Oh, Radeck?
- Ruthless67
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Thank You Radeck
Radeck,
I am blown away by what has happened to you, and so very, very sorry. Like everyone here, my personal hopes are that everyone comes through this with positive results. But there has to be some one to go first, the pioneers like yourself, if research is to go forward. Thank you Redeck for what you put on the line. I appreciate it, I have learned from. it, I will proceed with caution. I’m sure this will draw needed attention to make this procedure safer for those that come after you.
I remember from your earlier posts that you weren’t too keen on the stints, you tended to lien more toward ballooning. And you seemed to have had a 6th sense or premonition, or what ever you might call it about this.
“Given that Z's patients do quite well at least until the narrowing gets worse again, and that I only had this since 11 months and am at least somewhat stable since 3 months, I would therefore not mind if I "only" got ballooned for now.” also “I'm probably thinking about it too much, as I always do.”
You were obviously right to have had concerns; and I’m so sorry again for what you are now going through. Please heal and get as strong as you can for your loved ones; they need you and we need you.
Respectfully,
Lora
I am blown away by what has happened to you, and so very, very sorry. Like everyone here, my personal hopes are that everyone comes through this with positive results. But there has to be some one to go first, the pioneers like yourself, if research is to go forward. Thank you Redeck for what you put on the line. I appreciate it, I have learned from. it, I will proceed with caution. I’m sure this will draw needed attention to make this procedure safer for those that come after you.
I remember from your earlier posts that you weren’t too keen on the stints, you tended to lien more toward ballooning. And you seemed to have had a 6th sense or premonition, or what ever you might call it about this.
“Given that Z's patients do quite well at least until the narrowing gets worse again, and that I only had this since 11 months and am at least somewhat stable since 3 months, I would therefore not mind if I "only" got ballooned for now.” also “I'm probably thinking about it too much, as I always do.”
You were obviously right to have had concerns; and I’m so sorry again for what you are now going through. Please heal and get as strong as you can for your loved ones; they need you and we need you.
Respectfully,
Lora
Hi Rad, so very sorry for all these troubles my goodness you've had a tough go of it. Just got back from TDay and now this and was wondering why you hadn't reported in. I know Dr. D feels like shit right now, and you feel much worse. We are all pulling for you and look forward to hearing a full report but please, don't worry about doing your progress thread til later okay?
You do what you gotta do and we'll be here when you are able and ready. I promise we won't relocate while your gone!
Mark.
You do what you gotta do and we'll be here when you are able and ready. I promise we won't relocate while your gone!
Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
stents migration
radeck,
I am very sorry to hear of your misadventure, which is to be considered a possible complication of the procedure of placing stents in the jugular veins. The concerns that Zamboni expressed in this matter are known and I do not think that the level at which the stents are placed (near the skull or lower down) is determinant: a dislodgement is in theory always possible in the early stages.
I would like to reassure you regarding the consequences of the open-heart surgery you underwent. In order to retrieve the stent only the right atrium was entered, which is not a pumping chamber, therefore the function of your heart muscle will not be compromised. In addition the stent floating inside your heart before surgery will not have caused any damage to the walls or valve.
Heparin is used in the post-op as soon as the bleeding from the inside of the chest ceases and it is replaced with coumadin in the second or third day. So you should not worry about the clots in the stents.
I end by wishing you a speedy recovery.
GiCi
I am very sorry to hear of your misadventure, which is to be considered a possible complication of the procedure of placing stents in the jugular veins. The concerns that Zamboni expressed in this matter are known and I do not think that the level at which the stents are placed (near the skull or lower down) is determinant: a dislodgement is in theory always possible in the early stages.
I would like to reassure you regarding the consequences of the open-heart surgery you underwent. In order to retrieve the stent only the right atrium was entered, which is not a pumping chamber, therefore the function of your heart muscle will not be compromised. In addition the stent floating inside your heart before surgery will not have caused any damage to the walls or valve.
Heparin is used in the post-op as soon as the bleeding from the inside of the chest ceases and it is replaced with coumadin in the second or third day. So you should not worry about the clots in the stents.
I end by wishing you a speedy recovery.
GiCi
Oh my goodness Radeck. I just got this news. I am so sorry you and your family are going through this. Please know my thoughts are with you. Be strong and heal fast!
Take good care,
Beth
Take good care,
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back. Placebo schmebo.
Gici, thank you fir the info. I was told by one of the docs on the heart surgery team that the valve between atrium and ventricle didn't have obvious damage, that one couldn't tell for sure what the stent had done while being lodged inside the ventricle to e.g. the spaghetti like structure that holds the valve in place (which was I think close to a 24 hours), and that the main issue down the road could be the scaring tissue from the atrium and heart-lung machine if I ever needed bypass surgery or something similar.
I'm glad I noticed the strange heartbeat Tue morning. Not sure when it would have been discovered otherwise...
I had no idea that Zamboni foresaw this, I knew he was skeptical of the jugular vein stents, but not why.
I wasn't even told I needed stents. But had I heard of this risk, I would have warned others who believed they would get them.
I'm glad I noticed the strange heartbeat Tue morning. Not sure when it would have been discovered otherwise...
I had no idea that Zamboni foresaw this, I knew he was skeptical of the jugular vein stents, but not why.
I wasn't even told I needed stents. But had I heard of this risk, I would have warned others who believed they would get them.
Last edited by radeck on Sat Jan 16, 2010 5:30 pm, edited 1 time in total.
Radeck, what a shock to go in for what seemed like a straightforward procedure and end up with one of the most invasive surgeries you could have! Even if you had known all the details about this in advance, how would you ever have thought it would happen to you?
Be gentle with yourself in your recovery. Trust that your heart will recover, with the best medical care around. I hope the original procedure brings you great results. Sending you all sorts of healing energy and positive wishes --
Be gentle with yourself in your recovery. Trust that your heart will recover, with the best medical care around. I hope the original procedure brings you great results. Sending you all sorts of healing energy and positive wishes --
Last edited by bluesky63 on Sat Feb 06, 2010 8:45 am, edited 1 time in total.
Radeck,
I just now saw this thread, and I want to wish you a speedy recovery with no lasting side effects. We've had our disagreements here, but I do want to wish you the best in all this.
I must say, given your situation, your posts sound pretty calm. And your updates are appreciated - I don't think I could even think about getting on the computer if I was in the same situation.
You have much going on, so don't feel like you have to respond to this individually.
All the best.
I just now saw this thread, and I want to wish you a speedy recovery with no lasting side effects. We've had our disagreements here, but I do want to wish you the best in all this.
I must say, given your situation, your posts sound pretty calm. And your updates are appreciated - I don't think I could even think about getting on the computer if I was in the same situation.
You have much going on, so don't feel like you have to respond to this individually.
All the best.
Rad,
I am so sorry that this happened to you!!! I just hate to think of this happening to someone we all know and care about, but I guess that is the way with these complications and side effects of surgery no one expects it. I do not know how common migration would be expected to be in jugular stents. ..I mean is it going to be one in a hundred? Man! Heal well Rad we are all thinking about you and look for your good healing!
marie
I am so sorry that this happened to you!!! I just hate to think of this happening to someone we all know and care about, but I guess that is the way with these complications and side effects of surgery no one expects it. I do not know how common migration would be expected to be in jugular stents. ..I mean is it going to be one in a hundred? Man! Heal well Rad we are all thinking about you and look for your good healing!
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics