- Maybe something will happen closer by - with all the medical institutions in the New England/New York metro area one of them has got to get on the stick.
- My wife's condition is fairly mild and doesn't really fit any ms category: a heavy right leg, slight weakness in the right arm, slight balance issues. She has been pretty stable this way for quite some time. Maybe we should wait until techniques are further refined, and the 'stent vs balooning' issue is more resolved?
As few more comments from me as a newbie to this forum -
It appears to me that MS comes in many flavors, and treatments such as the CRAB drugs, antibiotics, stem cells, etc, work fairly well on some, but not others. On the other hand diet modification and LDN (my wife does both of these) seem to help most folks at least somewhat. CCSVI appears to be the by far the most promising thing on the table, and the pioneers who have done the procedure have very moving stories. The Canadian video was amazing (I was the person who made Ashton Embry aware of CCSVI) - where is 60 minutes?
Currently there is nothing in the US outside of Stanford, treatment-wise. There is a small group of us trying to spread the word in MA, CT, NY metro area and NJ.
I suggest contacting interventional radiologists at the university med schools in your area - Dartmouth for sure. The more these doctors hear about CCSVI, the more likely they will be to pay attention to it.
I've also contacted Haake's office via e-mail (they are no longer answering their phones), they promptly got an e-mail back to me to tell me to contact the study at Jacobs. However, from what I can tell, Jacobs is not telling their participants what they find. It's not worth it to us to drive 7 hours to Buffalo for something like this.
- Family Elder
- Posts: 338
- Joined: Wed Jan 05, 2005 3:00 pm
- Location: Massachusetts, USA
According to The Center's founder, William McFaul, a retired business person and not a member of the scientific community, "Because of its universal applicability, our Life Sciences group has already used the model as a tool to identify highly probable causal paths for several illnesses and disease entities.” McFaul added, "The Center is seeking to affiliate with academic centers to provide its model for homeostasis to the scientific community for use as a tool to enable researchers to identify root causes of illnesses and disease entities. The Center is a think tank that creates models. We are not an operating company with the resources to educate individuals or organizations on the application of the models we create.”
My thought was maybe as a Think Tank, they’d be interested in looking into CCSVI. Anyone in New Jersey willing to look into it? Might be a lead and pan out, might not.