states without CCSVI-treating IRs

Cece · Post by **Cece** » Wed Mar 30, 2011 9:02 am

Hawaii
South Dakota
North Dakota
Iowa
Wisconsin
Alaska
South Carolina
West Virginia
Ohio
Utah
New Mexico
Tennessee
Texas
Louisiana
Arkansas
Oklahoma
Colorado
Nevada
Kansas
Michigan*
Missouri*

Please post if you know your state does not have a CCSVI-treating IR (or conversely if it is on this list in error.) I'll update this post accordingly. I'd like to get a sense of where the gaps still are, nationwide.

* I can also update if a state has no openly treating CCSVI docs but there is someone to pm who might know of one. In this category, there is now Michigan (formyruca) and Missouri (Ozarkcanoer).

IHateMS · Post by **IHateMS** » Wed Mar 30, 2011 10:28 am

west virginia? ohio?

CaptBoo · Post by **CaptBoo** » Wed Mar 30, 2011 11:20 am

New Mexico, Texas, Louisiana, Arkansas, Oklahoma, Colorado, Utah, Nevada, Kansas. I don't know, bit I have heard nothing about these states. Texas used to have a pin on Hubbard's IRB map, but it disappeared.

CaptBoo · Post by **CaptBoo** » Wed Mar 30, 2011 11:21 am

Look! I'm a family elder.

David1949 · Post by **David1949** » Wed Mar 30, 2011 12:55 pm

Michigan.

civickiller · Post by **civickiller** » Wed Mar 30, 2011 2:44 pm

Sucks being in Hawaii. I was talking to a local IR and he seemed interested. Is there a website or something that says what the IR procedure has to be, something I can print out an show him?

bestadmom · Post by **bestadmom** » Wed Mar 30, 2011 5:29 pm

Civickiller,

Hopefully the IR you found went to SIR this week. If not he should reach out to some of the leading doctors. They all share. There is a professional forum on ccsvi for members of endovascular.org.

bonzo1986 · Post by **bonzo1986** » Wed Mar 30, 2011 6:08 pm

New Mexico does not have anyone doing this. Although there is a vascular surgeon that was recommened to me when I was looking around for capable of doing an MRV.

Cece · Post by **Cece** » Sat Apr 02, 2011 12:13 pm

civickiller, what about Dr. Sclafani's paper in endovascular today from last summer?

http://bmctoday.net/evtoday/pdfs/et0710 ... lafani.pdf

It might be getting outdated, what has changed since then?

We had another TIMS member, selkie, from HI who couldn't find treatment afaik. I would love to see a Hawaiian IR get started. Travelling for treatment is possible but you need someone local for follow-ups or complications and you guys are just so far out there.

thornyrose76 · Post by **thornyrose76** » Sat Apr 02, 2011 1:07 pm

Missourri?

thornyrose76 · Post by **thornyrose76** » Sat Apr 02, 2011 1:07 pm

What about Tennessee?

bestadmom · Post by **bestadmom** » Sat Apr 02, 2011 1:26 pm

There is an IR at WashU in St Louis doing treatments. Ozarkcanooer knows his name.

Cece · Post by **Cece** » Tue Apr 12, 2011 7:52 pm

I just saw Utah mentioned as having two CCSVI IRs...Black and Hatch in provo, ut...it might be testing only?

Cece · Post by **Cece** » Tue Apr 19, 2011 1:04 pm

Texas is officially off the list, they've got CCSVI treatment available at Baylor:
http://www.debakeydepartmentofsurgery.o ... ent_id=272

CaptBoo · Post by **CaptBoo** » Tue Apr 19, 2011 1:18 pm

That's Baylor School of Medicine in Houston, not Baylor University in Waco.

That's a huge step in the world of medicine!