First liberation procedure in UK

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Dovechick
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Re: RE: LIBERATION PROCEDURE IN U.K

Post by Dovechick » Wed Jan 27, 2010 4:26 am

seeva wrote:HI member would you please let me know the contact details of ROYAL VICTORIA HOSPIAL'S BELFAST to do LP the one you had.Also contact details for the VS MR. ROBINBAKER. Who has paid the cost for the treatment ?
Thank you.
regards
SEEVA :roll:
Hi seeva, Leanne is right on the button, no one yet going it in the UK but not long now. Come and join us at www.ms-ccsvi-uk.org for the latest news. As soon as we can we will tell everyone what is going on, but at the moment the systems are not in place to deal with the many enquiries that are sure to follow.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

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an
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CCSVI and SM: where can I do the liberation?

Post by an » Fri Feb 19, 2010 9:15 am

Hello,
I'm Anna and I suffer from MS ; I have rcently followed the new possibility to cure SM with the liberation. I'm trying to find a palce in the long lists here in Italy by Prof. Zamboni but thing so very slowly I've just read about the experience of GICI and I kindly ask if someone can tell me a specialised centre in the UK?
Thanks to all
Anna

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Dovechick
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UK site

Post by Dovechick » Fri Feb 19, 2010 10:31 am

Hi Anna, there is currently not a clinic in UK, although there are a couple in the offing who are taking names.
the essential health clinic
and
Dr Paul Crowe.
if you put this information into a google box you will find them.

additionally you may like to join http://www.facebook.com/ms.ccsvi.uk
where the latest information is always available.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

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odd1
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ccsvi in ireland

Post by odd1 » Mon Mar 08, 2010 5:45 am

I've been searching the internet to find out how to go about getting the scan and treatment in Belfast but keep coming up with dead ends. Can you please tell me how to go about it and if you don't mind give me an idea of how much it costs. Thank you. Odd1

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Dovechick
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Nothing in Belfast

Post by Dovechick » Mon Mar 08, 2010 6:04 am

Sorry Odd1, there is nothing available in Belfast. The only one which took place was done as a favour by a colleague of the patient. If it were to take place in Belfast, I have no idea how much it would cost.

It cost us about 7000 Euros to have it done in Poland.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

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GiCi
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Belfast

Post by GiCi » Mon Mar 08, 2010 8:39 am

I confirm that Belfast is not offering liberation procedure at present.
GiCi

Edser
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CCSVI

Post by Edser » Mon Mar 08, 2010 8:49 am

Good afternoon TiMS & GiCi,
Would you think there is any chance your friend's might start up doing the Colour Dopler & the CCSVI Procedure in the near future again?
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

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GiCi
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Post by GiCi » Tue Mar 09, 2010 9:30 am

Edser,
I believe that Belfast will follow when evidence in favour of CCSVI as cause of MS is produced.
GiCi

Edser
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CCSVI

Post by Edser » Tue Mar 09, 2010 10:23 am

Thank's for replying GiCi
Slainte Mo Chara
Edser & Anna
Last edited by Edser on Tue Mar 09, 2010 11:14 am, edited 1 time in total.
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4

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ozarkcanoer
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Post by ozarkcanoer » Tue Mar 09, 2010 11:01 am

Sigh... it's a chicken or the egg problem, LOL. Neuros and other doctors won't accept CCSVI until it's approved, but patients seeking help are finding doctors willing to step up and help prove/disprove CCSVI. Other doctors are more cautious.

ozarkcanoer

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