Oh, Radeck?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
Rokkit
Family Elder
Posts: 669
Joined: Tue May 19, 2009 2:00 pm

Oh, Radeck?

Post by Rokkit »

Expected to hear from Radeck by now. High stents are the only thing I can think of that would keep such a man quiet this long, but I didn't think high stents were in the cards for him. Anyone know anything?
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader »

I saw him right after his procedure, but I don't want to tell tales out of school. He did get some high stents, but I want to let him come on here and share. He was awake and talkative when I visited his room, sadly his wife and baby couldn't visit, because the hospital has a tough no kids policy now, due to H1N1. I hope he's recovering well, and will come on here soon to update. Miss you, radeck!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
radeck
Family Elder
Posts: 398
Joined: Mon Feb 16, 2009 3:00 pm
Contact:

Post by radeck »

The procedure didn't go at all as I expected. I will tell more about this when the time is right. When I recovered from the sedation I was told that they put 5 stents in me, including the upper jugular and azygos. One of the high jugular stents was too narrow and slipped into my right ventricle so I had emergency open heart surgery to remove it. l'll update you when I have more energy.
Last edited by radeck on Sat Jan 16, 2010 5:49 pm, edited 2 times in total.
LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 »

Wow Radeck, that is a first. I am so sorry you had to go through that.
Last edited by LR1234 on Thu Nov 26, 2009 11:53 am, edited 1 time in total.
User avatar
zap
Family Elder
Posts: 326
Joined: Mon Apr 20, 2009 2:00 pm
Contact:

Post by zap »

Egads. So glad you're alright ... recover well!
User avatar
bibliotekaren
Family Member
Posts: 75
Joined: Fri Jun 05, 2009 2:00 pm
Location: US
Contact:

Post by bibliotekaren »

Radeck,

I've been watching your journey as someone who is in line behind you. Am so so sorry to hear this. Please take good care.

Donna
User avatar
Mutley
Family Elder
Posts: 209
Joined: Thu Nov 12, 2009 3:00 pm
Location: England
Contact:

Post by Mutley »

So sorry to hear about that Radeck, get well soon we're all thinking of you
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
ErikaSlovakia
Family Elder
Posts: 1125
Joined: Wed Jul 29, 2009 2:00 pm
Location: Slovakia, Europe
Contact:

Post by ErikaSlovakia »

Get well soon, Radeck!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
User avatar
flipflopper
Family Elder
Posts: 187
Joined: Wed Nov 09, 2005 3:00 pm
Contact:

Post by flipflopper »

Wow...so sorry to hear this. Wishing you the best in your recovery Radeck!
radeck
Family Elder
Posts: 398
Joined: Mon Feb 16, 2009 3:00 pm
Contact:

Post by radeck »

Unfortunately I'm not allowed to use blood thinners for now
to reduce internal bleeding, which means there may be an increased risk of clotting around the stents.
Last edited by radeck on Sat Jan 16, 2010 5:38 pm, edited 1 time in total.
User avatar
marcstck
Family Elder
Posts: 560
Joined: Tue Jan 03, 2006 3:00 pm
Contact:

Post by marcstck »

Radeck, wishing you a quick and complication free recovery.
User avatar
Needled
Family Elder
Posts: 361
Joined: Wed Jan 14, 2009 3:00 pm
Location: Connecticut
Contact:

Post by Needled »

Oh Radeck, so sorry to hear of the complications. Please know we're thinking of you and wishing you the very best.
radeck
Family Elder
Posts: 398
Joined: Mon Feb 16, 2009 3:00 pm
Contact:

Post by radeck »

Thanks all. Recovery is slow, since surgeries pretty much don't come in more invasive forms than open heart ones, and long term effects on health are pretty unclear if you have a stent bouncing around jamming against the walls of your ventricle and valve for several hours.
Last edited by radeck on Sat Jan 16, 2010 5:37 pm, edited 1 time in total.
User avatar
Habenoughyet
Family Member
Posts: 74
Joined: Thu Nov 12, 2009 3:00 pm
Contact:

Post by Habenoughyet »

All the best... We all need you to get through this!!! :wink:

HEY
"Never argue with stupid people... They bring you down to they're level and beat you with experience"
User avatar
marcstck
Family Elder
Posts: 560
Joined: Tue Jan 03, 2006 3:00 pm
Contact:

Post by marcstck »

radeck wrote:Thanks all. Recovery is slow, since surgeries pretty much don't come in more invasive forms than open heart ones, and long term effects on health are pretty unclear if you have a stent bouncing around jamming against the walls of your ventricle and valve for many hours. I guess it's an obvious complication of this procedure, that I just didn't think about, you all on the wait list should seriously consider. If something gets lose in the jugular, it's a straight path into the heart. I'll tell you much more details when I'll (hopefully) be better.
Point well made, radeck. I'm so sorry you had to deal with such a frightening complication.

I think this must be one of the reasons that the NIH has been so adamant in warning me about the dangers involved in such surgery. Hopefully, your experience will contribute to the knowledge base regarding the procedure, and corrections will be made that will diminish the chances of such a complication from ever happening again.

Thanks for having the courage to be a pioneer.

Get plenty of rest, and be well...
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”