JCB's Liberation Journey PPMS
JCB's Liberation Journey PPMS
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Last edited by JCB on Mon Jan 17, 2011 1:35 pm, edited 1 time in total.
Ok, JCB, your stenosis pattern is not what Zamboni predicts as the average case for PPMS. And there are lot like you (e.g. me if my self-diagnosis of PPMS is correct). In fact, your CCSVI and mine look just like most of the RRMSers. I am truly stumped by this. Why does the same stenosis pattern manifest as RRMS in some and PPMS in others? Did your doctors by any wild chance happen to address that?
Right foot numb
JCB
I to have had great results from angioplasty - but have still got an un-cooperative right leg/foot and right hand.
My azygous was also "clear", but have been reading so much info about the implications of the azygous, particularly with legs and hands.
Google - First Regional Workshop "CCSVI and Multiple Sclerosis" - April
24, 2010
Speakers are Prof Zamboni, Roberto Galeotti (Zamboni's IR)
Fabrizio Salvi
Also - Nunzio post Fri Sept 17 10.22pm Subject "other veins involved in
CCSVI"
I am booking for a 2nd procedure, to focus on the veins that are restricted, thus diverting their blood flow through the azygous, and overloading it.
Also read - MS patients share "liberation" stories (Star Phoenix)
Some success with right side, leg,foot,hand after azygous
treatment (or veins diverting into azygous??)
I to have had great results from angioplasty - but have still got an un-cooperative right leg/foot and right hand.
My azygous was also "clear", but have been reading so much info about the implications of the azygous, particularly with legs and hands.
Google - First Regional Workshop "CCSVI and Multiple Sclerosis" - April
24, 2010
Speakers are Prof Zamboni, Roberto Galeotti (Zamboni's IR)
Fabrizio Salvi
Also - Nunzio post Fri Sept 17 10.22pm Subject "other veins involved in
CCSVI"
I am booking for a 2nd procedure, to focus on the veins that are restricted, thus diverting their blood flow through the azygous, and overloading it.
Also read - MS patients share "liberation" stories (Star Phoenix)
Some success with right side, leg,foot,hand after azygous
treatment (or veins diverting into azygous??)
Right foot numb
JCB
The Nunzio post is in the "This is MS" CCSVI forum
Ned
The Nunzio post is in the "This is MS" CCSVI forum
Ned
My prayer is that my darling man's hopes remain while research and science catch up. The other day he said "the future is bright".JCB wrote:Ned,
I too think that there are other veins that are restricted, yet undiscovered. I believe we will look at CCSVI a whole lot differently in the future as the good Dr.'s learn more.
I will be greatful if this just slows the progression while they get to that book learnin stuff. I will be greatful if the progresion just stops. I knew going in that my chances were slim with PPMS but everything just kind of fell in place for me to be treated. I want to be in control of this but know ultimately it's not me, kind of humbling.
My small improvements are encouraging, and I am planning on slowly building my excersize routine. Hard not to over do the excersize, not my nature. My wife knows this fortunately and is constantly reminding me to take it slow. I want it all back and I want it now. I want to sign up for that next triathlon (tough when you can't swim or run with just one side working). It's great to be spectator, but I'm selfish by nature. I would like to play tennis with my kids rather than coach at court side. Again a humbling experience. I would love the opportunity for my Senior High son to have the chance to beat the old man.
So come on science, come on research, catch up to my expectations.
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