ITALY Approves CCSVI Treatment?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
mangio
Family Elder
Posts: 288
Joined: Thu Dec 31, 2009 3:00 pm

ITALY Approves CCSVI Treatment?

Post by mangio »

Breaking news! Is it true?
LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 »

I have not heard this but my gosh I hope its true!!!! I know where I will be going next week:)
User avatar
ikulo
Family Elder
Posts: 444
Joined: Tue Aug 04, 2009 2:00 pm
Location: colorado

Post by ikulo »

Someone on the facebook group posted a link to this: http://www.redattoresociale.it/Dettagli ... ews=312625

which translates to: CCSVI is recognized as a disease. No elaboration on what that really means, though.
User avatar
mangio
Family Elder
Posts: 288
Joined: Thu Dec 31, 2009 3:00 pm

Post by mangio »

Alba has just posted again saying it's true. Pino C made it happen. Anyone
can you help?
User avatar
TMrox
Family Elder
Posts: 263
Joined: Tue Jun 01, 2010 2:00 pm
Contact:

Post by TMrox »

Google Italian to English translation

The cerebrospinal chronic venous insufficiency, "is recognized as a disease"

The Association CCSVI in multiple sclerosis - Onlus "asks guidelines for diagnosis and therapy. Tobacco: "The State shall take responsibility to implement what the scientific community in the world has crossed"

ROME - The cerebrospinal chronic venous insufficiency (CCSVI) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis. This is called the association "CCSVI in multiple sclerosis - Onlus" the Ministry of Health in a just concluded meeting between representatives of the association and Albert Zangrilli, president of the second section to the Board of Health in the same ministry. "While science makes its way to validate the correlation between MS and CCSVI - Tobacco said - as, we ask that, since the Ccsvi has already been validated by the scientific world as it has been validated his therapy, the state will face load to implement what the scientific community worldwide has already validated and to draw up guidelines with respect to this disease occur until the science correlation.

Found in several trials around the world in people with multiple sclerosis, CCSVI is a disease that affects the cervical and thoracic veins that because dell'inspessimento anomalous venous walls, remove inefficient blood from the central nervous system. The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year. "Today's meeting went very well - added Tobacco - The Ministry has taken note of our request." The timing, however, there are still some news. "On this we had no indications, but the ministry made us know that it will mobilize more quickly." (Ga)

http://www.redattoresociale.it/Dettagli ... ews=312625
Last edited by TMrox on Fri Jun 25, 2010 2:39 pm, edited 1 time in total.
User avatar
L
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom
Contact:

Post by L »

Great news. Doctors are obliged to treat disease..
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

According to Cheer on the Facebook site, "so, here's the scoop--Pino Cucci, an MS patient, spoke today before a medical board in Rome, and it appears the ministry of health is promising to move quickly..."
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
User avatar
muse
Family Elder
Posts: 180
Joined: Wed Aug 05, 2009 2:00 pm
Location: New Zealand
Contact:

Post by muse »

BIG Thank You "CCSVI Australia" for translation!!!

ROME - The cerebrospinal chronic venous insufficiency (CCSVI) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis. This is called the association "CCSVI in multiple sclerosis - Onlus" the Ministry of Health in a just concluded meeting between representatives of the association and Albert Zangrilli, president of the second section to the Board of Health in the same ministry. "While science makes its way to validate the correlation between MS and CCSVI - Tobacco said - as, we ask that, since the Ccsvi has already been validated by the scientific world as it has been validated his therapy, the state will face load to implement what the scientific community worldwide has already validated and to draw up guidelines with respect to this disease occur until the science correlation.

Found in several trials around the world in people with multiple sclerosis, CCSVI is a disease that affects the cervical and thoracic veins that because dell'inspessimento anomalous venous walls, remove inefficient blood from the central nervous system. The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year. "Today's meeting went very well - added Tobacco - The Ministry has taken note of our request." The timing, however, there are still some news. "On this we had no indications, but the ministry made us know that it will mobilize more quickly." (Ga)

Source English translation: http://www.facebook.com/pages/CCSVI-AUS ... 3307140799
User avatar
mangio
Family Elder
Posts: 288
Joined: Thu Dec 31, 2009 3:00 pm

Post by mangio »

Amazing.
User avatar
CureOrBust
Family Elder
Posts: 3374
Joined: Wed Jul 27, 2005 2:00 pm
Location: Sydney, Australia

Post by CureOrBust »

Google Italian to English translation wrote:The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year.
Which study are they talking about? size? blinding? who? Design? etc etc
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader »

I believe what happened today in Rome was that CCSVI was recognized as a STAND ALONE vascular condition by the ministry of health, and that Dr. Zamboni was given permission to undertake his blinded study of CCSVI in MS. What is exciting about this is that patients who exhibit signs of CCSVI can eventually be treated for this disease whether or not they have MS- once the ministry establishes guidelines.

Here is another lousy google translate of another article...(I've been trying all day to get the word from the Italian site, and no luck)
The cerebrospinal chronic venous insufficiency, "is recognized as a disease"

The Association CCSVI in multiple sclerosis - Onlus "asks guidelines for diagnosis and therapy. Tobacco: "The State shall take responsibility to implement what the scientific community in the world has crossed"

ROME - The cerebrospinal chronic venous insufficiency (CCSVI) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis. This is called the association "CCSVI in multiple sclerosis - Onlus" the Ministry of Health in a just concluded meeting between representatives of the association and Albert Zangrilli, president of the second section to the Board of Health in the same ministry. "While science makes its way to validate the correlation between MS and CCSVI - Tobacco said - as, we ask that, since the Ccsvi has already been validated by the scientific world as it has been validated his therapy, the state will face load to implement what the scientific community worldwide has already validated and to draw up guidelines with respect to this disease occur until the science correlation.

Found in several trials around the world in people with multiple sclerosis, CCSVI is a disease that affects the cervical and thoracic veins that because dell'inspessimento anomalous venous walls, remove inefficient blood from the central nervous system. The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year. "Today's meeting went very well - added Tobacco - The Ministry has taken note of our request." The timing, however, there are still some news. "On this we had no indications, but the ministry made us know that it will mobilize more quickly." (Ga)
http://www.redattoresociale.it/Dettagli ... ews=312625
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
sbr487
Family Elder
Posts: 865
Joined: Tue Nov 24, 2009 3:00 pm
Location: India
Contact:

Post by sbr487 »

Italy has shown the way ...

Thanks Italy, Kuwait ...
ErikaSlovakia
Family Elder
Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe
Contact:

Post by ErikaSlovakia »

Great news! :D
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
User avatar
MrSuccess
Family Elder
Posts: 922
Joined: Fri Sep 18, 2009 2:00 pm

Post by MrSuccess »

who is alba ?

Has this been confirmed ?



Mr. Success
User avatar
smokey
Family Member
Posts: 93
Joined: Sun Mar 21, 2010 3:00 pm
Contact:

Post by smokey »

YES!!!! This is SO encouraging.
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”