Question about Liberation treatment.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Artyom
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Question about Liberation treatment.

Post by Artyom » Thu May 19, 2011 2:09 pm

Hello! iam new here and my english isnt good.
I was diagnosed with MS 1 year ago with retrobulbar neuritis (im 22 years old atm :) got lots of active lessions on my mri.
Thinking about Liberation treatment... My currently symptoms is bad vision on left eye and some problems with memory and concentration. I can still run,jump,work without any problems... but looks like we starting to lose this things from time to time. Got doppler scanned and it showed that i have narrowed veins in my neck. Btw getting hard Migraine's from time when i was born (bad english sry)
Im a lil scared about this procedure... just wanna know what do u think. Do i need this or not? i heard from ppl ... that i can get worse after this procedure.
Your opinion is very important to me.

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dania
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Post by dania » Thu May 19, 2011 2:56 pm

Where do you live?

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Artyom
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Post by Artyom » Thu May 19, 2011 3:12 pm

Russia.

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munchkin
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Post by munchkin » Fri May 20, 2011 3:57 am

Because your disability is not extreme at this point my suggestion would be to wait for at least 6 months. Some of the Dr's in the states have made real changes in their technique and that can have a profound impact on your treatment.

Allow the other Dr's to catch up and don't take any unnecessary chances.

Have you read some of the threads on diet and natural regimes? There is some very interesting information on supplements and how they can affect blood flow. There might be some information there that can help with the migraines and some of your other issues. It is also good to do some of these regimes prior to procedure (by a number of months).

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dania
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Post by dania » Fri May 20, 2011 4:53 am

I say wait at least 6 months too. The technique is always changing. I had it done June 2010. I did get improvements but they only lasted a week. I have tried 4 more times and my veins are now 100% blocked. The doctors can not help me now. I am worse than ever. Some people like me have become more disabled since having the procedure. So, wait a little longer. And many, have to have it done more than once.

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Post by Cece » Fri May 20, 2011 6:39 am

Artyom, welcome to the forum, and all the best with this decision and with your MS. Some people have become worse since the procedure, probably not as the direction their MS was headed anyways but as a result of the blood flow being made worse.

For me, my blood flow was improved, and my MS has improved.

I avoided stents and avoided oversized balloons, both of which may lead to complications. I went with Dr. Sclafani , who now sizes the balloon through IVUS so as to minimize damage to the healthy vein when treating the unhealthy valve.

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Artyom
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Post by Artyom » Fri May 20, 2011 1:00 pm

Thx alot for ur answers.
Posts what i was reading here really giving hope to me.

:o

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esta
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Post by esta » Fri May 20, 2011 2:14 pm

artyom
katowice or warsaw, poland is the place for you to go, its close, state-of-the art techology and i too, recomend waiting. we're so close to getting a better, more lasting treatment.
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia

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