Oh, Radeck?
Oh, Radeck?
Expected to hear from Radeck by now. High stents are the only thing I can think of that would keep such a man quiet this long, but I didn't think high stents were in the cards for him. Anyone know anything?
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I saw him right after his procedure, but I don't want to tell tales out of school. He did get some high stents, but I want to let him come on here and share. He was awake and talkative when I visited his room, sadly his wife and baby couldn't visit, because the hospital has a tough no kids policy now, due to H1N1. I hope he's recovering well, and will come on here soon to update. Miss you, radeck!
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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
The procedure didn't go at all as I expected. I will tell more about this when the time is right. When I recovered from the sedation I was told that they put 5 stents in me, including the upper jugular and azygos. One of the high jugular stents was too narrow and slipped into my right ventricle so I had emergency open heart surgery to remove it. l'll update you when I have more energy.
Last edited by radeck on Sat Jan 16, 2010 5:49 pm, edited 2 times in total.
Wow Radeck, that is a first. I am so sorry you had to go through that.
Last edited by LR1234 on Thu Nov 26, 2009 11:53 am, edited 1 time in total.
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So sorry to hear about that Radeck, get well soon we're all thinking of you
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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- flipflopper
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Unfortunately I'm not allowed to use blood thinners for now
to reduce internal bleeding, which means there may be an increased risk of clotting around the stents.
to reduce internal bleeding, which means there may be an increased risk of clotting around the stents.
Last edited by radeck on Sat Jan 16, 2010 5:38 pm, edited 1 time in total.
Thanks all. Recovery is slow, since surgeries pretty much don't come in more invasive forms than open heart ones, and long term effects on health are pretty unclear if you have a stent bouncing around jamming against the walls of your ventricle and valve for several hours.
Last edited by radeck on Sat Jan 16, 2010 5:37 pm, edited 1 time in total.
- Habenoughyet
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Point well made, radeck. I'm so sorry you had to deal with such a frightening complication.radeck wrote:Thanks all. Recovery is slow, since surgeries pretty much don't come in more invasive forms than open heart ones, and long term effects on health are pretty unclear if you have a stent bouncing around jamming against the walls of your ventricle and valve for many hours. I guess it's an obvious complication of this procedure, that I just didn't think about, you all on the wait list should seriously consider. If something gets lose in the jugular, it's a straight path into the heart. I'll tell you much more details when I'll (hopefully) be better.
I think this must be one of the reasons that the NIH has been so adamant in warning me about the dangers involved in such surgery. Hopefully, your experience will contribute to the knowledge base regarding the procedure, and corrections will be made that will diminish the chances of such a complication from ever happening again.
Thanks for having the courage to be a pioneer.
Get plenty of rest, and be well...