Follow Up Doppler
- ClaireParry
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- Joined: Tue Oct 20, 2009 2:00 pm
- Location: Worcestershire, U.K
Follow Up Doppler
I've just seen Dr Ludyga for a follow up Doppler.
I'm slightly disappointed to say the least. My MS is worse than it ever has been and I really was pinning my hopes on that both my veins have collapsed again.
However, it would seem that the right vein has an 'ok' flow but he sees something on the right that may indicate something not being right. He feels it warrants another venogram to have a look and that will be tomorrow.
Just wasn't the cut and dry result I was looking and may be I will be one of those who don't benefit from this This is just me being overly emotional. I did get benefit 1st time round for sure.
Anybody elses experience greatly received
Claire x
I'm slightly disappointed to say the least. My MS is worse than it ever has been and I really was pinning my hopes on that both my veins have collapsed again.
However, it would seem that the right vein has an 'ok' flow but he sees something on the right that may indicate something not being right. He feels it warrants another venogram to have a look and that will be tomorrow.
Just wasn't the cut and dry result I was looking and may be I will be one of those who don't benefit from this This is just me being overly emotional. I did get benefit 1st time round for sure.
Anybody elses experience greatly received
Claire x
- blossom
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hi,
hi, hope your doc gets this figured out and you start getting better again. we all know there is something to this by the mixed results we all got. but i just hope they can figure out the puzzle soon. my results and hearing stories like yours makes me sad and i know it's hard to stay positive. but, i guess all any of us can do is hang in there and try not to give up. does it ever get easier? keep us informed and the best to you.
- MarkW
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Selective Venogram
Hello Claire,
I suggest you make sure all your major veins are checked with a catheter and x-rays. I was checked/ballooned for 3 (three) hours. Stenoses are being discovered in new places so you need a full check for peace of mind.
Best wishes,
MarkW
I suggest you make sure all your major veins are checked with a catheter and x-rays. I was checked/ballooned for 3 (three) hours. Stenoses are being discovered in new places so you need a full check for peace of mind.
Best wishes,
MarkW
Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
- esta
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- Location: Summerland. BC Canada
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hi claireperry
ohhhhh, things are never what we figure they should be, are they!! then this. dr ludiga is the best there soooooo lets hope he finds something worthy of changing so you'll get better. i can only wish all the best for you and can hardly wait for your next post...
ohhhhh, things are never what we figure they should be, are they!! then this. dr ludiga is the best there soooooo lets hope he finds something worthy of changing so you'll get better. i can only wish all the best for you and can hardly wait for your next post...
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
- ClaireParry
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- Posts: 218
- Joined: Tue Oct 20, 2009 2:00 pm
- Location: Worcestershire, U.K
Thanks Blossom, Esta. I hope something comes of this so much.
Billmeik, didn't think to look at the numbers To focused on whether I needed an op or not.
Mark - will def ask if they will check all necessary veins. I really want this done properly.
Kevin - can't believe we're here at the same time. I guess we'll see you at the hospital tomorrow. Hope Iza is feeling ok with her Doppler results. It is disappointing when the positive results have gone not to get a clear cut answer. See you tomorrow,
Claire x
Billmeik, didn't think to look at the numbers To focused on whether I needed an op or not.
Mark - will def ask if they will check all necessary veins. I really want this done properly.
Kevin - can't believe we're here at the same time. I guess we'll see you at the hospital tomorrow. Hope Iza is feeling ok with her Doppler results. It is disappointing when the positive results have gone not to get a clear cut answer. See you tomorrow,
Claire x
- Astrid1961
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- esta
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- Location: Summerland. BC Canada
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Astrid, the ck-up doppler shows how the flow is workking. it shows if the vein is doing its job. it shows if it is blocked or running slow. you can hear it and see it.
i saw and heard it all the day after my stent was inserted. when i get another follow up, it should be the same.
cheers
i saw and heard it all the day after my stent was inserted. when i get another follow up, it should be the same.
cheers
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
- ClaireParry
- Family Elder
- Posts: 218
- Joined: Tue Oct 20, 2009 2:00 pm
- Location: Worcestershire, U.K
Hi,
For me the improvement is very little if any. I'm not completely despondent however, I believe my jugs are open as my spasticity seems to be a little improved, may be for me the improvements are longer coming.......
I do feel as someone mentioned in an earlier thread, under treated. Despite asking before the op for ALL veins to be checked including Azygous, Iliac and Vertebral I don't believe they were. Just re-ballooning of my jugs.
I will def go to the South of England EHC to check for patency - but will seriously think re more surgery until I can see a clear and comprehensive diagnostic path being followed, pref here in the UK.
Xia - its good to see you here - How are you?
Kevin - how is Iza? I hope she's well?
I really hope to post with some improvements soon!!!
Claire x
For me the improvement is very little if any. I'm not completely despondent however, I believe my jugs are open as my spasticity seems to be a little improved, may be for me the improvements are longer coming.......
I do feel as someone mentioned in an earlier thread, under treated. Despite asking before the op for ALL veins to be checked including Azygous, Iliac and Vertebral I don't believe they were. Just re-ballooning of my jugs.
I will def go to the South of England EHC to check for patency - but will seriously think re more surgery until I can see a clear and comprehensive diagnostic path being followed, pref here in the UK.
Xia - its good to see you here - How are you?
Kevin - how is Iza? I hope she's well?
I really hope to post with some improvements soon!!!
Claire x