CCSVI alive and well in Poland. Fascinating article.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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CureIous
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CCSVI alive and well in Poland. Fascinating article.

Post by CureIous » Sun Apr 08, 2018 11:54 pm

This popped up on my now pretty scant CCSVI Google news alert, not much there these days just the usual big pharma media claptrap about all that went awry 5-10 years ago, pretty boring stuff with lots of generalities and few specifics and almost no science.

Anyways this piece was a refreshing traipse down some pretty innovative thinking, and practice. Not some Facebooky testimonial or the like. Here's the link:

http://wmeritum.pl/jak-wyleczyc-nieuleczalne/229323

Now if you like myself cannot read Polish, fear not,
http://itools.com/tool/google-translate ... translator

Just copy the Polish link, plug it in the box at the itools link and you're good to go. Some of the translation misses but is totally readable and fascinating to boot, they even paid a visit to Dr. Sclafani. Much talk about both IVUS, and measuring pressure gradients in all areas, and how those differentials are more precise in locating restricted areas than just images from MRI or contrast Xray.

Not much that blows me away anymore now that officialdom has ostensibly wrapped CCSVI up in a bow and tossed it in the bin. Those of us who understand the science behind it, the hows and the whys to varying degrees, know full well that this is not dead, nor going anywhere, anymore than one could eliminate science, or human curiousity and exploration.

When those are gone consider CCSVI "dead". Until then, those things will move of their own volition regardless of what the pharmaceutical worshipping FDA says (or doesn't say).

Cheers.
Cureious..
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

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Re: CCSVI alive and well in Poland. Fascinating article.

Post by NHE » Mon Apr 09, 2018 2:11 am

Regarding https://www.ccsvi-clinic.com/en/ Try putting some of their image urls into a google image search. I often wonder about the integrity of a site that can't even use its own images. Are their doctors not sufficiently photogenic? Who cares! I'd rather see real photos than generic Photostock gloss.

https://www.google.com/search?tbs=sbi:A ... H8lA&hl=en

https://www.google.com/search?hl=en&tbs ... 64&dpr=0.9

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Re: CCSVI alive and well in Poland. Fascinating article.

Post by phlebologist » Tue Apr 17, 2018 4:46 am

It is a fake webpage, probably aimed at stealing money from naive patients. Nobody has heard about this "clinic". Also, after release of Brevedreams study, procedures for CCSVI are no longer performed in Poland

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Re: CCSVI alive and well in Poland. Fascinating article.

Post by Cece » Wed May 16, 2018 6:44 pm

phlebologist wrote:It is a fake webpage, probably aimed at stealing money from naive patients. Nobody has heard about this "clinic". Also, after release of Brevedreams study, procedures for CCSVI are no longer performed in Poland
I would trust phlebologist on this. Thanks for posting.

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Re: CCSVI alive and well in Poland. Fascinating article.

Post by Thomas79 » Mon Jun 24, 2019 12:17 am

phlebologist wrote:
Tue Apr 17, 2018 4:46 am
It is a fake webpage, probably aimed at stealing money from naive patients. Nobody has heard about this "clinic". Also, after release of Brevedreams study, procedures for CCSVI are no longer performed in Poland
You're wrong. CCSVI Clinic in Poland operates as part of a research project, and surgical operations of this type are in Poland completely legal also in the case of MS.

The site is what it is but since 2018 there has been a lot of information, including information and pictures of doctors ... excellent doctors.

Dr Sclafani also confirmed on this forum that he cooperates with the Polish clinic.

viewtopic.php?f=40&t=29288&p=257957#p257957 - this is a link to this post

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