diagnosed - MRV images added, page 5&6!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Interrupted
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Post by Interrupted »

Cece wrote:Most of my symptoms align with the things that seem to respond well to CCSVI venoplasty (severe fatigue, cogfog, vision clarity, weakness).
I thought that too, lol :roll: But I really hope that because you've done such solid groundwork identifying the problems before yours that they'll have everything covered and you get a whole better result. You totally deserve it! :D
28/07/10, 04/10/10, 16/11/10 - CCSVi Dopplers x3 ** 12/10/10 - Poland procedure. Symptoms worsened. No improvement.
13/02/12 - Wheldon ABX protocol for 1.5yrs. Fairly stable but no improvement. Unable to source alternate ABX needed.
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Post by Cece »

Interrupted wrote:
Cece wrote:Most of my symptoms align with the things that seem to respond well to CCSVI venoplasty (severe fatigue, cogfog, vision clarity, weakness).
I thought that too, lol :roll: But I really hope that because you've done such solid groundwork identifying the problems before yours that they'll have everything covered and you get a whole better result. You totally deserve it! :D
You are kind, Interrupted. And you had rotten luck, I wish it had gone right for you.

With Dr. Sclafani's big announcement out of the way, I can make my small one: I have an appointment coming up at the end of January to be treated by Dr. Sclafani.

:D
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Algis
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Post by Algis »

I have an appointment coming up at the end of January to be treated by Dr. Sclafani.
What a feast Cece :) Will be watching this one so closely... Good luck!
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burg
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Post by burg »

Congratulations Cece !!!

You deserve the very best, and now You'll get it !!!
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pklittle
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Post by pklittle »

Good luck Cece!
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prairiegirl
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Post by prairiegirl »

Great to hear, Cece-- wish you the very best!
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L
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Post by L »

Good luck Cece!
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Trish317
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Post by Trish317 »

Wonderful news, Cece! You'll be in my thoughts and prayers....
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Post by newlywed4ever »

Cece - I, too, have an appt with our #1 hero Jan. 28th!! What day/week will you be there?
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Post by Cece »

newlywed4ever wrote:Cece - I, too, have an appt with our #1 hero Jan. 28th!! What day/week will you be there?
pm'ing you!

Algis, how do we get you to Brooklyn? I fear we don't, but if it were possible, I would head whatever effort it takes to make it happen.

Trish, L, prairiegirl, pam, burg, algis - thank you, it is exciting! When Michelle passed me Dr. Sclafani's name back on the first day of March, or perhaps the last day of February (it was late at night), I took her at her word that he was excellent. But we've had many many months now of getting to know that for ourselves. :)
Last edited by Cece on Sun Nov 28, 2010 5:41 pm, edited 1 time in total.
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HappyPoet
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Post by HappyPoet »

Cece, your date with destiny awaits you -- wishing you the best of luck!
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MS_HOPE
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Post by MS_HOPE »

OMG, Cece, what exciting, wonderful news. I am sending you positive, healing thoughts, and hoping for the very best possible outcome for you! You've been such a helpful, knowledgeable, kind member of the TIMS family - you deserve the best.
CCSVI:  Making Sense of MS
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Algis
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Post by Algis »

Algis, how do we get you to Brooklyn? I fear we don't, but if it were possible, I would head whatever effort it takes to make it happen.
Thank you Cece; who knows? Taipei => New York have 3 flights a week... But the first things first: good luck!
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Post by Cece »

Image[/img]
this is image #1 of 8 of them posted on this page and the next :)
Last edited by Cece on Fri Dec 10, 2010 5:47 pm, edited 1 time in total.
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Post by Cece »

Image
(my azygous)
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