I really apologize for the delay in giving everyone an update but I am actually still trying to figure out what happened. And I'm serious.
Here's the deal: My wife and I are born again Christians and we (like many of you I bet) regularly pray for God to do a miraculous healing. Well, prior to the ultrasound in Staten Island on 6/10/11 and the angio in Brooklyn with Dr Sclafani on 6/11/11, my family and friends from Michigan were praying for us, her family and friends were praying from out of the country for us, as well as our friends and family in Florida where we live.
Last Friday I was tested for CCSVI and tested positive with at least two veins showing reflux. Then on Saturday Dr Sclafani said he could not find CCSVI in my veins and even said that he hasn't seen such healthy veins in the last two years. He also said that he has never treated someone diagnosed with MS that DID NOT show CCSVI on the venogram/IVUS and that I was the first. So as I'm still on the table and he's telling me this, I'm sorry to say but my first reaction was "Oh Great, so now what do I do?" I say that I'm sorry because me being a man of little faith way too often I never even really thought of the possibility of a miracle. My wife had told me for weeks prior that she was asking that Jesus would be the one actually doing the surgery and not Dr S. To be honest, feeling the way I feel has taken my faith down to an all time low. So after the procedure Dr S asked if I have ever been tested for Lyme disease and I told him I don't think so. He's never seen someone with MS that didn't also have CCSVI. So was it a miracle? or do I have Lyme disease? or do I actually have MS without CCSVI? I do feel better but I still have a lot of symptoms still. Saturday night was actually quite rough, I vomitted late Saturday night and even did during the procedure, I guess from the anesthesia which I hate. But the three days following the procedure my wife could barely keep up with me cause I felt so good as we went all over NYC from early morning until at least 9pm sometimes later.
I have called all three of the neurologists that I saw back in 2005 who independently diagnosed me w/ MS and none of them checked for Lyme disease! What? If MS is a disease that can only really be diagnosed after checking for everything else, how is it that neuros aren't doing that? So I am trying to find a good infectious disease doctor to test for and if need be treat Lyme disease, if anyone has any suggestions I would appreciate it. I want the best, I don't care where they are, I've got a beautiful loving wife and two young kids who need me and I refuse to not get better, whatever this stupid thing is I have.
So that is where I am at and again sorry for the delay.
The fight goes on!
WeWillBeatMS
