internuclear ophthalmoplegia, one and half syndrome & CCSVI
Posted: Sat May 11, 2013 2:46 pm
Internuclear ophthalmoplegia(IO) (right sided) + one & Half syndrome.
Yep, I had to google both of those too.
This is the latest fun diagnosis Emma has had for her ever worsening eyesight issues.
She's had all sorts of wonderful improvements since starting treatment with Dr Amir that I guess it's only fair that something else goes wrong somewhere!
This latest diagnosis was made last week by a consultant Opthalmologist at our local hospital. Hat's off to the guy he did actually thoroughly test Emma rather than the usual "It's part of her MS" diagnosis.
Every time we discuss eyes, my mind automatically jumps back to the improvements Emma and so many others received on the table during a CCSVI procedure. There must be a link. So when I asked the consultant what the cause of IO and his answer was vascular and nerve issues I was jumping all over the vascular bit and straight into a discussion about CCSVI and how so many people have had vision improvement.
He'd never heard of CCSVI but for a delightful change was open minded and willing to absorb and listen and promised to go away for the holiday weekend and read up about it.
I gave him details of this forum and suggested if he had any questions that Dr S was the oracle as far as TiMS goes.
So Mr Kumar, if you're reading this thread thanks for being open minded and at least having a look at CCSVI and it's possible connection with IO and other problems.
If anyone else has any experience of the IO diagnosis please chip in. In the meantime I'll update once we get any more info at this end. Next appointment in one month.
There is possible treatment for this condition by means of a botox injection to the muscle in the offending eye, the thought of which makes me cringe!
Yep, I had to google both of those too.
This is the latest fun diagnosis Emma has had for her ever worsening eyesight issues.
She's had all sorts of wonderful improvements since starting treatment with Dr Amir that I guess it's only fair that something else goes wrong somewhere!
This latest diagnosis was made last week by a consultant Opthalmologist at our local hospital. Hat's off to the guy he did actually thoroughly test Emma rather than the usual "It's part of her MS" diagnosis.
Every time we discuss eyes, my mind automatically jumps back to the improvements Emma and so many others received on the table during a CCSVI procedure. There must be a link. So when I asked the consultant what the cause of IO and his answer was vascular and nerve issues I was jumping all over the vascular bit and straight into a discussion about CCSVI and how so many people have had vision improvement.
He'd never heard of CCSVI but for a delightful change was open minded and willing to absorb and listen and promised to go away for the holiday weekend and read up about it.
I gave him details of this forum and suggested if he had any questions that Dr S was the oracle as far as TiMS goes.
So Mr Kumar, if you're reading this thread thanks for being open minded and at least having a look at CCSVI and it's possible connection with IO and other problems.
If anyone else has any experience of the IO diagnosis please chip in. In the meantime I'll update once we get any more info at this end. Next appointment in one month.
There is possible treatment for this condition by means of a botox injection to the muscle in the offending eye, the thought of which makes me cringe!