CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Re: CCSVI and CCVBP

Post by uprightdoc »

The Arthrostim is a nice piece of equipment.
User avatar
NZer1
Family Elder
Posts: 1624
Joined: Thu Feb 18, 2010 3:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Post by NZer1 »

Thanks Dr.
The technology 'might be' here but funding to support knowledge isn't imo.

The new theories about the role of inflammation in depression are an example of how the Pharma Industry has moved the 'prize' from being knowledge to being income from drug sales. If the inflammation involvement in ill-ness was researched deeper for things labelled as MS for instance there 'maybe' some new insights about the processes in MS where the flows are vital in ways that had been overlooked in history.

The treatments that focus on improving function are good BUT they don't last or address the cause from a whole of Life perspective. Having a period of improvement when you have a chronic/life time disease is 'nice' but is it really a benefit?

The whole picture of Health is interesting when all things are looked at in a px. The Holism paper (George Jelinek) just out, has shown that PwMS have more than one issue and that the two or more issues are compounding each other. So to gain genuine improvements in a chronic disease is more about a whole Life plan for health rather than a improvement of function for calendar months, imo.

As px we have to face the music about where we have created or increased our ill health cascade .................. many changes have to occur and diet, mindfulness and exercise are the most important start points, imo. Other factors are also requiring up to date technological testing and current growing knowledge

:)
Nigel
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Re: CCSVI and CCVBP

Post by uprightdoc »

The concept of mindfulness, diet and exercise in health care are ancient and certainly play a role when it comes to treating patients holistically. Diet, exercise and mindfulness, however, are not the source of the problem nor the solutiion to treating hydrocephalic conditions in children and adults. It is not the source or solution to Chiari malformations, traumatic brain injuries, traumatic cord injuries, traumatic spinal injuries etc. Nor is it the source or solution to the signifcant prevalence of neurodegenerative diseases in professional athletes in football, soccer and boxing etc. The same goes for serious whiplash and other types of head and neck injuries. In fact, westerns sports and whiplash injuries are one of the biggest problems.
User avatar
NZer1
Family Elder
Posts: 1624
Joined: Thu Feb 18, 2010 3:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Post by NZer1 »

If diet, mindfulness and exercise are not in 'order' then the issues you name will be harder to identify.

The main challenge is knowledge and then $ committed to the dx process, imo.

If a Medico has had the basic training of a GP and even if they have moved on to higher education as a Specialist eg Neuro they are reading and remembering the assumptions made in the past. If a px wants an assessment and hydrocephalic conditions is the 'cause' then the training and exams that a Neuro has will very rarely give them insight and motivation to have further technical assessments of CSF flows and pressures, vascular flows or Upright MRI, instead a drug approach will often be the patch, to suppress and depress the symptoms. This often is cause a compounding and cascade effect of the previous issue.

Dr F the insights and articles you have written ARE paradigm changers, time ticks on ......................

;)
Nigel
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Re: CCSVI and CCVBP

Post by uprightdoc »

Thanks Nigel. It's time to relax and do some scales and arpeggios. I will be heading over to the restaurant in about an hour and a half. So far we have been getting very good feedback and reviews on the facility, food and service. I have been asked to explain our Finnish-style masonry heater (fireplace) many times. It is a big attraction and conversation piece. I enjoy explaining how it works, as well as its clean combustion and energy efficiency that uses very little wood. Most people in the USA have never seen one. Our guests love the comfort of the radiant heat. They are far better means of alternative energy production for our neck of the woods than solar electric.
User avatar
Robnl
Family Elder
Posts: 668
Joined: Sun Nov 08, 2009 3:00 pm
Contact:

Re: CCSVI and CCVBP

Post by Robnl »

Hi doc,

George has bought a myovision device.
http://www.myovision.com/

And he is studying blair upper cervica technique.
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Re: CCSVI and CCVBP

Post by uprightdoc »

Hello Robert,

That's great that George is studying Blair technique. It will be a perfect complement to the Cox technique and is better for the upper cervical spine.

While it has its place in diagnosis, I am not a big proponant of needle EMG or Nerve Conduction Studies. I am even less of a proponent for surface EMGs. Surface EMGs of the paraspinal muscles are far too general. They only provide limited information about paraspinal muscles. Needle EMGs are more specific but rift with errors and take too long to test muscles. I can manually test many muscles in the time it would take to do just one needle EMG. In addition to strength, my muscles testing includes, palpation and range of motion. Manual muscle tests also provide qualitative aspects of muscle performance that cannot be detected by EMG.
mdju93
Newbie
Posts: 9
Joined: Fri Oct 09, 2015 12:47 am

Re: CCSVI and CCVBP

Post by mdju93 »

Hello Doctor,

I was just wondering if you'd received the CD's ok?

Thank you

Mark.
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Re: CCSVI and CCVBP

Post by uprightdoc »

Hello Mark,

I did receive the CDs and will review them soon.
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Re: CCSVI and CCVBP

Post by uprightdoc »

Mark,

I am having problems with the anti-virus program on my computer. It should be resolved by tomorrow or Wednesday so that I can review your images.
mdju93
Newbie
Posts: 9
Joined: Fri Oct 09, 2015 12:47 am

Re: CCSVI and CCVBP

Post by mdju93 »

Hi Doctor,

No problem at all.

Thanks

Mark.
User avatar
NZer1
Family Elder
Posts: 1624
Joined: Thu Feb 18, 2010 3:00 pm
Location: Rotorua New Zealand

Re: CCSVI and CCVBP

Post by NZer1 »

Hi Dr.
Some very good comments on your blog in last few days. Great to hear the feedback and impressed with how patients are becoming knowledgeable with their status.

That brings me to my question. I am having a challenging time due to problems with fluctuating head aches, 'MS' type symptoms increases, loss of sense of taste, balance issues, sensation issues, vision issues, cognitive eg confusion and memory issues, noisy neck joints but good neck mobility, feeling that my head will explode, my neck overheats and the head aches etc increase UNLESS I wear a neck cooler which stops or decreases the head aches almost immediately BUT I can only be upright for a few hours and need to lie down for an hour or more to get relief from the head aches etc, I am fatigued most of the time, I am woken by a feeling at night after a couple of hours sleep that I have to be upright because my thinking and general wellness suddenly gets panicky and once up I become calm but if I lie down again it instantly becomes the same panic situation, I have a taste and dripping sinus from the left side when this all gets bad at night in particular I go outside and clear my head and the sinus seems to be triggered by temp change as its cooler than the summer indoor heat.
Lots to digest and what I am finding is that GP's are lost and send we away, the last GP visit had me referred for a Psychologist report and he didn't read my history on file and reports/MRI's/nerve conduction etc etc and therefore said I was psychosomatic and prescribed drugs to basically shut me down which have the side effects list the same as my symptoms. I won't use them.

So what I am thinking is to get my neck assessed first by my Chiro and get a report on its 'health' and function and any other findings he notices.

I am concerned this request will be out of his league, his nurse has been very good and started the process by talking to John and asking what he is able to do.

Dr. do you think a report from a Chiro will be of advantage in this dx process?

Regards,
Nigel :)
User avatar
uprightdoc
Family Elder
Posts: 1995
Joined: Thu Sep 30, 2010 2:00 pm
Location: USA
Contact:

Re: CCSVI and CCVBP

Post by uprightdoc »

Hello Nigel,

I got disconnected from the website and comments for well over a year due to an old overloaded mailbox. There were many good comments and questions. I will be getting back to posting on the site occassionally covering topics related to my next book coming out later this year.

As far as your symptoms are concerned, regardless of the MS, you most likely have a chronic cervical strain. Creaky sounds in you neck is a sure sign and headache is one of the most common symptoms of a cervical strain. Many symptoms associated with MS, such as weakness and muscle spasms etc., can cause musculoskeletal strains in the spine. Moreover, it it my opinion that in certain cases chronic cervical strains can cause or contribute to MS. Chronic strains of the upper cervical spine can obstruct blood and CSF flow in the brain and cord.

It's not you who needs to see a shrink. It's your medical doctors who are the thick-headed numbskulls that fail to see such an obvious connection between basic anatomy and physiology.

Make sure you get an appointment to see John to get your spine checked and treated. Unfortunately, the only way he can write a meaningful report, however, is to do a meaningful physical examination, which is where most chiropractors fall woefully short. Ideally, you should have a head to foot basic orthopedic and neurological exam of the spine and extremities including observation of posture and balance, palpation, ranges of motion, muscle tests etc. It sounds like a lot but it doesn't take that long.
User avatar
Robnl
Family Elder
Posts: 668
Joined: Sun Nov 08, 2009 3:00 pm
Contact:

Re: CCSVI and CCVBP

Post by Robnl »

Hi doc,

update from my side;
George is slowly 'pushing' C0, c1 and C2...I have to be patient, sometimes there is an improvement. Other people notice that i'm standing more easy, with more strength.
Goes up and down....

At the fysiotherapist we focus on balance and test strength in the hands once a month.

I try to flex my neckmuscles, George says they are very tight.

Want I wanted to ask; legs are very weak, little movement....but if a fly walks over legs or toe I can feel it. How about damaged nerves?
vesta
Family Elder
Posts: 709
Joined: Thu Jul 12, 2012 9:10 am
Location: Paris, France
Contact:

Re: CCSVI and CCVBP

Post by vesta »

NZer1 wrote:
That brings me to my question. I am having a challenging time due to problems with fluctuating head aches, 'MS' type symptoms increases, loss of sense of taste, balance issues, sensation issues, vision issues, cognitive eg confusion and memory issues, noisy neck joints but good neck mobility, feeling that my head will explode, my neck overheats and the head aches etc increase UNLESS I wear a neck cooler which stops or decreases the head aches almost immediately BUT I can only be upright for a few hours and need to lie down for an hour or more to get relief from the head aches etc, I am fatigued most of the time, I am woken by a feeling at night after a couple of hours sleep that I have to be upright because my thinking and general wellness suddenly gets panicky and once up I become calm but if I lie down again it instantly becomes the same panic situation, I have a taste and dripping sinus from the left side when this all gets bad at night in particular I go outside and clear my head and the sinus seems to be triggered by temp change as its cooler than the summer indoor heat.


Regards,
Nigel :)
Hello Nigel:

Some of your symptoms remind me of fluid congestion in the head which I can relieve with a good swim or even deep breathing exercises. It's surprising the relief that can bring. Obviously I have nothing to say about Chiropractic analysis or treatment but you might get some relief by finding a way to get the fluids circulating.

Best regards, Vesta
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”