CCSVI TRACKING [Please use date format MM/DD/YYYY]
MS HISTORY
Name (if want to give other than TIMS login name):KDGO
Male/Female: female
Age: 54
Date(s) & type of neurological diagnosis :
2004 initial diagnosis..graduated to SPMS symptoms '09
Lesion locations (most affected side, if known), number:
? # in head will advise.
MS treatments:
avonex 6 yrs till this last June, steroid treatmens '05,'06
MS symptoms before stenosis intervention:
pins&needles weak legs causing mobility issues. Walk with
cane. Unbalance, tinnitus
Number of relapses before intervention (if applicable):
initial attack in '04 was the most I have experienced. Hopitalized
with left ear vestibular neuritis last July '09 with severe vertigo
left me with tinnitus.
EDSS before CCSVI intervention (physician-assessed): 4.5
FSS before CCSVI intervention:
[To calculate FSS rating, click the following link:
http://www.mult-sclerosis.org/fatigueseverityscale.html ]
MSIS before CCSVI intervention:
[To calculate MSIS rating , click the following link:
http://healingpowernow.com/msis.htm ]
Are you using Inclined Bed Therapy I.B.T? (Y/N) N
Have you had testing (and possibly procedure) for blockage yet: (Y/N) Y
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure: 08/05/10 USA
Type of venographic study: MRV w IVUS and procedure all one sitting
Type of procedure: left entry presented with May-Thurners but no symptoms-
dr advised he doens't treat pictures, RIJV fine, LIJV upper
and lower collapsed (w extra valve?) ballooned up to 18
left then went to twisted azygous. Balloned there then
went back over to check out left again, ballooned again.
Procedure/drug related symptoms: 325m aspirin bayer
Number of relapses since first CCSVI intervention: 0
Impact on your MS symptoms in words : For about one week after procedure,
my mobility improved a bit but has now gone back to
where it was. The issue most likely is my LIJV which did not
have best flow after ballooning but I was not prepared for
stents. Presently researching more on M-T. Will follow up.
EDSS as of this update (self-assessed or physician-assessed?)
FSS as of this update:
MSIS as of this update:[/quote]