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We now have a Canadian specialist physician ~ one who has studied circulation and the brain and written numerous books on multiple sclerosis and brain recovery ~ to fight for our cause from a very personal perspective.
On November 29, 2010, Dr. Bill Code was treated for CCSVI in California. Dr. Bill had received his diagnosis of CCSVI when he went to Dr. Zivadinov's facilities in Buffalo over the summer. With that information, he carefully planned his next step to get the problems fixed through angioplasty.
We were honoured to have Dr. Bill as our medical expert at our August 9, 2010 Victoria CCSVI Information Session and our recent November 16, 2010 Vancouver CCSVI Information Session. Just last Friday, Dr. Bill served as a medical expert again at our November 26 Vancouver CCSVI Roundtable with Kirsty Duncan, MP. And now...Dr. Bill has been treated for his CCSVI!
In his own words sent via iPhone after treatment last night:
"Hi, All 3 veins treated today with much improved flow. No stents required. I firmly believe this is the place to go.
They [Pacific Interventionalists] follow the Kuwait concept that it is primarily a valve problem. I agree. Also, that CCSVI should be treated as a vascular issue in it's own right rather than a treatment for MS. I agree.
My head feels less pressured already. Cheers, Bill"
Please join me by sending Dr. Bill your messages of hope and congratulations below. We now have a renewed, re-energized, and committed CCSVI friend and ally ~ who is also an insider to our medical system ~ who now knows what it feels like to have blood flowing freely. Not only is this a terrific personal victory for Dr. Bill in his battle against symptoms he thought were MS, this is a victory for all of us.
I hope that his advocacy for treatment helps to expedite trials and treatment options for Canadians. It doesn't hurt to have another medical doctor on board!
Is the idea of treating CCSVI as an independent condition from MS a political one to expediate acceptance in Canada (and elsewhere), or is prodominantly medical reasoning behind it? (or an element of both?)
Anyhow always good to have another MD on board, it adds clout to the theory.
Great news, the 'I've been de-stenosed' club is growing rapidly. It is a logical step if one has MS.
EJC asks:
Is the idea of treating CCSVI as an independent condition from MS a political one to expediate acceptance in Canada (and elsewhere), or is prodominantly medical reasoning behind it?
My thoughts are:
CCSVI is a disease which requires much research to be fully understood.
Extracranial Venous Stenose (EVS) are a diagnosible and treatable condition which may or may not be involved in MS.
MS is a truly complex multifactorial condition with little agreement on the cause of the disease or is it a syndrome.
Treating symptoms is an established medical and pharmaceutical practise.
So logically either treat the symptom (EVS) or wait for definitive research.
It should be a free choice for pwMS except MS neuros are interferring.
MarkW
Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
MarkW wrote:Great news, the 'I've been de-stenosed' club is growing rapidly. It is a logical step if one has MS.
EJC asks:
Is the idea of treating CCSVI as an independent condition from MS a political one to expediate acceptance in Canada (and elsewhere), or is prodominantly medical reasoning behind it?
My thoughts are:
CCSVI is a disease which requires much research to be fully understood.
Extracranial Venous Stenose (EVS) are a diagnosible and treatable condition which may or may not be involved in MS.
MS is a truly complex multifactorial condition with little agreement on the cause of the disease or is it a syndrome.
Treating symptoms is an established medical and pharmaceutical practise.
So logically either treat the symptom (EVS) or wait for definitive research.
It should be a free choice for pwMS except MS neuros are interferring.
MarkW
Amen ... and great to have another Doctor de-stenosed! The list is growing fast ...
This is the first time I've heard of Dr. Code but his story is intriguing. Here is a radio interview with him (though the interviewer is incredibly annoying).
MarkW wrote:
My thoughts are:
CCSVI is a disease which requires much research to be fully understood.
Extracranial Venous Stenose (EVS) are a diagnosible and treatable condition which may or may not be involved in MS.
MS is a truly complex multifactorial condition with little agreement on the cause of the disease or is it a syndrome.
Treating symptoms is an established medical and pharmaceutical practise.
So logically either treat the symptom (EVS) or wait for definitive research.
It should be a free choice for pwMS except MS neuros are interferring.
MarkW
That makes sense, it is frustrating that the connection to MS is creating reticence with the medical community and stenosed venous formations.
Frustrating, but it all has to start somewhere, however actively blocking.stopping treatment for those that have chosen to go that route is bordering on criminal in my mind.
I don't think it is bordering on criminal I think it IS criminal. We in Canada have no local, we have to travel. I personally went to Poland, I can't have followup at home and will be travelling for my followup. I will go to the same place Dr. Code went to for his treatment. I do wish Dr. Code all the best.
