CCSVI treatment for MS in the UK
CCSVI treatment for MS in the UK
The first CCSVI operations in the UK for multiple sclerosis patients - known as the liberation procedure - will take place in a private clinic in Edinburgh later this month.
The angioplasty procedure to treat narrowed veins in the neck is being arranged by the Essential Health Clinic in Glasgow, which has already screened 400 patients for the condition.
Until now, UK patients have had to travel to clinics abroad for treatment, including in Poland and Bulgaria.
We talk to Glasgow GP Dr Tom Gilhooly who has arranged the scanning and treatment and seek reaction from other experts in the field about this new treatment....Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
Last edited by MSUK on Tue Oct 12, 2010 7:36 am, edited 1 time in total.
MS-UK - http://www.ms-uk.org/
- Algis
- Family Elder
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- Location: XinYi District, Taipei City, , Taiwan
Dr. Gilhooly is a very open-minded person; among other he is an advocate for the LDN:
http://www.bigonglasgow.com/2010/dr-tom ... rapy-22237
(FWIW LDN is the only thing that helped me so far - Tho it might be a 2.5 years placebo effect - OR the normal course of "my" MS - Who knows)
http://www.bigonglasgow.com/2010/dr-tom ... rapy-22237
(FWIW LDN is the only thing that helped me so far - Tho it might be a 2.5 years placebo effect - OR the normal course of "my" MS - Who knows)
- Coolcatcarrie
- Family Member
- Posts: 79
- Joined: Sun Jun 20, 2010 2:00 pm
- Location: Near Bath, UK
- Coolcatcarrie
- Family Member
- Posts: 79
- Joined: Sun Jun 20, 2010 2:00 pm
- Location: Near Bath, UK
- debbie8067
- Getting to Know You...
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Hi there.... had my positive scan at EHC on Jul 13th and still waiting for appt. date. When I spoke to the receptionist there last week re my LDN repeat script,she said that they would give us all plenty of notice so as to arrange travel etc . So it can't be much longer...... It's like waiting for Christmas
- HopingHusband
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We have been on the list since June and received our appointment for the Doppler Scanning only in Glasgow a few days ago.
We had a choice of Oct 28/29 or the entire month of November.
Since this was only for the Scanning portion and they have not confirmed a date for the Procedure, we opted to wait until early 2011 for both Treatments at the same time and took our name off the list to give someone else an opportunity to go.
They are going to have 3 procedures done before the International Conference on the 29th (Professionals / Doctors) and 30th (Public)
If anyone knows more about Scotland, please let us know.
We had a choice of Oct 28/29 or the entire month of November.
Since this was only for the Scanning portion and they have not confirmed a date for the Procedure, we opted to wait until early 2011 for both Treatments at the same time and took our name off the list to give someone else an opportunity to go.
They are going to have 3 procedures done before the International Conference on the 29th (Professionals / Doctors) and 30th (Public)
If anyone knows more about Scotland, please let us know.
- silverbirch
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- Location: UK
- Contact:
I have posted this in another thread in this forum but think its good to post it here
NICE are looking into it I think this is a positive and would welcome thoughts from the forum good or bad xx
NICE dont seem to be a fan of the DMD currently on offer they have asked for a cost reduction I do hope they put the funds into CCSVI....
Balloon angioplasty with or without stenting for chronic cerebrospinal venous insufficiency (CCSVI) in MS
NICE has been notified about this procedure and has considered it as part of the Institute’s work programme. The procedure is being monitored as we are awaiting use in the NHS.
The procedure will be reconsidered at regular intervals to determine whether this has been resolved.
http://guidance.nice.org.uk/IP/891
NICE is the UK's Governing body for medical procedures - medications
NICE are the ones who will pass CCSVI to be carried out of the NHS
NICE have raised their concerns (2009) over DMD drugs and its lack of effectivenes and have asked drug company's to reduce the cost supplied to the NHS
Dr Hubbard commented on NICE and the DMD in the lastes video posted by joan beal - http://ccsvi.org/
NICE are looking into it I think this is a positive and would welcome thoughts from the forum good or bad xx
NICE dont seem to be a fan of the DMD currently on offer they have asked for a cost reduction I do hope they put the funds into CCSVI....
Balloon angioplasty with or without stenting for chronic cerebrospinal venous insufficiency (CCSVI) in MS
NICE has been notified about this procedure and has considered it as part of the Institute’s work programme. The procedure is being monitored as we are awaiting use in the NHS.
The procedure will be reconsidered at regular intervals to determine whether this has been resolved.
http://guidance.nice.org.uk/IP/891
NICE is the UK's Governing body for medical procedures - medications
NICE are the ones who will pass CCSVI to be carried out of the NHS
NICE have raised their concerns (2009) over DMD drugs and its lack of effectivenes and have asked drug company's to reduce the cost supplied to the NHS
Dr Hubbard commented on NICE and the DMD in the lastes video posted by joan beal - http://ccsvi.org/
- Coolcatcarrie
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- Location: Near Bath, UK
I had a positive scan at EHC Glasgow last month, and am awaiting a date for the angioplasty. Apparently I have 4 of the 5 CCSVI criteria (including completely closed LJV), so am a good case for the procedure.
Hoping to get seen early in the new year, but would be very interested to hear of anyone's experiences of the procedure.
Also I'm hoping that we see some feedback from the conference. Hopefully there will be some video footage available of the presentations etc.
Anyway, it's good to hear that it's moving on and the first procedures are underway...
Hoping to get seen early in the new year, but would be very interested to hear of anyone's experiences of the procedure.
Also I'm hoping that we see some feedback from the conference. Hopefully there will be some video footage available of the presentations etc.
Anyway, it's good to hear that it's moving on and the first procedures are underway...
Don't hold your breath on that early new year appointment, Emma was scanned mid July and we still don't an appointment.
Actually what I do find dissapointing is the absolute lack of any information whatsoever for those that have been scanned so far.
It would have been nice just have a put a paragraph on the website stating three procedures had been performed and everything is hunkey dorey. All those waiting will be hearing withing a week/month/year/decade for their appointment.
Just in limbo now.
Actually what I do find dissapointing is the absolute lack of any information whatsoever for those that have been scanned so far.
It would have been nice just have a put a paragraph on the website stating three procedures had been performed and everything is hunkey dorey. All those waiting will be hearing withing a week/month/year/decade for their appointment.
Just in limbo now.
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