We seem to be having growing pains, IMHO!!
We seem to be having growing pains, IMHO!!
This is my humble opinion, but we seem to be having some growing pains with the increased number of posters lately.
This board has been the best one I have ever been on for staying 'on topic'. Everybody has a lot of great info but I'd like to suggest we try to limit this forum to CCSVI, and then try to keep each post in the thread related to the topic of that thread.
There are other forums on this board for nutrition, etc if you want to post.
This is a great board, but lately a lot of our threads in the CCSVI forum that start with CCSVI have been going everywhere, it's difficult to keep up! A great example is the acupuncture thread. It was an interesting idea, so I read it. Then it has migrated into about three different topics, going all over the place. I know it's a tough call, like there is a thread on 'nutrition and ccsvi', that I thought belonged here but someone else thought should be in the nutrition forum, but let's at least keep each thread 'on topic'.
And one other point, please try and see if there are any other active threads with your questions, for example I think right now there are two threads for donating to Buffalo, and three or four for the great news from Vancouver and for the latest Canadian TV coverage.
Thanks for all the interest!!
This board has been the best one I have ever been on for staying 'on topic'. Everybody has a lot of great info but I'd like to suggest we try to limit this forum to CCSVI, and then try to keep each post in the thread related to the topic of that thread.
There are other forums on this board for nutrition, etc if you want to post.
This is a great board, but lately a lot of our threads in the CCSVI forum that start with CCSVI have been going everywhere, it's difficult to keep up! A great example is the acupuncture thread. It was an interesting idea, so I read it. Then it has migrated into about three different topics, going all over the place. I know it's a tough call, like there is a thread on 'nutrition and ccsvi', that I thought belonged here but someone else thought should be in the nutrition forum, but let's at least keep each thread 'on topic'.
And one other point, please try and see if there are any other active threads with your questions, for example I think right now there are two threads for donating to Buffalo, and three or four for the great news from Vancouver and for the latest Canadian TV coverage.
Thanks for all the interest!!
- fiddler
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Structural changes?
While I agree with both of you, the huge amount of information here and the significant cross-thread utility of many postings means that it is almost impossible to search all the threads, many with "semi-duplicate" information. Then people, especially newbies, are almost forced to start new threads with questions that have already been answered because they can't possibly follow all the threads, many with important information not obviously related to the topic title. It doesn't help that there is no way to search only the CCSVI topics, and even if there was, choosing search keywords would be difficult.
I really think we need an information specialist to work on this, but in the meantime couldn't we a) clean up the stickies (making sure that these are the stickies we want, that off-topic conversations are deleted in them, and perhaps creating some more if we feel that some "sticky" info is missing) and b) create a "primer sticky" for newbies (and as a reminder to the rest of us when we're not sure)? There is so much good information here and so much hard work by pioneers, it shouldn't be lost in the din.
I really think we need an information specialist to work on this, but in the meantime couldn't we a) clean up the stickies (making sure that these are the stickies we want, that off-topic conversations are deleted in them, and perhaps creating some more if we feel that some "sticky" info is missing) and b) create a "primer sticky" for newbies (and as a reminder to the rest of us when we're not sure)? There is so much good information here and so much hard work by pioneers, it shouldn't be lost in the din.
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
My blog: www.my-darn-ms.blogspot.com
- fiddler
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For the primer
Hi bestadmom,
That kind of information should be in a primer sticky, wouldn't you say?
...Ted
That kind of information should be in a primer sticky, wouldn't you say?
...Ted
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
My blog: www.my-darn-ms.blogspot.com
- cheerleader
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- Location: southern California
Re: For the primer
we have that as a sticky in site support-fiddler wrote:Hi bestadmom,
That kind of information should be in a primer sticky, wouldn't you say?
...Ted
FAQs
http://www.thisisms.com/ftopict-5284.html
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- fiddler
- Family Elder
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- Joined: Wed Dec 02, 2009 3:00 pm
- Location: Fredericton, Canada
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Site support
Hi Cheerleader,
Many people, especially newbies or people we send here like the media or health professionals, will never go to the main ThisIsMS forum index to find the FAQs, or the specific one you refer to. I believe we need a primer regarding procedures within the CCSVI sub-forum, and maybe a FAQ that contains specific information-related (as opposed to procedure-related) questions that keep getting asked time after time. Much of that would be in the existing stickies (especially if they were cleaned up), but could be more "user-friendly".
...Ted
Many people, especially newbies or people we send here like the media or health professionals, will never go to the main ThisIsMS forum index to find the FAQs, or the specific one you refer to. I believe we need a primer regarding procedures within the CCSVI sub-forum, and maybe a FAQ that contains specific information-related (as opposed to procedure-related) questions that keep getting asked time after time. Much of that would be in the existing stickies (especially if they were cleaned up), but could be more "user-friendly".
...Ted
Dx SPMS in 2004. Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
My blog: www.my-darn-ms.blogspot.com
and I agree newbies might duplicate some real old posts that were answered before, but for example the Vancouver study was the title of like 3-4 threads in the top 20 today at one point, there was also at least 2 on giving to BNAC - people should at least look a little for what they want.
And my only problem with this is we are getting so many threads and posts now that it is getting very difficult to keep up with all of them, and I'd hate to miss something important!
And my only problem with this is we are getting so many threads and posts now that it is getting very difficult to keep up with all of them, and I'd hate to miss something important!
Oh, boy! We know that things have changed when there is an idea for a subforum I will agree that things have become a little confused the last month or so -- I think this is understandable. Newbies come here and post on the first thread that they click onto. They may never even see a "sticky" - don't even realize that it exists. I guess my thought is, if you see this happen, then redirect them. The "stickies" were started to keep that information free of posts ---hmm. it worked for awhile -- It is sort of like new people that move into town -- you just got to take time and point them to the best diner - - -
Jay123, what I realize is that many people have not been on a forum before -- and no matter how you try to get them to interract correctly the first time -- it ain't goin to happen. I think you have done an excellent job the past few days to remind people --- guess what, you will probably have to do it again next week when there are another 100 newbies looking at the site.
BTW - welcome to all the "newbies" We use to be able to make personal welcome posts to each "newbie" --- obviously, can't do that anymore -- again back to my new people in the town -- we just don't have enough time to bake a plate of cookies for all the newcomers! This is a good thing.
Sharon
Jay123, what I realize is that many people have not been on a forum before -- and no matter how you try to get them to interract correctly the first time -- it ain't goin to happen. I think you have done an excellent job the past few days to remind people --- guess what, you will probably have to do it again next week when there are another 100 newbies looking at the site.
BTW - welcome to all the "newbies" We use to be able to make personal welcome posts to each "newbie" --- obviously, can't do that anymore -- again back to my new people in the town -- we just don't have enough time to bake a plate of cookies for all the newcomers! This is a good thing.
Sharon