He is in close contact with Dr. Sclafani so I don't know that anything said at the symposium will be new to him. He must choose not to use ivus because of the added expense and time that it takes? It also has not been proven, as emphasized recently in DrS's thread.
Still there is at least one person posting here (CUREious) who would still have an untreated stenosis if not for ivus.
Also has FH been back here lately? Does he know everyone from thisisms came out in support of him?
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I do agree you shouldn't paraphrase doctors if they didn't give permission, or whatever for those exact words because that could be harmful ...
But unless your me and don't mind being attacked by the riffraff, then you'd probably want to go away for a while too.
I hope he comes back soon too ...
Please continue to post and think all things positive (am sending +++++++vibes for continued healing) 'cause it's a blessing!
Also 1 of the 700-800 patiently waiting.....
(I agree...people need to learn how to PM...IMHO it's mostly the same person who hasn't really been reading these threads all along....sentence structure is just too similar regardless of what's said)
Let me just say that I am acutely aware of why Zamboni emphasized the urgency of being liberated sooner rather than later. The damage to my spinal cord will definitely take a long time to heal, if it does at all. That said, my balance is as good or better than it was a week ago and the absence of bladder urgency continues to surprise me. For example I went to the store (about 10 minutes away) yesterday to pick up a couple of things and while trying to find them I felt that old familiar twinge that used to signal impending doom. I thought to myself, "Uh oh!" I finished my errand, came home and forgot about it until an hour or so later, at which point I had a mini celebration in my head at the fact that...well you, know!
Until recently I was able to "jog" to our local community center to lift weights with my teenage son. If you can imagine an 85 year old jogging, that is how it probably looked. My right leg and knee had become pretty bad so about a month and half ago I felt that for safety's sake I should give that up. This morning I got back on the horse. There are no miracles to report on this front as my right knee and hip are still fairly troublesome. I probably looked like a 75 year old (eat it 85ers!). The good news is that the heavy feeling in my legs was not there and the even better news is that I was much, much less winded than I have been in years! The presence of more oxygen was very noticeable and appreciated.
My better balance has allowed me to abandon my cane. It has been great to have back my other hand rather than having it devoted to a stick that kept me from toppling or bumping people in elevators. About the balance, post-procedure I have been experiencing a strange swimming sensation (disorientation, dizziness) at times involving my vision especially when I turned my head quickly while walking or looked at my feet. It is different than the vertigo that I had been experiencing before the procedure. I got less and less until, as of today, it seems to have resolved, so I have come up with two theories regarding it:
THEORY #1: For a long time I have been relying on my eyes and visual cues to maintain my balance. This disorientation could be a result of my eyes re-learning how to trust my balance and surrendering to my internal gyroscope.
THEORY #2: Maybe this is related to my brain adjusting to increased levels of oxygen in my visual cortex? Or the process of the blood and iron being flushed out?
Perhaps neither of these theories are correct. Whatever, I am happy that it has abated. So many "different" but not necessarily "positive" signs and sensations post liberation. Sometimes, in the moment, it is difficult to know if things are moving backwards or forwards. Healing or getting worse. You find yourself over-analyzing every little thing and second guessing yourself. Do my hands feel less numb this morning, or is it just wishful thinking. Do I have more feeling in my feet? What is that new intermittent tingling sensation in my left hand? You get the picture.
I guess the best change of all is that I am now searching for rumors of healing and health instead of decline and disability. That is the most liberating thing of all.
Lovely to hear from your good self.FlashHack wrote:
. About the balance, post-procedure I have been experiencing a strange swimming sensation (disorientation, dizziness) at times involving my vision especially when I turned my head quickly while walking or looked at my feet. It is different than the vertigo that I had been experiencing before the procedure. I got less and less until, as of today, it seems to have resolved.
You find yourself over-analyzing every little thing and second guessing yourself. Do my hands feel less numb this morning, or is it just wishful thinking. Do I have more feeling in my feet? What is that new intermittent tingling sensation in my left hand? You get the picture.
I am 14 months DX with MS so new to all this I had an attack which left my right hand side paralised and my returns were slow and my memory of over analyzing still very vivid.
About your balance & strange swimming sensation this happened to me but 1 months after my attack if it didnt have four walls and a roof it felt odd and when walking in the woods I felt the leaf's on the ground was near my vision riseing up if you like, it did go some months after.
looking left & right was odd when my husband would say look at this or that I could not do it walk talk and look Left/right to many things but it went. Weird if it had four walls and a roof I was ok
What is that new intermittent tingling sensation in my left hand?
when I got this feeling it was a sign that part of my limb returned at first I thought it was the start of something bad - I do remember that feeling.. it was then followed and an itch - I hope this is a good sign for you also.
I'm so happy to hear of your improvements. Thanks for posting such detailed messages.
I'm very interested in your story as I have mostly spinal lesions, and am curious if I have issues in the azygous... Someday I'll find out!
Your results are encouraging, and I hope your dear wife lets you visit us now and again!
Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg