Hi, TIMS!
I'd like to talk a bit about my MS/CCSVI story.
I had only one procedure done almost 16 mnths ago. My vein is still OK. For over 2 years I have been relapse free. 4 mnths ago I decided to go off Tysabri (after 2 years of taking it). I was diagnosed 10 years ago. My EDSS is 4.
I am not sure what is going to happen, but now I feel stability. I am not cured of my symptoms, but i think the more i am relapse free the bigger chance for some improvements. We will see. So far, so good.
some numbers...
some numbers...
Polish, 33yrs, dx 2000 RRMS, 2013 RSPMS EDSS 6.
liberated in february the 2nd 2010:). Currently just on LDN.
liberated in february the 2nd 2010:). Currently just on LDN.
- 1eye
- Family Elder
- Posts: 3780
- Joined: Wed Mar 17, 2010 3:00 pm
- Location: Kanata, Ontario, Canada
- Contact:
I salute you. From my jaded perspective, which does not apply at all to you, if it ain't getting worse, you ain't sick. We can do amazing things if we are allowed a chance to heal. If you can walk and you can work, and you're not suffering, great! Keep working on healing.
The doc will say, what if you do have a relapse? In the words of James Thurber, "Don't count your boobies before they're hatched." (You had to be there.) Keep that endothelium healthy. Follow the plan on http://www.ccsvi.org.
The doc will say, what if you do have a relapse? In the words of James Thurber, "Don't count your boobies before they're hatched." (You had to be there.) Keep that endothelium healthy. Follow the plan on http://www.ccsvi.org.
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Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)