relieving hypoxia in EAE rats leads to fast improvement

[Rosegirl]

zjac020,

Be very aware that whoever you seek treatment from will look at your condition through the lens of his training. The neurologist sees your symptoms as CIS or MS and recommends DMDs, even though there is no literature that says these drugs will cure anything but they can have fatal side effects.

The chiropractor trained in NUCCA or AO will concentrate on looking for problems with your spine and will never recommend drugs.

The neuro dentist will take a more holistic approach and consider how a blow to the head could affect the entire body and may suggest a variety of treatments.

In my case, after more than 20 years of being diagnosed with MS by several big time neurologists, I was told that I never had MS at all. I spent tens of thousands of dollars on Avonex (and was sick for eight years) and Tysabri, and then was told in retrospect that those drugs were never appropriate.

So as you go to each kind of practitioner, don't say that you have MS. Tell them what your problem is and let them tell you what they think is wrong.

Besides, if you know you have a specific sinus problem, don't let the CIS/MS label prevent you from getting treatment for an obvious, identifiable problem. Do more research to confirm for yourself how treatment of a sinus issue could resolve all your other problems.

Always start with the easiest, least expensive treatment. There will be plenty of time to look at CCSVI (which won't treat an underlying sinus problem anyway) or DMDs.

[zjac020]

zjac020,

Be very aware that whoever you seek treatment from will look at your condition through the lens of his training. The neurologist sees your symptoms as CIS or MS and recommends DMDs, even though there is no literature that says these drugs will cure anything but they can have fatal side effects.

The chiropractor trained in NUCCA or AO will concentrate on looking for problems with your spine and will never recommend drugs.

The neuro dentist will take a more holistic approach and consider how a blow to the head could affect the entire body and may suggest a variety of treatments.

In my case, after more than 20 years of being diagnosed with MS by several big time neurologists, I was told that I never had MS at all. I spent tens of thousands of dollars on Avonex (and was sick for eight years) and Tysabri, and then was told in retrospect that those drugs were never appropriate.

So as you go to each kind of practitioner, don't say that you have MS. Tell them what your problem is and let them tell you what they think is wrong.

Besides, if you know you have a specific sinus problem, don't let the CIS/MS label prevent you from getting treatment for an obvious, identifiable problem. Do more research to confirm for yourself how treatment of a sinus issue could resolve all your other problems.

Always start with the easiest, least expensive treatment. There will be plenty of time to look at CCSVI (which won't treat an underlying sinus problem anyway) or DMDs.

Sound advice rosegirl, although it may sound logical it's definitely all very true. One issue I have is that when doctors draw up their medical history/file they'll ask for any diseases. Would you just not tell them about the MS? It sounds a tad risky not to. As you've said however, I can gear the conversation away from the ms.

You've all mentioned a number of specialists, unfortunately I'm pretty sure tho sew specialist areas are not really catered for here in Spain. It's a Case of supply and demand and the consequences of having state health care...which ends up controlling the demand and hence the supply.

Rosegirl - you mentioned that in the end you didn't have MS, what was it then in your case?

[Rosegirl]

Luckily, although everyone involved agreed that the CCSVI trial at Georgetown University in Washington DC was improperly organized and fairly useless, it did prove that my veins were severely blocked. Based on the xray images and my symptoms (my left leg usually doesn't work well), the head neurologist -- when I pushed for an answer -- said I don't have MS. I have a vascular problem. Wow, more than 20 years with a misdiagnosis. All that time, all that money, all those drugs with horrible side effects and "oooooops".

I will never tell a doctor again that I have MS.

My chiropractor says that my problem is probably one related to how twisted my body has become and that chiropractic treatment might resolve my symptoms.

I have a massage therapist who thinks in time she can get my tight muscles loosened enough that just that might resolve the issue.

See, it's all in who you ask. Start with the cheapest, least invasive people you can find.

Here's the irony. You are probably the least educated person who will address your medical issues, but you are certainly the most motivated. Nothing will happen unless you make it happen. It's up to you to decide how much time, money and effort to put into this process.

If only we came with an instruction manual. . .

[CureOrBust]

This is not a blog post, its a thread about "relieving hypoxia in EAE rats leads to fast improvement". Please stay on topic where possible.

[Cece]

I can see where anyone who subscribed to the thread might be getting email updates that are off topic. It's a good topic: relieving hypoxia in EAE rats, which are a model for MS, leads to fast neurological improvement. Makes it seem obvious that relieving hypoxia in us human rats would also work!

But I also think it's good to have conversation here at TiMS. Some days there's not much going on. Zjac, if you know how to start a new topic, maybe that would be the way to go. Maybe we need a "conversation thread" purely for conversation.

You are probably the least educated person who will address your medical issues, but you are certainly the most motivated.

This struck me as a different way of thinking about it, and quite true.

[Bethr]

I liked the quote too
In chronic sleep apnea, where people get hypoxia whilst sleeping. phlebotomy can be used to make the patient feel better, providing they can tolerate it, ie: have enough body iron. That's kind of weird, but it apparently it works.
I think it has something to do with gas exchanges, but don't really understand that side of things. Forcing the body to make new oxygenated blood helps things & relieves many symptoms for sure, as many on head will attest to. In my case it helped me live a more normal life until we found the real cause of my problems.

I would love to see a trial of phlebotomy's for people with MS and fatigue. I think they'd learn something.

[CureOrBust]

The thing that comes to mind the most regarding the results of this paper, is that Hyperbaric treatment of MS patients has not found significant changes. But many EAE treatments do not work for MS. Maybe they should try Hyperbaric treatment with EAE mice.

This study also appears to me to actually possibly be used to argue against CCSVI as the cause or controlling factor for MS, but help explain why some MS patients would possibly see *some* improvements.