Bartonella and CCSVI connection

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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magoo
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Bartonella and CCSVI connection

Post by magoo » Mon Feb 08, 2016 3:58 pm

Bartonella causes small vessel disease and Neurovascular problems. The bacteria live in the endothelial cells. Could Bartonella be a cause of CCSVI?

http://townsendletter.com/July2015/bart ... 715_3.html

Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

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NHE
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Re: Bartonella and CCSVI connection

Post by NHE » Tue Feb 09, 2016 3:55 am

magoo wrote:
That was an interesting presentation. So... How do we find a doctor like Richard Horowitz?

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Re: Bartonella and CCSVI connection

Post by magoo » Tue Feb 09, 2016 5:30 am

http://www.cangetbetter.com/
This is his book. There are some great you tube videos too.
Dr. Mozayeni is located in Maryland. He sees patients.
http://tmgmd.com/?page_id=29
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

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Re: Bartonella and CCSVI connection

Post by NHE » Tue Feb 09, 2016 11:17 pm

magoo wrote:http://www.cangetbetter.com/
This is his book. There are some great you tube videos too.
Thanks. I had found his website and his clinic using Google Map's street view. He's 3,000 miles away. Is there some alternative?

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magoo
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Re: Bartonella and CCSVI connection

Post by magoo » Wed Feb 10, 2016 7:09 am

http://www.galaxydx.com/web/

I started here to research testing and browse their research. Most people work with a Lyme literate doctor. There aren't any in my area, so I took the research to my doctor and he agreed that the likelihood I have this infection is very high. I gave him my score on the MSIDS questionnaire and it was over 180! He agreed to treat me based on my history and symptoms. The testing is expensive and I'd rather put my money towards treatment.
http://www.cangetbetter.com/symptom-list

Instead of starting treatment with multiple long-term antibiotics, I'm trying an herbal protocol first. It's a long road to recovery, but I'm hoping to get better.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

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Re: Bartonella and CCSVI connection

Post by 1eye » Wed Feb 10, 2016 11:23 pm

Good for you. Don't bombard your gut-bacteria out of existence. Ever wonder how bartonella infects epitheliums? Maybe a leaky gut?
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Re: Bartonella and CCSVI connection

Post by magoo » Thu Feb 11, 2016 6:05 am

Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

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Re: Bartonella and CCSVI connection

Post by 1eye » Thu Feb 11, 2016 7:33 am

The 1st paper seems to say something I think another recent paper contradicts: if MS patients have increased endothelial apoptosis, then Bartonella would help that situation, so maybe you wouldn't need interferon.

If there were a
paracrine angiogenic loop
, that might be involved in some of the collateral vein increase in MS necks, but I have seen no evidence of increased angiogenesis anywhere else in MS. Basically I think in MS, you have more endothelial apoptosis, and not less.

Not sure though. Need more expert opinion. Too many contradictions.
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magoo
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Re: Bartonella and CCSVI connection

Post by magoo » Thu Feb 11, 2016 8:57 am

You definitely understand the research more than I do. I know that Dr. Klingheardt, Dr. Breitschwerdt and Dr. Mozayeni all found a connection to CCSVI.
In the second part of the video posted above (minute 41) Dr. Mozayeni discusses small vessels disease. It's fascinating.
Dr. Klingheardt discusses Lyme and co infections (Bartonella) and CCSVI in the link below.
http://www.betterhealthguy.com/images/s ... 0_v3.5.pdf
I spoke to Dr. Breitschwerdt and he also believes there is a strong possibility that the lesions seen in CCSVI are a chronic Bartonella infection.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

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Re: Bartonella and CCSVI connection

Post by magoo » Thu Feb 11, 2016 7:17 pm

This video contains the best information on Bartonellosis and treatment.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

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Re: Bartonella and CCSVI connection

Post by magoo » Fri Feb 12, 2016 8:03 am

The paragraphs quoted are from the link below. It's a good read.

"The white matter lesions and the associated symptoms are common in demyelinating or inflammatory disorders such as multiple sclerosis and lupus, hence Lyme or bartonellosis symptoms can cause erroneous diagnoses. Furthermore, it is possible to have Bartonella-induced multiple sclerosis, so while a diagnosis of multiple sclerosis might be correct, medical personnel making the diagnosis might not know what is causing it and therefore will not know that it is curable.

Bb and Bartonella can cause RBCs to stick together (any inflammation can cause this via the body's increased production of fibrinogen). This makes it difficult for RBCs to pass through capillaries, which are only as wide as a single RBC. This contributes to hypoperfusion and the associated fatigue and psychological problems.
http://www.benbrew.com/lb/lb.html
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

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Re: Bartonella and CCSVI connection

Post by Cece » Fri Feb 12, 2016 10:24 am

It seems reasonable that Bartonella and other infections could absolutely cause or worsen some cases of CCSVI. In Dr. Sclafani's thread, though, he did show us the difference between a valve that was bumpy, for lack of a better word, that could be caused by a previous infection and valves that were smooth but fixated. A smooth valve was more likely to be a birth defect. A bumpy valve could have had an infections origin. Most of what he was seeing was smooth valves. I remember a case where an infection was suspected to have played a role (maybe recurrent strep throat? I can't remember). I miss those case studies! They were fascinating.

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