I have gone through your old record. We have since improved our system a great deal.juefaz wrote:Hi dr amir
I came for a consultation with you around two years ago and was and still am very interested in the work you do, I have relapse and remitting ms and had had ccsvi treatment about 8 months before I came to see you, I didn't think I had much improvement from the ccsvi so was a bit dubious at the time to spend even more money on having my jaw realigned, I had started chiropractor treatment around the same time I came to see you as I definitely think the connection with ms is more to do with alignment of the jaw, spine etc. as I had just started chiropractic treatment I wanted to do one thing at a time so have continued with that for the last two years, I've had lots of relief from initial problems I had with my neck, shoulders and arm. The only thing it has never helped with is my walking which to be fair to the chiropractor she never said it would, in fact in the beginning she didnt think she would be able to help me very much at all which she told me from the start but we decided to try, she xrayed my whole spine and c spine and I have a lot of problems, I have fusions in my c spine,I also have 2 curvatures and a narrowing at L5 I think, the fusions in the c spine seem to be confusing to the chiropractor and my neuro they both asked if I had a bad accident ever which I haven't, so they've come to the conclusion they are probably congenital, (we also have scoliosis in the family) another thing I have on my c spine which showed up on MRI is a syrinx which is a kind of bubble of Csf. My neuro found the syrinx which he also thinks may have been there for years but I don't think he really know. Now considering I have all these problems I can still walk and I still work in a physical job, Up until 6 months ago I wasn't even using a stick but the last few months I seemed to have progressed a bit and I now use a stick mainly for balance really. I do not and have never taken DMD's all I take is LDN which I have been taking for 3 years and I think has helped me, my neuro offers me DMD's each time I go but I refuse as I don't think they will help as I said at the beginning I think MS is more to do with alignment, veins, circulation etc and the dMD's can't help that. Because my walking has determinate s over the last few months I have been researching again and have been reading about a drug called ampyra which actually seems to make more sense to me for my walking problem as it is a potassium channel blocker which can give better nerve conduction, I'm considering trying it as apparently if its going to work it works within a month. This is the stage I'm at at the moment but after just reading everything that's been said on here a light suddenly went on in my head, around 6 months ago I stated having some dental treatment I've had a back tooth extracted I think it was a wisdom tooth, I've also had two root canal one quite large now I can't remember exactly if all this coincided with my walking deteriorating but I think it was all around the same time, so my question is do you think this dental work could have interfered with my walking? You did say when I saw you my jaw was misaligned and would need a brace so could this extra work I've had done made things worse? I'm in to minds now wether to give the ampyra a try or maybe come back to you, would you please give me some advice as I don't want my walking to deteriorate anymore. Thank you
You will have to visit my website:
http://dramir.com/testimonials.php
and look on the top right where it says:
"New patient? Start here"
Click and follow all the instructions.
On the website you can also read a lot of other testimonials.
The questionnaire now gives you the ability to record all the CCSVI treatment also.
Since you have had so much more done you will have to come for a repeat consultation.
I prefer my patients to have exhausted themselves of all other modalities of care and if you are inclined towards trying a drug you must do so before you come to me.
I honestly cannot fathom how a drug can possibly improve someones gait!
Please read:
http://pipeline.corante.com/archives/20 ... y_good.php
All the best