FlashHack is Liberated

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Rokkit
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Post by Rokkit »

What is wrong with all you people? And what's with all the 1-post newbies? There is a 30 page thread on this forum discussing this dr. and his treatment. HE HAS A WEBSITE ADVERTISING HIS TREATMENT! Maybe there's too much detail in the post. I'm sure flashhack will edit it as soon as he can, but geez, this is all really weird.
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Rainbolt
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Post by Rainbolt »

I hope all continues well for you - in speaking to this doctor myself he's asked not to post his name like this, did he tell you it was okay?
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gabbycats
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Post by gabbycats »

anndii wrote:Hi FlashHack, While I am extremely happy for you I am begging you to please please please edit out the hopsital specifics from your blog. I know you are coming from a good place in putting it there but every time Dr and location specifics have been posted that facility ends up getting shut down almost imediately afterwards. I know because I was shut out of Philly after someone posted specifics on FB. I have an appointment coming up soon here and now I'm frankly terrified it might happen to me again. You can post specifics privately to people who inquire but again I beg you to please take it out of your blog. It may end up hurting more people rather than helping. Thanks and I'm gald to hear you had such great results so far. Anndii
It's more than the hospital information, it's the wrong information! Again and again! This is not how this practice is run and you have no right to put words in the dr's mouth that he has not posted himself. It would be appreciated for you to retract these untruths about the hospital, about the IRB, about the doctor and about patient information that he has not given you as it is way off base!
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gabbycats
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Post by gabbycats »

Rokkit wrote:What is wrong with all you people? And what's with all the 1-post newbies? There is a 30 page thread on this forum discussing this dr. and his treatment. HE HAS A WEBSITE ADVERTISING HIS TREATMENT! Maybe there's too much detail in the post. I'm sure flashhack will edit it as soon as he can, but geez, this is all really weird.
maybe you didn't read the posts fully. This guy has made some serious statements that are untrue about the dr and the hospital. That puts others in jeopardy, the hospital and any chance for an IRB.
Rokkit
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Post by Rokkit »

gabbycats wrote:maybe you didn't read the posts fully. This guy has made some serious statements that are untrue about the dr and the hospital. That puts others in jeopardy, the hospital and any chance for an IRB.
Trust me, I've read all the posts fully. Including you and mybribri both posting slightly different versions of the same response letter from the dr. So what's up with that?
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blossom
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albany

Post by blossom »

flashhack, your word to your "SPONSOR" and recognition of him touches my heart. i'm sure you touched the heart of our "SPONSOR" in a big way. life in general can be a humbling experience. life with ms can humble a person to their knees. when me or anyone else is getting liberated or just going about our daily life i want to feel your "SPONSORS" presence. the greatest doctors or anyone else in the world are really only tools he uses to reach his desired end. sometimes we don't understand some of his decisions at the time but as long as we try to live and sell his products this "SPONSOR"never leaves us. even if sometimes we leave him our "SPONSOR" never leaves us. so, with that said, i am soooo happy for you and your successful treatment and thank you for sharing your story. i hope to be hearing more good news as you travel the road to recovery. bloosom
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blossom
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Post by blossom »

OOPS! MISPELLED MY OWN NAME--BLOSSOM. DARN MS FINGERS!!
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FlashHack
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Post by FlashHack »

I have edited my post to hopefully placate some of the more nervous MSers. It saddens me to think that I have offended anyone, especially Dr. Siskin. The fact that MY IMPRESSION was that he was LESS interested in academic MINUTIAE than he was in HELPING PATIENTS was meant to be a high compliment. I cannot fathom how it was interpreted as anything else and I will not change it. The alternative is that he is just using us so that he can publish. I really don't think so.

God bless all the wanna-be editors. I pray that you learn how to press the PM button someday.
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BadCopy
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Post by BadCopy »

Hey, I have not had the chance to say CONGRATS!

Don't worry about the crap being posted. The best thing for you right now is to take it easy, and enjoy your improvements!
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Rainbolt
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Post by Rainbolt »

You still have the city and you still have the docs name - could you please edit that info too?
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michele25
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Post by michele25 »

WOW FLASHBACK

WHY WOULD YOU POST ALL THAT ?????????? SO THE BLANKEN A-HOLES CAN FIND HIM AND SHUT DOWN THE 6TH DOC? SO NO ONE ELSE AFTER YOU GETS A CHANCE , WHAT A GREAT SELFLESS PIECE OF IGNORANT TYPE OF PERSON YOU ARE, I WOULD DELETE ALL AND PRAY TO GOD THAT YOUR IN DETAILED AND PICTURED POST DID NOT GET IN THE HANDS OF GREED, BUT IF IT DID ,I HOPE YOU FEEL THE PAIN AND SUFFERING OF ALL WHO DIDNT GET THE CHANCE.
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michele25
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Post by michele25 »

REALLY ROKKIT
--------------------------------------------------------------------------------

What is wrong with all you people? And what's with all the 1-post newbies? There is a 30 page thread on this forum discussing this dr. and his treatment. HE HAS A WEBSITE ADVERTISING HIS TREATMENT! Maybe there's too much detail in the post. I'm sure flashhack will edit it as soon as he can, but geez, this is all really weird.

MAYBE BECAUSE WE HAVE BEEN AROUND SINCE THE BEGINNING OF THIS AND WATCHED DR. AFTER DR. BE SHUT DOWN BY GREED AND IN BETWEEN WEWATCHED WHILE SOME OF OUR FRIENDS DIED , IF YOU WOULD LIKE THE NAMES OF THE DESEASED AND THE DATES CORRESPONDING WITH THE SHUT DOWNS AND THE EMAILS FOR THEIR FAMILIES PLEASEDONT HESITATE, BUT PLEASE DONT THINK WE HAVE ANYTHING BUT HOPE THAT EVERY MS PERSON GETS THEIR CHANCE , NOTHING ELSE, THAT IS WHY WE CAME HERE NEWBIE AND ALL
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Rainbolt
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Post by Rainbolt »

You almost got it all, you still have the city at the end ;) Please remove it - thank you.
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costumenastional
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Post by costumenastional »

Hey Flash, keep healing dude. Have in mind that it may take some time until you are sure that improvements actually exist. Not that i have any doubts that they do. Just sayin...
I am planning to wait until i stop taking Plavix, aspirin and Daflon, give it a few months drug free and then i ll know better.
Anyway, take it slow and even more good things should happen.

As far as for the good doctor's name i really think that if they want to shut him down they will do just that, regardless of your post. Those things cannot be kept as secrets for long. No worries. It wont be your fault if something bad happens haha

Take care.
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Rieja
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Post by Rieja »

All of the links below are on their PUBLIC website. Flash is happy and I am happy for him. If "THEY" want to shut it down before I get there (and I am on the waiting list) than I will not be holding Flash accountable. It's already out there. Don't worry Flash, you're still cool with me :)

http://www.communitycare.com/Practices/ ... in_Bio.asp

http://www.communitycare.com/Practices/ ... /CCSVI.asp

http://www.communitycare.com/Practices/ ... ground.asp

http://www.communitycare.com/Practices/ ... VI_FAQ.asp

http://www.communitycare.com/Practices/ ... act_Us.asp
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