Jacob's Clinic Study?
Jacob's Clinic Study?
Has anyone been accepted in to the study at the Jacobs clinic? I called but haven't got an answer yet.
Does anybody know if there is any inclusion/exclusion criteria they are using?
I want this tested, then I will check out the costs to get to Italy or Stanford!
Does anybody know if there is any inclusion/exclusion criteria they are using?
I want this tested, then I will check out the costs to get to Italy or Stanford!
web site?
I don't see any info the 'thejni' .org - is there another one?
Assuming the CCSVI paradigm for MS is true, doesn't their exclusion criteria pretty much exclude anyone with true MS: no vascular problems, no cognitive dysfunction, no vascular malformation, no cerebral vascular malformations?
Seems like they are excluding all the folks that they should actually be looking at.
I must be missing something.
Seems like they are excluding all the folks that they should actually be looking at.
I must be missing something.
- cheerleader
- Family Elder
- Posts: 5361
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
Jacobs does not want patients with previously diagnosed vascular problems. Since jugular/azygos reflux has never been diagnosed before- until Dr. Zamboni began looking at it- they are establishing the uniqueness of CCSVI. Jacobs is being VERY careful with their research. Because this is a completely new paradigm, their exclusion criteria is even more stringent than typical MS exclusion criteria. They do not want any claims of research pollution...thus the quiet nature of the study, the lack of publicity, their desire not to have an online presence. For those of us who want to hasten the acceptance of this paradigm-we need to respect this.Sport wrote:Assuming the CCSVI paradigm for MS is true, doesn't their exclusion criteria pretty much exclude anyone with true MS: no vascular problems, no cognitive dysfunction, no vascular malformation, no cerebral vascular malformations?
Seems like they are excluding all the folks that they should actually be looking at.
I must be missing something.
capice?
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- Sawdoggie
- Family Member
- Posts: 63
- Joined: Mon Sep 07, 2009 2:00 pm
- Location: Cincinnati, OH
- Contact:
I made an initial email contact with them last week and spoke with them yesterday for the health screening and I am all good to go next month. It is a three part event; 1) meeting with one of their physicians and doing a lengthy questionnaire; 2) the doppler study; and 3) about 2.5 hours of MRI time. They are still looking for people, MS and controls, and want to end up testing over 1,000 people. They mentioned they like to do family members if possible as well so my non-MS father was accepted and is going to go through the testing with me (we'll see how much he likes the tube). A 3T MRI is used for that portion which makes me wonder how much more they will see versus my 1.5T scans that I have had done. It should be interesting (or disturbing)! I would keep emailing if you don't hear anything and you want to participate. There is no cost to participating the study (seems obvious), but they do not reimburse for travel or lodging.
-
- Similar Topics
- Replies
- Views
- Last post