A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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jackiejay
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by jackiejay » Sat Jun 19, 2010 6:10 pm
trying to decipher the medical paper.."Venous Collateral Circulation"...is this also a symptom of CCSVI perhaps....sinus congestion every morning...and one step further back...frequent ear infections as a child?.....sorry if this has been posted earlier but can't seem to find an answer....thanks.
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sumsum
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by sumsum » Sat Jun 19, 2010 10:56 pm
Could you please give the link to this paper? It sounds interesting. At least, as a child I had many, many ear infections...
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lumpc1
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by lumpc1 » Sun Jun 20, 2010 7:57 am
many ear infections until recently.
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dlb
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by dlb » Sun Jun 20, 2010 8:05 am
Horrible ear infections as a child. Lots of sinus infections and allergies as an adult and I spent last summer again (from May until August) battling an ear infection that would not leave. This year I have had no problems with sinus or ear infections or allergies. I have been doing IBT and have been wondering if that is what has been helping me???
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paulmur
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by paulmur » Sun Jun 20, 2010 9:29 am
I too had a series of bad ear infections when I was a child. Back then the only treatment was sulphur. I hadn't yet learned to swallow pills. I still remember the taste of oatmeal with little bits of sulphur in it.
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esta
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by esta » Sun Jun 20, 2010 10:47 am
same thing, lots of ear infections as a child. my head was only clear if i took an excedrin with caffine. when i was liberated, my head was clear and wonderful.
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Cece
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by Cece » Sun Jun 20, 2010 12:03 pm
I am always getting sinus and ear infections on my left side only.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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jackiejay
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by jackiejay » Sun Jun 20, 2010 4:54 pm
my mistake.......sorry about that....confusing when they use the same term for different areas of the head.
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Drury
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by Drury » Sun Jun 20, 2010 6:59 pm
jackiejay,
You might have misunderstood the terminology but my daughter also suffered from constant ear problems as a child and chest infections. She had an excruciating ear problem last year and still suffers with sinus, chest and allergy problems. Could there be a connection with MS at such an early age?
Drury
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naychergirl
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by naychergirl » Sat Jun 26, 2010 6:07 am
I was diagnosed with MS in 2007, and I too have allergies. Had them since I was a kid. I had food allergies when I was a baby. Then I outgrew them and now have environmental allergies. And I've had 3 sinus surgeries to remove nasal polyps. Now you got me thinking!
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rssugg
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by rssugg » Sun Jun 27, 2010 2:13 pm
i have always had ear and sinus problems - and it has been constant since MS. I havr a huge problem with atmospheric pressure and brain fog - an odd correlation. On a clear day - or when i go to the coast to stay for a few days, my sinuses problems and brain fog symptoms go away completely - i dont understand it.
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naychergirl
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by naychergirl » Fri Jul 02, 2010 9:57 am
Have you seen an ENT yet? That's what I had to do. I think where I used to work was the cause of alot of my nasal issues. I live in South Florida. And after hurricane Wilma, the walls were filled with mold, unbeknonst to me until they started taking off the wall paper. Since my sinus surgery, I've had only one infection. And boy, do I know what you are going through. I had all those symptoms too. I got rid of most of them, except for the damn MS.
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rssugg
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by rssugg » Fri Jul 02, 2010 10:00 am
I did see an ENT but he said that a had a slightly deviated septum and no other structural issues. I have vowed to return!
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Hearing problems
Replies: 1
First post
Hello, has anyone experienced difficulties with central auditory processing?
Last post
Hello, has anyone experienced difficulties with central auditory processing?
Although I'm not familiar with it, central auditory processing has...
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- 494 Views
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Last post by NHE
Wed Aug 14, 2019 10:23 pm
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vascular problems in MS retina
Angiography with optical coherence tomography as a biomarker in multiple sclerosis
Conclusions
MS produces a decrease in retinal vascularization...
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- 168 Views
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Last post by frodo
Tue Dec 22, 2020 12:34 pm
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vascular problems in the MS eyes
Replies: 4
First post
Identifying Microvascular Differences in Multiple Sclerosis via Optical Coherence Tomography Angiography (OCT-A)
Conclusions :
Curated OCT-A...
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Interesting study! 5 out of 7 subjects with MS had this, that's a high percentage (71.4 percent). Even though a very small sample size. Hopefully...
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Last post by frodo
Fri Jun 19, 2020 1:17 am
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Last post by frodo
Thu Nov 07, 2019 5:44 am
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CCSVI
Replies: 2
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I was diagnosed with MS 30 years ago. It is now getting progessivly worst.
CCSVI was performed 0n 7/11/18 at Dayton Interventional Radiology.
I was...
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I have made a few copies of this DVD and would like mailing address of where I could forward these to whomever can make sense of them.
Regards,...
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- 1065 Views
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Last post by Bobjones
Tue Feb 25, 2020 8:47 pm
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CCSVI ten years later
Chronic cerebrospinal venous insufficiency, ten years after. New headlights on a venous disease that enriched the vascular world
Pdf available...
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- 399 Views
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Last post by frodo
Thu Jun 04, 2020 12:39 am
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Last post by frodo
Tue Mar 17, 2020 2:22 pm
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Bosentan and chemical CCSVI
Replies: 1
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Perfusion in MS is important independently from the CCSVI theory. This paper speaks about using a drug (Bosentan) for improving brain perfusion....
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Thanks Frodo, Another good clue to MS.
A long time ago I had an MRI that said my brain had reduced oxygen. I was amazed the doctor didn't seem to...
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Last post by ThisIsMA
Tue Jun 16, 2020 9:25 am
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Vegas CCSVI healthcare providers
Hello all!
I was hoping one of you might know of a healthcare provider in or close to Las Vegas, NV who can perform CCSVI treatment?
Any help is...
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- 237 Views
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Last post by sin319
Fri Jun 05, 2020 8:59 am