Big day this week - finally having CCSVI
- lifeisgood
- Getting to Know You...
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- Joined: Fri Mar 19, 2010 3:00 pm
- Location: Chicago area
Big day this week - finally having CCSVI
Hi all-
My husband has had RRMS for over 25 years. He is still able to work and if you looked at him, you really couldn't tell that he even has MS. I am the one who visits this sight and surfs the net to trying and keep up with what is new in the MS world.
I remember sitting in front of my computer back in 2009 when I first watched the lengthy video about Dr. Zamboni and his discovery. I sat....and watched... as I got goosebumps and had tears running down my cheeks and what this could possible mean for those suffering with MS.
We have watched from the sidelines as people traveled all over the world to have the procedure. We watched and waiting patiently and tried learned more.
My husband has finally decided not to wait any longer and to have it done this week at Rush Hospital in Chicago. We are nervous, excited and yet cautious. I can't believe it is actually going to happen and he will have his chance. It has come full circle for us. Say a prayer for him and the doctor if you have a minute!
My husband has had RRMS for over 25 years. He is still able to work and if you looked at him, you really couldn't tell that he even has MS. I am the one who visits this sight and surfs the net to trying and keep up with what is new in the MS world.
I remember sitting in front of my computer back in 2009 when I first watched the lengthy video about Dr. Zamboni and his discovery. I sat....and watched... as I got goosebumps and had tears running down my cheeks and what this could possible mean for those suffering with MS.
We have watched from the sidelines as people traveled all over the world to have the procedure. We watched and waiting patiently and tried learned more.
My husband has finally decided not to wait any longer and to have it done this week at Rush Hospital in Chicago. We are nervous, excited and yet cautious. I can't believe it is actually going to happen and he will have his chance. It has come full circle for us. Say a prayer for him and the doctor if you have a minute!
Re: Big day this week - finally having CCSVI
Tell us how it goes!! He has all my best wishes.
- lifeisgood
- Getting to Know You...
- Posts: 21
- Joined: Fri Mar 19, 2010 3:00 pm
- Location: Chicago area
Re: Big day this week - finally having CCSVI
Thanks. I feel like I know you, too!
- 1eye
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Re: Big day this week - finally having CCSVI
Hope all goes very well.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Re: Big day this week - finally having CCSVI
Which doctor will he be seeing? Do they use IVUS?lifeisgood wrote:My husband has finally decided not to wait any longer and to have it done this week at Rush Hospital in Chicago. We are nervous, excited and yet cautious. I can't believe it is actually going to happen and he will have his chance. It has come full circle for us. Say a prayer for him and the doctor if you have a minute!
- lifeisgood
- Getting to Know You...
- Posts: 21
- Joined: Fri Mar 19, 2010 3:00 pm
- Location: Chicago area
Re: Big day this week - finally having CCSVI
Dr Bulent Arslan and I believe so.
Re: Big day this week - finally having CCSVI
I've heard a lot of positive reports about Dr. Arslan but he was on record at ISNVD in 2012 saying that he does not use IVUS.
http://www.thisisms.com/forum/chronic-c ... 19297.html
The IR in Chicago who treats CCSVI and uses IVUS is Dr. Ferral: http://www.northshore.org/apps/findadoc ... x?pid=9120
The good thing about Dr. Arslan is that he's done a lot of procedures. I would consider him experienced.
http://www.thisisms.com/forum/chronic-c ... 19297.html
I wonder what he means by right equipment.Dr. Sclafani: IVUS needed to detect each valve. Dr. Arslan: Right equipment makes the difference; IVUS not needed
The IR in Chicago who treats CCSVI and uses IVUS is Dr. Ferral: http://www.northshore.org/apps/findadoc ... x?pid=9120
The good thing about Dr. Arslan is that he's done a lot of procedures. I would consider him experienced.
Re: Big day this week - finally having CCSVI
Midweek wishes for a safe procedure and quick recovery and improvements if possible!lifeisgood wrote:My husband has finally decided not to wait any longer and to have it done this week at Rush Hospital in Chicago. We are nervous, excited and yet cautious. I can't believe it is actually going to happen and he will have his chance. It has come full circle for us. Say a prayer for him and the doctor if you have a minute!
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