CCSVI and CCVBP

bestadmom · Post by **bestadmom** » Tue Jun 28, 2011 11:10 am

Hey HP,

One of the two chiros involved in the Latam, NY study is mine, Dr. Scott Bender.

I saw Bender this morning, and he told me the preliminary results of the study. It's a big deal. The also want to do the study on a cohort of ms patients, including me.

I mentioned you to him. He said who your chiro was right away. So coincedental.

Will you be at Sclafani's symposium? If so, we need to meet.

NZer1 · Post by **NZer1** » Tue Jun 28, 2011 3:32 pm

Finally got the xrays on disc and have loaded them on my site, CCSVI in NZ the link is,
http://www.facebook.com/media/set/?set= ... 1636357984
To be honest I'm disappointed in the quality and the open mouth shot is not that good for the purpose of seeing if there alignment issues still.
The xrays done by the Chiropractor in November last year are at,
http://www.facebook.com/media/set/?set= ... 1636357984
I will have to get a copy of the Radiologists report from my GP, he hasn't read it yet so I cannot have access till then.
I'll hurry up and wait as usual!
Regards all,
Nigel

HappyPoet · Post by **HappyPoet** » Tue Jun 28, 2011 6:00 pm

bestadmom wrote:Hey HP,

One of the two chiros involved in the Latam, NY study is mine, Dr. Scott Bender.

I saw Bender this morning, and he told me the preliminary results of the study. It's a big deal. The also want to do the study on a cohort of ms patients, including me.

I mentioned you to him. He said who your chiro was right away. So coincedental.

Will you be at Sclafani's symposium? If so, we need to meet.

Hello

I was the last patient on Saturday to finish through each step of the study, and I left the upright MRI facility at 1:30 A.M. Sunday morning. I didn't mind at all having finished up so late since I stay up late every night anyway, live only one mile from the facility, and I desperately needed the adjustment. I did feel sorry for the doctors and staff, though, because they had to stay even longer to finish up paperwork.

I wasn't randomized into the sham arm--as you know, those folks required a third upright MRI so the researchers can determine if there's a difference in CSF flow between the two "after" MRIs: the MRI after the fake adjustment and MRI after the real adjustment.

Dr. Wehrenberg did tell me about the MS cohort study as I was leaving, and, thanks to your reminder (thank you!), I'll make sure to let him know tomorrow at my recheck appointment that I'm interested in learning about the details of the study.

Lucky you to be going to DrS's symposium! I don't know yet if I'll be attending. I'd love to be there to meet so many cool people--you, Dr. Diana, Cece, and many others. I'm very happy for you that you'll be attending. If I do go, I'll be sure to let you know! As each day passes, I become more inclined to take the train down to the big city.

bestadmom · Post by **bestadmom** » Tue Jun 28, 2011 6:24 pm

Hp, hop on Amtrak and hightail it down to NYC!! Did you take a taxi home and one of the drs escort you to it? Dr Bender asked me if that was you. If we don't meet in NYC, we can schedule our study participation in Albany on the same day.

HappyPoet · Post by **HappyPoet** » Wed Jun 29, 2011 1:04 am

I do love the train and the city and so many people from TIMS... thanks to Dr. Flanagan finding Dr. Wehrenberg for me, I'd be able to make the trip.
Thank you again, Dr. Flanagan!

No, I didn't need a taxi--I had my car. Terrific idea about scheduling our participation for the same day in Albany which we can do even if we do meet in NYC, yes? I'm going to read the symposium thread after I finish this post.

Talk about the luck of good timing! I called Dr. Wehrenberg's office on Saturday morning because I desperately wanted/needed to get a weekend adjustment if they happened to be in the office that day; however, no one answered the phone, so I left a message asking for the first available appointment on Monday. To my surprise, Dr. Wehrenberg called me back an hour later and told me about the study being done that very day--I jumped at the chance! It all happened so fast!

I'll post more after my appointment later today. I can't wait to find out what he tells me about the new MS study!

silverbirch · Post by **silverbirch** » Wed Jun 29, 2011 1:52 am

Hi Dr Flanagan

Ive just had another appointment with Dr Heidi -

Reason Im starting a job on Monday and wanted Dr Heidi to address two problem on my right side 1) near shoulder blade next to spine 2) right side lower back
Treatment recieved - I lay on my belly and hand pressure applied to back releaseing pressure.

A little trigger pressure gun was then else where used on my upper body e.g coller bone

Leg - my left leg was manliputated by hand tugging...

This was the surprize my right eye Dr Heidi noticed that the pupil was large this was assesed by checking my thorac throat area and a correction was made useing a Sound tuneing device - can you explain this further ? I was so impressed I never took in what was being explained...

In addition to the above I was happy that my previous correction of six weeks ago was still holding.

My godness Dr Heidi is well known... a lady was in the waiting room, she had come from sweden I know paitents come from as far as Brazil to see the good Dr.

Silver

uprightdoc · Post by **uprightdoc** » Wed Jun 29, 2011 2:00 am

Hello all,
Poet, the AO study sounds terrific and its great that you and bestadmom are both in it. US and upright MRI are the way to go. The next step will be to get medical doctors and chiropractors on the same page and incorporate chiropractic into the CCSVI studies. They can be done at the same time with the same protocols with the addition of plain view x-rays and upright MRI. I congratulate all of you for taking a chance on upper cervical chiropractic. Between CCSVI and specific upper cervical you are pushing this research forward.

The next step in cases such as yours with advanced spondylosis, stensosis and scoliosis are special full spine methods called flexion-distraction long axis traction spinal decompression tables based on the Cox Method of spinal decompression. Dr. Jim Cox is a chiropractic radiologist and expert who published many papers and an excellent cutting edge book on spondylosis and stenosis. He also developed a special table called the Cox table. His latest generation is the Cox 7 table which incorporates a headpiece similar to the tailpiece. There are only two other tables on the market I know of that are close to the Cox table with similar features. Trying to find doctors who have these tables is like trying to find a needle in a haystack. I will be discussing them more on my website as it grows.

Interrupted · Post by **Interrupted** » Wed Jun 29, 2011 4:01 am

uprightdoc wrote:Hello Interupted,

I remember your case well and have it in my notes. You fall into the migraine variant category and have tried many different types of alternative health care.

Migraines and female problems such as yours are complicated and require careful attention to details to get to the causes. Nonetheless, specific upper cervical is a good place to start in managing cases like yours. It will help with blood and CSF flow going into and out of the brain. There is only one upper cervical doctor I know of in the UK and that is Dr. Heidi Grant in London.

I did go and see a chiro, who basically said she was surprised but that apart from having a long neck and body and weak core strength I was absolutely fine and just fixed something minor on my spine. I know she wasn't necessarily the right person to see, but I was surprised too that there was nothing more obvious.

I can't remember the female problems... lol. But migraines and UCS yes definitely. I know the base of all this with me is viruses, I collect them like mud on boots and can never get rid of them, which in turn drives the MS symptoms wild. Why my body can't deal with them is the mystery.

Ok great, thank you. If I go and see her, should I print some info off for her from somewhere or just trust her to know what i'll be there about?

Thanks again

bestadmom · Post by **bestadmom** » Wed Jun 29, 2011 4:32 am

Hi Dr. F,

From what Dr Bender told me, the current study was designed by Mark (?) Freeman, a well- known epidemiologist. The chiropractors are doing the adjustments but aren't writing the paper. Damamian, the inventor if the MRI is involved, Dr. Rosa, the AO chiropractor from Rock Hill, NY is too. The study stemmed from a challenge to Dr. Rosa in a lawsuit where he testified using x-rays and the validity was refuted from not using the gold standard, the MRI.

Thank you for sticking around on here. It's exciting how we got keyed into being a part of moving the science forward. That's because of you!

uprightdoc · Post by **uprightdoc** » Wed Jun 29, 2011 4:54 am

Hello Interrupted,

I was referring to the PCOS. You also had developed some bad dietary habits due to feeling poorly. I am surprised kinesiology wasn't that helpful. Anyway, Dr. Heidi is a good place to start.

Just tell her you are from the TiMS website. Thus far she has treated Silverbirch who recommends her highly, and she is now treating Colapesce. I also suggested Constablecomfortable see her but I don't know if he did.

uprightdoc · Post by **uprightdoc** » Wed Jun 29, 2011 5:08 am

Nigel,
I have reviewed your recent x-rays. Fortunately, nothing has changed. It is evident that your back took a beating over the years. It is especially evident in the low back where the vertebra and discs are slightly pancaked. The worst aspect, however, is the forward carriage of the head and neck we discussed previously. Forward carriage strains the cord. Nonetheless, your spine is in farily reasonable condition and upper cervical is well worth a try.

Interrupted · Post by **Interrupted** » Wed Jun 29, 2011 5:13 am

uprightdoc wrote:Hello Interrupted,

I was referring to the PCOS. You also had developed some bad dietary habits due to feeling poorly. I am surprised kinesiology wasn't that helpful. Anyway, Dr. Heidi is a good place to start.

Just tell her you are from the TiMS website. Thus far she has treated Silverbirch who recommends her highly, and she is now treating Colapesce. I also suggested Constablecomfortable see her but I don't know if he did.

Ahhh! Ok, I totally forget about that because compared to everything else it's barely a blip

Ok super, will give her a ring - thank you!

HappyPoet · Post by **HappyPoet** » Wed Jun 29, 2011 5:50 am

Michelle, when Dr. Flanagan helped me find an AO chiro, he gave me two names: Dr. Craig Wehrenberg and Dr. Scott Rosa. With Dr. Wehrenberg's office being less than ten miles from my home, the decision of which doctor to use was easily made. And now both doctors are involved in the same study. Wow!

Dr. Flanagan, the Cox table sounds intriguing; thank you for the information. I hope I didn't give the impression that I'm planning on stopping AO; on the contrary, AO will always be a part of my life because of the dramatic and positive changes in my numbness and spasticity, proven increase in my CSF flow, quick and painless adjustments, and also because...

I'm of the understanding that the longer one's Atlas stays in alignment, the higher the possibility there is for improvements to the rest of the spine, such as the straightening of scoliosis--is this a (somewhat) correct statement?
Thank you!

Interrupted · Post by **Interrupted** » Wed Jun 29, 2011 5:54 am

Oof, just had a chat with Dr Heidi Grant's office, I think this is just not something I can do which is very disheartening. The expense is pretty high, but moreover it involves 2 appointments in London a few days apart initially and then weekly after that - which since I don't drive and can't travel alone is pretty impossible. Gutted

The lady said, for everyone else's info, there is no one else in the UK who does it and only one other in europe somewhere.

uprightdoc · Post by **uprightdoc** » Wed Jun 29, 2011 8:08 am

silverbirch wrote:Hi Dr Flanagan

Ive just had another appointment with Dr Heidi -

Reason Im starting a job on Monday and wanted Dr Heidi to address two problem on my right side 1) near shoulder blade next to spine 2) right side lower back
Treatment recieved - I lay on my belly and hand pressure applied to back releaseing pressure.

A little trigger pressure gun was then else where used on my upper body e.g coller bone

Leg - my left leg was manliputated by hand tugging...

This was the surprize my right eye Dr Heidi noticed that the pupil was large this was assesed by checking my thorac throat area and a correction was made useing a Sound tuneing device - can you explain this further ? I was so impressed I never took in what was being explained...
Silver

Hello Silver,
Somehow I missed when you slipped in here. I am not sure but it sounds like she did trigger point release and activator. The only sound tuning device I use is for tuning my guitar. Was it ultrasound. Combi ultrasound is excellent for trigger points.