making CCSVI charitable contributions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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christophelux
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buffalo needs help

Post by christophelux » Sat Jun 19, 2010 6:09 am

Buffalo is the only sicentific blinded study already under way and that since April 2009. Other studies will start soon but are not operational already. 1 700 patients will be tested for CCSVI and the outcome could trigger widespread recognition of MS / CCSVI relationship. First 500 patients results were reported already with very promising prospects.

That is why it is so important tu support BNAC study which will not get any MS societies support due to close links with Zamboni.

BNAC just told me they only raised 202 000 dollars so far, 60 K from private people.Tthey need 5 millions to finish the sutdy.

So please all donate quickly. Stop giving MS societies, give the money directly to studies. See link below.

http://www.bnac.net/?page_id=497

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Post by Cece » Thu Jul 08, 2010 12:24 pm

There are also many news articles lately featuring individual Canadians who are fundraising to raise money for their treatment.
Last edited by Cece on Tue Aug 31, 2010 10:33 am, edited 1 time in total.

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bestadmom
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Post by bestadmom » Sat Aug 07, 2010 5:33 am

The CCSVI Alliance website, ccsvi.org is up and running! We are a 501c3 nonprofit US corporation. For those who want to get to know us, go to http://www.ccsvi.org and if you'd like to help further CCSVI research or the Alliance, check out "Helping the Cause".


Thanks!!
Michelle
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leooreo
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Find ccsvi organizations through websites on Google

Post by leooreo » Mon Aug 09, 2010 4:34 pm

Please donate directly to these organizations.

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Gordon
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CCSVI Calgary

Post by Gordon » Tue Aug 31, 2010 8:12 am

CCSVI Calgary is a charitable group as well. We are raising money to send 50 Calgarians to Poland.

They will be part of a large study in Poland.

G

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gabbycats
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Raising $ for Research

Post by gabbycats » Sun Sep 19, 2010 4:01 pm

I have a personal plea for donations towards Dr. Siskin’s clinical trial which has started and will show that people with Multiple Sclerosis are suffering from CCSVI and it's treatable. Our fundraising goal is $10,000, if each of the people on my friends list can donate $5.00 we will have almost reached that goal. Dr. Gary Siskin is one of our pioneer heroes in the treatment of CCSVI. I would like us all to help insure this study will be well funded and move forward. I’ve set up a Paypal donation button and I urge you to donate.

Please share this link on your wall or in your email with friends and family, every bit helps!

Thank you so much for your donation.

Our donation page: http://clinicaltrial.freewebpages.org/index.html



Evaluation of Angioplasty in the Treatment of Chronic Cerebrospinal Venous Insufficiency (CCSVI) in Multiple Sclerosis: http://clinicaltrials.gov/ct2/show/NCT0 ... svi&rank=1

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sbr487
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Post by sbr487 » Sun Oct 31, 2010 9:56 am

anyone know how to contribute to Dr. Dake's study?
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

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sbr487
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Post by sbr487 » Mon Nov 01, 2010 9:14 am

Never mind. Alliance page has info on this ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

Cece
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Re: Raising $ for Research

Post by Cece » Mon Nov 01, 2010 10:41 am

gabbycats wrote:Our donation page: http://clinicaltrial.freewebpages.org/index.html
Here is the updated page:
http://www.firstgiving.com/ccsvi

For donations to Dr. Siskin's research trial on CCSVI.

He has many supporters here!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

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ms2009
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Post by ms2009 » Tue Nov 02, 2010 11:38 am

Greetings,
There are various ways to raise funds. I suggest for charities to approach big donors rather than small ones. It is easier to convince one person to give $100k or $1M rather than collecting small amounts.

I also tried to raise funds through a competition, however, people are not much interested for an unknown reason:
Try to see: http://www.avivacommunityfund.org/ideas/acf8942

Even if my campaign did not work, I suggest for others to post their ideas again on this site for the coming round. It does not require a huge number of people. It just need a strong team behind the cause.

There are other venues to raise funds as well.

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sbr487
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Post by sbr487 » Tue Nov 02, 2010 7:46 pm

ms2009 wrote:Greetings,
There are various ways to raise funds. I suggest for charities to approach big donors rather than small ones. It is easier to convince one person to give $100k or $1M rather than collecting small amounts.

I also tried to raise funds through a competition, however, people are not much interested for an unknown reason:
Try to see: http://www.avivacommunityfund.org/ideas/acf8942

Even if my campaign did not work, I suggest for others to post their ideas again on this site for the coming round. It does not require a huge number of people. It just need a strong team behind the cause.

There are other venues to raise funds as well.
I think EndMS has quite a bit of donation from a single charity group. Dont exactly remember the name but it was probably Pennington or something like that ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

Rogan
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Re: making CCSVI charitable contributions

Post by Rogan » Fri Dec 23, 2011 11:31 am

All,

My father and my wife's aunt both died from MS.

I have been daily following all of the posts here at TIMS since 12/16/09. I have shared information found here with Neurologists, Vascular Surgeons, and friends I know who have MS. Thank you all for your contribution to science and MS research. I just donated $250 to this group below.

http://www.hubbardfoundation.org/suppor ... ation.html

http://hubbardfoundation.blogspot.com/2 ... nutes.html

It seems like a modest way I can express my Christmas gratitude at what is happening here. You won't see me post because I don't want to clutter this wonderful site. But we will continue to donate to CCSIV research.

Thank you,

Rogan Jones

Cece
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Re: making CCSVI charitable contributions

Post by Cece » Fri Dec 23, 2011 1:47 pm

I cannot imagine that your posts would be clutter or anything but welcome. If you've been following for that long, you know the ins-and-outs of CCSVI!
Merry Christmas, and what a wonderful gift it is to contribute to CCSVI research.

Rogan
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Re: making CCSVI charitable contributions

Post by Rogan » Fri Dec 07, 2012 9:54 am

It's that time of year again. I just made a $250 donation to the CCSVI Alliance.

http://ccsvi.org/

Their efforts to spread CCSVI awareness and their ability to bring some very smart minds together to solve this horrible disease has been a blessing for me and the world.

Thank you CCSVI Alliance, keep up the great work you do. And thank you for supporting ISNVD.

http://www.isnvd.org/index.php?site=home

It looks like ISNVD could be your groups "Science Advisory Board" what an amazing group of doctors that are working on this.

brocktoon
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Re: making CCSVI charitable contributions

Post by brocktoon » Mon Sep 09, 2013 8:19 am

The MRI Institute of Biomedical Research (Detroit, MI) is currently working a paper with a large cohort of MS-patients and healthy controls. We are also working on a paper with the Zamboni group to show flow extra-cranial venous collaterals in MS and normal subjects. So far we have demonstrated abnormal flow distributions in the jugular veins in stenotic MS patients in three different data sets, but the next one will have a large cohort of healthy controls to compare it to. In addition to this research, we are also working on a flow-related paper with respect to PD patients.

http://www.mrimaging.com

Apologies if this is spam, but I want to get the information out there. Our group is very prolific and highly respected so any donations would be a sound investment which we would greatly appreciate.

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