres with no problem) to post or read. I could have run 200, 300, 500 metres!

I'm in Krakow, on my way home tommorrow, will post in detail then (I've got a time-limited connection.

It works. I feel 10x better than last week. I will post in greater detail on Monday. Until then, thanks. I have not had time to read here, but see a lolt of comments,

Polka-ing in Poland,

Hey, Captain, did you say 10X improvement?
That's a bloody hell of an improvement ...
Good luck, be back soon ...

User avatar
Family Elder
Posts: 849
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada

Post by PCakes » Mon Jun 14, 2010 6:06 am

oh man oh man oh man!!!! nice to finally be able to exhale :) can't wait for the deets!!!! congratulations!!!!!!!! "look Spot see 'not johnson' not not run!!!!" :)

User avatar
Family Elder
Posts: 207
Joined: Sat Nov 21, 2009 3:00 pm
Location: Ontario, Canada

Post by annad » Mon Jun 14, 2010 6:11 am

I haven't been on TIMS lately but I've been thinking of you! Looks like you're a success story! Yay! lol I'm giddy for you!
I hope you are home resting and getting caught up on life missed. Can't wait to see what you'll be painting now!
best wishes!

Family Elder
Posts: 366
Joined: Mon Dec 21, 2009 3:00 pm
Location: Houston, TX

Post by AlmostClever » Mon Jun 14, 2010 12:08 pm

Excellent Johnson!!!!! So happy for you!!!

Now where'd you run off to??? 8O
If you can't explain it simply, you don't understand it well enough. - Al Einstein

User avatar
Family Member
Posts: 51
Joined: Fri Jun 04, 2010 2:00 pm
Location: Newfoundland, Canada

Post by Guider » Mon Jun 14, 2010 8:12 pm

Well that's good news for those that have been waiting to hear your results. So happy for you. Waiting to hear more details.

Go ahead. Enjoy life! :D :D

Live to the fullest; Love passionately; Laugh contagiously!

User avatar
Family Elder
Posts: 979
Joined: Tue Dec 01, 2009 3:00 pm
Location: Ucluluet, BC

placebo, procedure, people, Poland, peripatism

Post by Johnson » Thu Jun 17, 2010 2:35 pm

I have not posted yet because I am sorting it all out still, and I came home to foot-high grass, computer melt-downs, plumbing problems, and good old jet-lag. Time and tiredness (as opposed to fatigue) seem to be an issue all of a sudden, and I can't keep my eyes open long enough to get into it properly.

The procedure was painless, and I had no problems afterwards, just a small bruise about the size of a dime where they went in. I had relief immediately, but it waned somewhat over the next few days. On the third day I thought that things might be closing up again, and I feel that more so now. I still feel at least 5x better than before I left, but am just feeling it out before making any broad statements either way. I have zero regret, and it did definitely make a huge difference for me. If my veins close up again, there is another procedure in my future. I might need a stent, but I am happy not to have one at this time. If there is a bio-absorbable stent available soon, I will go for that.

This is just a "prequel" to a more detailed account, because I wanted to give back something. You have all been so wonderful in so many ways, and I feel very glad to be a part of this community. I feel that it is a bit premature to truly evaluate the effect of the treatment, so, more later.

My name is not really Johnson. MSed up since 1993

User avatar
Family Elder
Posts: 758
Joined: Sun Nov 29, 2009 3:00 pm
Location: NYC

Post by shye » Thu Jun 17, 2010 2:52 pm

SO glad to hear from you--
sending all best wishes that things even out somewhat...

Family Elder
Posts: 116
Joined: Tue Nov 24, 2009 3:00 pm
Location: New Brunswick, Canada

Post by 81Charger » Thu Jun 17, 2010 3:25 pm

Glad to hear that everything went well, Wishing you nothing but the best!


User avatar
Family Elder
Posts: 121
Joined: Mon Dec 07, 2009 3:00 pm
Location: Montreal

Post by babiezuique » Thu Jun 17, 2010 3:35 pm

Hi Jonhson! I can understand the precaution you take... We dont want to be presumtuous... before the treatment...and then after the treatment.

It is good to you to take time to feel everything in your body, in your mind. I saw a video today of a woman who received the liberation in egypt. She described her feeling post-liberation... but she detailed a lot about tha we she felt before in her mind. She describe very well the famous foggy brain every body is talking before... She his very extrovert and stylish... It is the fist time I see someone talking about how i feel in my mind because of ms... not only about felling but the meta-feeling...

on youtube : I am liberated egyptian style

It is a must see;)

Take care Not John

User avatar
Family Elder
Posts: 1413
Joined: Thu Jul 09, 2009 2:00 pm

Post by HappyPoet » Thu Jun 17, 2010 6:18 pm

Oh Johnson, we're so happy you're home safe, and don't worry about that grass -- think of it this way... the taller the grass becomes, the more oxygen for the planet :)

Thank you for checking in with us. Now it's time for you to take time for you, so don't worry about us anymore. You know we're here with our love and support anytime you might need us.

Try to rest. Try to relax. Try to recuperate.

Our warmest regards,
Bronek & Pam

User avatar
Family Elder
Posts: 237
Joined: Sun Mar 28, 2010 2:00 pm

Post by Drury » Thu Jun 17, 2010 6:22 pm


Take it easy and take care of yourself. Love your positive outlook and really hope that you continue to improve.

All the best,

User avatar
Family Elder
Posts: 164
Joined: Fri Jan 01, 2010 3:00 pm
Location: US

Post by JoyIsMyStrength » Thu Jun 17, 2010 6:31 pm

Welcome home. Now put that lawn mower down, call the plumber, and go relax. Put little cucumber slices on your eyes and drink frosty drinks and put a "do not disturb" sign on the door. You are recuperating from surgery. Don't make me come over there. Or... make me, it would be nice to meet you!

Be at peace. We are all rooting for you and wish you the best.


Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”