Would you do it again?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Liberation treatment: Would you do it again?

Yes
63
89%
No (or, not the same way)
8
11%
 
Total votes: 71

User avatar
BadCopy
Family Elder
Posts: 141
Joined: Sun May 23, 2010 2:00 pm
Location: 10,000 Lakes

Post by BadCopy » Fri Sep 17, 2010 7:45 pm

YES! In a second

User avatar
ClaireParry
Family Elder
Posts: 218
Joined: Tue Oct 20, 2009 2:00 pm
Location: Worcestershire, U.K

Post by ClaireParry » Sat Sep 18, 2010 5:58 am

YES YES AND YES.

I'm going back to Poland on the 3rd November. Can't wait although this time i'm demanding stents!!!!!! :wink:

User avatar
cah
Family Elder
Posts: 336
Joined: Tue Oct 27, 2009 3:00 pm
Location: Germany

Post by cah » Mon Sep 20, 2010 8:55 am

Good luck to all who actually are doing it again - may it be the last time necessary!

The question was meant hypothetical, though.
"There is only one good, knowledge, and one evil, ignorance." Socrates

User avatar
cah
Family Elder
Posts: 336
Joined: Tue Oct 27, 2009 3:00 pm
Location: Germany

Post by cah » Sun Oct 10, 2010 12:03 pm

May I bump this, too?
"There is only one good, knowledge, and one evil, ignorance." Socrates

User avatar
Rici
Family Elder
Posts: 296
Joined: Thu Nov 12, 2009 3:00 pm
Location: Poland Bialystok

Post by Rici » Sun Oct 10, 2010 12:22 pm

YES, YES, YES -> 14.X.2010

Regards

Rici

User avatar
Ned
Family Member
Posts: 28
Joined: Sun Apr 18, 2010 2:00 pm
Contact:

Liberation treatment again?

Post by Ned » Sun Oct 10, 2010 4:33 pm

YES YES YESYESYES YES YES
YES YES YES YES YES YES
YES YES YES YES YES
YES YESYES YES YES YES
YES YES YES YES
YES YES YES YES
YES YESYESYES YESYES YES


Am having 2nd angioplasty at the end of October 2010

dunkempt
Family Elder
Posts: 142
Joined: Sun Nov 29, 2009 3:00 pm
Location: Heart of the Continent
Contact:

Post by dunkempt » Sun Oct 10, 2010 4:47 pm

Yes. Best decision I ever made.

... Except for getting married, of course.

-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread

David1949
Family Elder
Posts: 915
Joined: Mon Aug 23, 2010 2:00 pm
Contact:

Post by David1949 » Sun Oct 10, 2010 8:31 pm

This is interesting. Another poll asked if people wanted to get Liberated asap or after the process is proven safe and effective.
http://www.thisisms.com/ftopict-13762.html
In that poll 81% said they wanted it asap.

But this new poll shows that 91% of people who already had it would do it again. So it looks like support for Liberation is even stronger among those who have already had it once than among those who have not yet had it. I think that's a good sign. :)

User avatar
costumenastional
Family Elder
Posts: 743
Joined: Sat Jan 31, 2009 3:00 pm
Location: Greece
Contact:

Post by costumenastional » Mon Oct 11, 2010 12:39 am

YES.

User avatar
MarkW
Family Elder
Posts: 1167
Joined: Thu Oct 19, 2006 2:00 pm
Location: Oxfordshire, England
Contact:

Yes

Post by MarkW » Mon Oct 11, 2010 4:06 am

Yes I would repeat the venoplasty. Those of us who did this early will probably need to get it repeated as the procedure is developing (looking at more veins). It was part of the risk assessment, for me.
Kind regards,
MarkW
Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

User avatar
broomdancer
Family Member
Posts: 73
Joined: Fri Dec 18, 2009 3:00 pm

Post by broomdancer » Mon Oct 11, 2010 5:22 am

Speaking for my husband, yesss... in a heartbeat. Going tomorrow for another doppler to see if he has inpart re-stenosed and then will go from there.
Diana

User avatar
magoo
Family Elder
Posts: 574
Joined: Thu Sep 10, 2009 2:00 pm
Location: Charlotte, NC
Contact:

Post by magoo » Mon Oct 11, 2010 6:15 am

YES!!!!!! YES!!!!! YES!!!!!
It's been life changing. I have a life now and I look forward to the future!
Wish it was the same for everyone.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 » Mon Oct 11, 2010 7:38 am

Probably not due to the complications I have had and also I am not entirely convinced that it is not the heparin that is actually helping me rather than the procedure.....I suppose time will tell and if it is proven conclusively that CCSVI can hasten the worsening of MS I would do it again but only once it has been trialled properly!!:)

dunkempt
Family Elder
Posts: 142
Joined: Sun Nov 29, 2009 3:00 pm
Location: Heart of the Continent
Contact:

Post by dunkempt » Tue Oct 12, 2010 8:10 pm

Yes. The best decision I have ever made.

... Leaving aside getting married, I mean.

-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread

User avatar
LivabirdsHubbie
Family Member
Posts: 91
Joined: Thu Jul 08, 2010 2:00 pm
Location: Northampton UK

Post by LivabirdsHubbie » Tue Oct 12, 2010 8:50 pm

Yes and in fact Liva just did in Bulgaria, procedure was last Thursday.
Would we do it a third time if necessary, well that depends on the results this time, so far very little changes, some but little...
We will be patient as she has PPMS and has had it for 30 years

Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”