Angela has PML...
- cheerleader
- Family Elder
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Angela has PML...
For those who know our dear Angela of Flowers4MS--she has confirmed PML from her Tysabri infusions.
She is now in Johns Hopkins, receiving plasma exchange. Her husband has been updating us on her condition.
Angela has been our translator for Dr. Zamboni's interviews, since she is Italian born. She has confirmed CCSVI, but has not been able to be treated. She needs our good thoughts and prayers. Here is her charity where she has been raising money for CCSVI research:
http://www.flowers4ms.com/
For info on Angela's condition---
cheer
She is now in Johns Hopkins, receiving plasma exchange. Her husband has been updating us on her condition.
Angela has been our translator for Dr. Zamboni's interviews, since she is Italian born. She has confirmed CCSVI, but has not been able to be treated. She needs our good thoughts and prayers. Here is her charity where she has been raising money for CCSVI research:
http://www.flowers4ms.com/
For info on Angela's condition---
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- prairiegirl
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Re: Angela has PML...
She needs our good thoughts and prayers.
cheer[/quote]
The many, many heartfelt posts on her site and on CCSVI FB, are testimony to how many people have been touched by Angela's kindness and generous spirit. Hope she recovers well!
cheer[/quote]
The many, many heartfelt posts on her site and on CCSVI FB, are testimony to how many people have been touched by Angela's kindness and generous spirit. Hope she recovers well!
Re: Angela has PML...
cheerleader wrote:For those who know our dear Angela of Flowers4MS--she has confirmed PML from her Tysabri infusions.She is now in Johns Hopkins, receiving plasma exchange. Her husband has been updating us on her condition.
Angela has been our translator for Dr. Zamboni's interviews, since she is Italian born. She has confirmed CCSVI, but has not been able to be treated. She needs our good thoughts and prayers. Here is her charity where she has been raising money for CCSVI research:
http://www.flowers4ms.com/
For info on Angela's condition---
cheer
What is PML?
Donnchadh
Kitty says, "Take that, you stenosis!"
Got MS?.....Get Liberated!
Got MS?.....Get Liberated!
Re: Angela has PML...
Progressive multifocal leukoencephalopathy (PML), also known as progressive multifocal leukoencephalitis, is a rare and usually fatal viral disease that is characterized by progressive damage (-pathy) or inflammation of the white matter (leuko-) of the brain (-encephalo-) at multiple locations (multifocal).Donnchadh wrote:
What is PML?
Donnchadh
It occurs almost exclusively in people with severe immune deficiency, such as transplant patients on immunosuppressive medications, patients receiving certain kinds of chemotherapy, patients receiving natalizumab (Tysabri)[1] for multiple sclerosis, psoriasis patients on long-term efalizumab (Raptiva)[2] or AIDS patients.
It is caused by a virus, the JC virus, which is normally present and kept under control by the immune system. Immunosuppressive drugs prevent the immune system from controlling the virus.
Brian
edit: definition from wikipedia.
http://en.wikipedia.org/wiki/Progressiv ... phalopathy
Re: Angela has PML...
Oh, I understand now; I had never heard of it before. I sincerely hope she has a complete and quick recovery.bretzke wrote:Progressive multifocal leukoencephalopathy (PML), also known as progressive multifocal leukoencephalitis, is a rare and usually fatal viral disease that is characterized by progressive damage (-pathy) or inflammation of the white matter (leuko-) of the brain (-encephalo-) at multiple locations (multifocal).Donnchadh wrote:
What is PML?
Donnchadh
It occurs almost exclusively in people with severe immune deficiency, such as transplant patients on immunosuppressive medications, patients receiving certain kinds of chemotherapy, patients receiving natalizumab (Tysabri)[1] for multiple sclerosis, psoriasis patients on long-term efalizumab (Raptiva)[2] or AIDS patients.
It is caused by a virus, the JC virus, which is normally present and kept under control by the immune system. Immunosuppressive drugs prevent the immune system from controlling the virus.
Brian
edit: definition from wikipedia.
http://en.wikipedia.org/wiki/Progressiv ... phalopathy
Dia linn, I never took any "MS" anti-immune drugs.
Donnchadh
Kitty says, "Take that, you stenosis!"
Got MS?.....Get Liberated!
Got MS?.....Get Liberated!
This is terrible news, I wish her the best to pull through this and work on recovery.
It was mentioned elsewhere that they've put a central catheter line into her neck, to do the plasma exchange to flush the Tysabri out. I can't even comment on the irony there. I hope she pulls through.
edited: it's the EV that's used. But still. I hate Tysabri yet I know there are people who have few other options
It was mentioned elsewhere that they've put a central catheter line into her neck, to do the plasma exchange to flush the Tysabri out. I can't even comment on the irony there. I hope she pulls through.
edited: it's the EV that's used. But still. I hate Tysabri yet I know there are people who have few other options
Last edited by Cece on Thu Oct 21, 2010 4:16 pm, edited 1 time in total.