Last year's word
- MarkW
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Last year's word
- VENOPLASTY is the 2011 word for the procedure, not the L word.
- MS is a variable disease so please report trends over 6 months not day to day changes.
MarkW
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
Re: Last Year's Word
Mark-MarkW wrote:I am pleased you are happy Ethan but two points:
- VENOPLASTY is the 2011 word for the procedure, not the L word.
- MS is a variable disease so please report trends over 6 months not day to day changes.
MarkW
I don't care if a patient who has had their veins rotorootered calls it Liberation or venoplasty. Don't care if they call it an operation or "procedure". I really enjoy reading short term reports on progress or setbacks.
Why are you offering this advice?
Brian
- MarkW
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Argument with neuros/naysayers
MarkW
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
daily updates
After my procedure, however, I warmed considerably to the word.

I agree with Zinamaria, the neuros aren't the ones reading here.
Ethan, congrats on the procedure and the no pain, no problems. Hope you are feeling well!
- MarkW
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Public Site
Using the L word does not impact me as I simply pay for what I want to do on CCSVI. Arguing for 'venoplasty for CCSVI' is my mojo. Why ? Simply to help people with MS with are not as financially free as I am. Giving interviews and writing in the quality UK press does little for me but I do it to help get venoplasty for CCSVI talked about by politicians. We may eventually get venoplasty available on our NHS (public health system).
Please do not under estimate the power of this chat room or the excellent work that the CCSVI Alliance is doing.
MarkW
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
- soapdiva884
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I also believe that day to day reports are extremely important to all of us including the physicians and medical professional who browse this site.
We will continue to do day to day reports versus trends over 6 months!
But, thanks for the advice! LOL
PS-------"Very easy to laugh at daily diaries for a RRMS patient"---I DO NOT BELIEVE ANYONE IS LAUGHING AT DAILY REPORTS!
- MS_HOPE
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Any neurologists reading would be well-served, in my opinion, by taking a look at the data being collected on www.ccsvi-tracking.com. Not without its shortcomings, it's the best source I know of for an overall picture of how CCSVI treatment is affecting MS patients' lives.
Anyone know of a better source of this type of info, while we wait for the studies to be published?
- fiddler
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CCSVI-Tracking.com
...Ted
My blog: www.my-darn-ms.blogspot.com
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the 9th 10th month out post procedure improvements are going in the wrong direction.

http://www.ccsvi-tracking.com./index_timeline.php
- drsclafani
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Re: Last year's word
actually mark, i would argue that VALVULOPLASTY is the correct word for the vast majority of these procedures. That is what is wrong.MarkW wrote:I am pleased you are happy but two points:
- VENOPLASTY is the 2011 word for the procedure, not the L word.
- MS is a variable disease so please report trends over 6 months not day to day changes.
MarkW
But its semantics. What counts is how the patient feels.
- fiddler
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9th or 10th month
...Ted
My blog: www.my-darn-ms.blogspot.com
- CCSVIhusband
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- fiddler
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Still blogging...
...Ted
My blog: www.my-darn-ms.blogspot.com
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Re: 9th or 10th month
orion98665 wrote:On CCSVI Tracking am i reading this correctly..? It appears that over about
the 9th 10th month out post procedure improvements are going in the wrong direction.![]()
http://www.ccsvi-tracking.com./index_timeline.php
fiddler wrote: In my case, I am post 10 months (the only Canadian reporting that far along) and I'm feeling fine.
...Ted
"Great to hear!" I think all of us want to see this CCSVI "Steam Locomotive"
pick up momentum and continue to move forward!!!
Bob
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