After the first procedure, my fatigue lessened, sensation and warmth came back to my feet, I walked better and I generally felt better. After the second procedure, I noticed a marked improvement in leg strength, balance, stamina and mental acuity. I continued to improve until December, when the cooler weather hit. But this is my usual M.O. It feels like someone hits the pause button, and as the warmer weather approaches I hope and expect to continue improvements since spring and summer are my best times of year. Unlike most MS/CCSVIer’s, I don’t do as well with the cold weather and look forward to the warm weather. One area that wasn't affected by either procedure was my sensitivity to weather, especially cold weather.
Last week I had a follow-up Doppler, and all is still well. The RIJV remains patent, 25 months after initial treatment. The LIJV is also doing well. Both have a bit of reflux but it is not material and since I’m feeling well and have held onto my improvements, we have no plans for another procedure at this time.
Dr. S. also did a neurological exam, as he did before my second procedure. My husband and I think he does a better and more thorough exam than any neurologists I’ve been to. He even sounds like a neurologist, and in this case I don’t mean that as an insult
Dr. S., thank you for all you’ve done for us. For being the only doctor who took up our cause when BestAdMom emailed over 100 doctors in the Northeast in October 2009, for continuing to stick with us and for being a leader in the field. You’re the best!
I should have mentioned that as part of Dr. Sclafani's scheduled protocol, I also had a Doppler check-up in August 2011, three months after the second procedure. The findings were the same as last week. Both veins patent, with some reflux but in light of how well I was feeling, there was and is nothing to do. I'll go back in a year for my next follow-up.
Thank you. I’m happy to be an instigator, but there were three of us – BestAdMom, Javaneen and me. It was a combined effort. We each emailed the doctors on a list mostly created and maintained by BestAd. And Dr. S. responded to BestAd’s email, so she’s should get the recognition. Along with Dr. S, of course. He’s awesome.
- Family Elder
- Posts: 683
- Joined: Mon Sep 04, 2006 2:00 pm
- Location: LeftCoast Canada
Hayes inspired Calcitriol+D3 2013-2014
Coimbra Protocol 2014-16
DrG B12 Transdermal Spray 2014-16
Low-Dose Immunotherapy 2015-16
My Current Regimen http://www.thisisms.com/forum/regimens-f22/topic25634.html
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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